Resources

AYA Cancer Resources

Be The Match National Marrow Donor Program

They help patients afford transplant, find a matching donor and build a future as we advance medical research.

For more information contact: Kari Bailey, Manager, Office of Patient Advocacy at www.marrow.org

Website: http://www.marrow.org/
Contact: Kari Bailey

Brain Tumor Foundation

Getting the best, most up-to-date information is critical for making informed decisions about treatment and living with the best quality of life possible.

National Brain Tumor Society (NBTS) is a nonprofit organization committed to finding a cure for brain tumors. We aggressively drive strategic research, advocate for public policies that meet the critical needs of the brain tumor community, and provide patient information. Headquartered in Watertown, Massachusetts, with offices in San Francisco, California and Wilmington, Delaware, we host activities throughout the United States.

Formed in 2008 by the merger of two leading organizations that had served the brain tumor community, the National Brain Tumor Foundation and the Brain Tumor Society, the National Brain Tumor Society is now the largest brain tumor nonprofit organization in the country. Both legacy organizations had been formed in the 1980s by parents and other people who were committed to increasing both research funding and access to resources specific to brain tumors. In 2010, the Kelly Heinz-Grundner Foundation, a Delaware-based organization, joined NBTS as a wholly-owned subsidiary. Founded in 2005, after the death of Kelly Heinz-Grundner to a brain tumor, the group has contributed to NBTS’s efforts to pursue research and public policies that benefit the brain tumor community.

Learn more about our research initiatives, public policy advocacy efforts, and patient information. If you’d like to get involved, volunteer, make a gift, or if you have a questions, contact us at 800.770.8287 or visit our contact us page.

www.braintumor.org

Phone Number: 800-770-8287
Website: http://www.braintumor.org/

Cancer and Careers

This organization is dedicated to empowering and educating people with cancer to thrive in their workplace by providing expert advice, interactive tools and educational events.

Many free publications available.

For more information contact:

www.cancercareers.org

Website: http://www.cancercareers.org/

Caring for Carcinoid Foundation

The mission of the Caring for Carcinoid Foundation (CFCF) is to discover cures for carcinoid cancer, pancreatic neuroendocrine cancer, and related neuroendocrine cancers. CFCF also works to eliminate the suffering of patients, families, and caregivers affected by neuroendocrine cancers.

To achieve rapid discovery of a cure, CFCF directs 100% of all individual donations to fund breakthrough scientific research of carcinoid and related neuroendocrine tumors. This is made possible by the generous support of its Board of Directors and corporate sponsors.

Since its inception, CFCF has awarded over six million dollars in research grants to leading scientists at renowned research institutions. Along with its focus on research, CFCF is committed to supporting patients, families, friends and caregivers by providing them with complete and up-to-date information.

This organization works with the National Cancer Institute.

198 Tremont St, Box 456

Boston, MA 02116

http://www.caringforcarcinoid.org/

Website: http://www.caringforcarcinoid.org/

Chasing Rainbows Young Adult Cancer Advocacy

Their goal is to discover and distribute multi-media resources for young adults living with cancer.

Visit: www.chasingrainbows.ca for an extensive list of multimedia resources for AYA’s with cancer and their families!

A few films listed on the website:

Chasing Rainbows: Young Adults Living With Cancer (Chasing Rainbow Production, 2006)

I Don’t Have Time For This! (Big Coat Productions, 2010)

Wrong Way To Hope (Hands On Films, 2010 – 2011)

Dancing with N.E.D*: Six Cancer Surgeons on a Rock n Roll Mission (Spark Media)

*(N.E.D = No Evidence of Disease)

Website: http://www.chasingrainbows.ca/

Curesearch

Curesearch is the largest childhood cancer research organization, the Childrens’ Oncology Group, and the national Childhood Cancer Fondation through its mission to cure childhood cancer.

For more information visit: www.curesearch.org

Website: http://www.curesearch.org/

Fertility Issues

An excellent resource for information on fertility issues for cancer fighters is Livestrong/Fertile Hope. Connect with an Oncofertility Specialist. For more information contact: Livestrong.org/Get-Help or call 855.220.7777

Or TALK TO YOUR ONCOLOGIST!

Phone Number: 855-220-7777
Website: http://www.Livestrong.org/

First Descents

First Descents offers young adult cancer fighters and survivors (ages 18 to 39) a free outdoor adventure experience designed to enable them to climb, paddle and surf beyond their diagnosis, defy their cancer, reclaim their lives and connect with others doing the same.

Our programs are all over the country and range anywhere from 1 day to 1 week. Any YA with cancer is eligible regardless of physical challenges, diagnosis or prognosis!

Phone: 303.945.2490

Fax: 303.474.3005

info@FirstDescents.org

www.firstdesents.org

6000 Greenwood Plaza Blvd.

Suite 120

Greenwood Village, CO 80111

 

Phone Number: 303-945-2490
Website: http://www.firstdesents.org/

Imerman Angels

Imerman Angels carefully matches and individually pairs a person touched by cancer (a fighter or survivor) with someone who has fought and survived the same type of cancer (A Mentor Angel). Cancer caregivers (spouses, parents, children and other family and friends of fighters) also receive 1-on-1 connections with other caregivers and survivors. These 1 to 1 relationships inspire hope and offer the chance to ask personal questions and receive support from someone who is uniquely familiar with the experience. The service is free and helps anyone touched by any type of cancer, at any cancer stage level, at any age, living anywhere in the world.

877.274.5529 or visit the website at: www.imermanangels.org

Phone Number: 877-274-5529
Website: http://www.imermanangels.org/

Jeremy Cares

Founded in 2011, Jeremy Cares Inc is a 501(c)3 non-profit organization with a mission to enrich the lives of families with children dealing with serious illnesses by promoting emotional and social healing by working with other local organizations to support and help the families regain feelings of control, improve self-image, and to diminish the stresses that illness creates for the entire family. This is accomplished by partnering with other facilities in Northeastern Ohio that provide medical care or support to the families.

Through the support of our fundraising efforts, we have been able to provide Holiday Gifts to the families of over 40 patients, their siblings, and their parents at Rainbow Babies & Children’s Hospital. We have also been a proud sponsor of a family room at the Cleveland Ronald McDonald House which will provide housing to approximately 37 families that need a place to stay while their child is being treated at one of the area hospitals.

109 Tomahawk Drive, Avon Lake, Ohio 44012

440-933-9146

www.jeremycares.org

Phone Number: 440-933-9146
Website: http://www.jeremycares.org/

Karen E. Mumford Cancer Foundation

Karen E. Mumford cancer foundation (KEM) is a national nonprofit organization that provides financial assistance and debt relief to cancer patients for their revolving expenses. In addition, it strives to broaden general awareness of the impacts of cancer by way of counseling, presentations, and research funding.

Website: http://www.kemfoundation.org/
Contact: Nathan Mumford   Nathan@kemfoundation.org

Leukemia & Lymphoma Society

Their mission is to cure leukemia, lymphoma, Hodgkin’s disease and myeloma, and improve the quality of life of patients and their families.

The LLS provides a host of services for survivors and their families. For more information contact:

Locally: 23297 Commerce Park

Cleveland, Ohio 44122

1.216.910.1234

Or toll free: 1.800.589.5721

Or Visit: www.lls.org/noh

Phone Number: 180-058-95721
Website: http://www.lls.org/noh

LiveStrong

Demand Media and the Lance Armstrong Foundation built LIVESTRONG.COM as the definitive daily health, fitness and lifestyle destination. The Lance Armstrong Foundation (LAF) unites people to fight cancer, believing that unity is strength, knowledge is power and attitude is everything. They provide the practical information and tools people battling cancer need to live life on their own terms. They take aim at the gap between what is known and what is done to prevent death and suffering due to cancer. They engage the public at large to pursue an agenda focused on preventing cancer, ensuring access to screening and care, improving the quality of life for people affected by cancer, and investing in needed research. Founded in 1997 by cancer survivor and champion cyclist Lance Armstrong, the LAF is located in Austin.

For more information visit: http://www.livestrong.com

Website: http://www.livestrong.com/

mAsskickers: this aint no pity party!

mAss Kickers Foundation believes that to see tangible results in the war on tumors/cancer, we should USE THE K.U.R.E. when dealing with an intimating tumor/cancer diagnoses. Use KNOWLEDGE, PROMOTE UNITY, AND SUPPORT RESEARCH and EMPOWER yourself. Use the K.U.R.E is an excellent strategy to combat any diagnosis for people currently dealing with a tumor/cancer because ALL TUMORS SUCK!!!

Check out this unique site!!! At www.mAssKickers.org

mAss Kickers Foundation

1950 Camino De La Reina #312

San Diego, CA 92108

Amanda Hitt: Patient Research Coordinator

Amanda.hitt@mAssKickers.org or at 858.997.6461

Website: http://www.mAssKickers.org/
Contact: Amanda Hitt   Amanda.hitt@mAssKickers.org   858-997-6461

Meredith A Cowden Foundation

The Meredith A. Cowden Foundation raises funding for research and awareness of the blood cancers, as well as Graft vs. Host Disease (GvHD), a condition that is a complication of a bone marrow transplant. GvHD can be an acute or chronic condition and, sadly, can be fatal if not controlled properly. Through our events, we have raised funds for leukemia researchers, who work to discover new and effective ways to combat the disease and avoid the side effects of current treatments.

Website: http://www.cowdenfoundation.org/
Contact: Gerald and Marti Cowden

National Cancer Institute

The National Cancer Institute (NCI) is part of the National Institutes of Health (NIH), which is one of 11 agencies that compose the Department of Health and Human Services (HHS). The NCI, established under the National Cancer Institute Act of 1937, is the Federal Government’s principal agency for cancer research and training. The National Cancer Act of 1971 broadened the scope and responsibilities of the NCI and created the National Cancer Program. Over the years, legislative amendments have maintained the NCI authorities and responsibilities and added new information dissemination mandates as well as a requirement to assess the incorporation of state-of-the-art cancer treatments into clinical practice. This site has a wealth of information.

For more information visit: www.cancer.gov

Website: http://www.cancer.gov/

Official Fitness Pro

OFP is dedicated to providing the most up to date and professional service possible. Each OFP professional is an expert in their various areas of health and fitness. OFP experts often work together with the same clients. HIRING OFP IS THE SAME AS HIRING A TEAM OF EXPERTS TO ASSIST YOU. OFP offers individualized and group fitness training, and nutritional counseling. The staff is dedicated to finding each client an individualized training program.

For more information contact: Jeremy Dancy at http://www.officialfitnesspro.com/ or call 440-829-3743

Phone Number: 440-829-3743
Website: http://www.officialfitnesspro.com/
Contact: Jeremy Dancy

People Against Childhood Cancer

Our mission is to raise awareness of Childhood Cancer. Together, we can accomplish more. We know that 1,000 voices are louder than 1. That we must achieve a critical mass where our advocacy voice will be heard by the media, corporations and organizations that can help PAC2 raise awareness and direct funding to research to cure childhood cancer. We will each set aside our own personal goals, need for recognition, jealousies and egos. We are doing this for the kids. We will work together on Initiatives that are developed and implemented collaboratively.

For more information visit: http://curechildhoodcancer.ning.com/

Website: http://curechildhoodcancer.ning.com/

Planet Cancer

Planet Cancer was founded by young adults in their twenties; either in the midst of or barely out of treatment for cancer. Not only had they endured the incredible indignity of a cancer diagnosis in what should have been the best years of health, they had also all suffered from an immense void in services and support for young cancer patients. The majority of the other patients they encountered were separated by mental, emotional and physical lifetimes. As young adults with cancer, they felt that they had fallen through the cracks, and they wanted to reach out to others having the same experience.

For more information visit: www.planetcancer.org

Website: http://www.planetcancer.org/

Re-Mission – A Video Game for Teens

A video game that gives young people with cancer a sense of power and control over their disease. It’s a fun, effective tool that supports treatment adherence and can be used in the clinical setting or at home by patients on maintenance therapy. Re-Mission is rated T for Teen.

There are two versions. The early version is available for download from their website. There is also a more recent version. PLAY! FIGHT! WIN!!!

To order games go to: www.re-mission.net

These games have been create by Hope Lab (www.hopelab.org)

Website: http://www.re-mission.net/

SURVIVE AND THRIVE

Survive and Thrive Expeditions Inc. is dedicated to combining travel, adventure and in-depth reflection and exploration of the cancer journey into one unique life changing experience.

We are going to the GRAND CANYON! Spend 7 days traveling 188 river miles on a motorized raft through the majestic Grand Canyon, each day stopping to explore a new side canyon, Puebloan ruin, waterfall or aqua blue stream. Survive & Thrive Expeditions is partnering with Hatch River Expeditions to provide a special once in a lifetime trip for young adult cancer survivors. A part from exploring the unbelievable landscape this trip will focus on living better post-treatments as well as how to tell your story and be an effective advocate for our young adult cancer survivor peers. The trip will explore practical skills, such as guided meditation, building life mission statements and storytelling, as well as real life examples of survivors who have been able to turn their painful cancer experience into something that has inspires and changes lives. Matt Ferstler (www.singlejingles.org), Mike and Bonnie Lang (Directors of STE, www.wrongwaytohope.com, www.ebbflowstory.com) and a mystery presenter will be facilitating the evening discussions.

Contact Us

Feel free to contact us by phone or email.

403.923.8032

info@survivethrive.org

139 Woodhaven Bay SW, Calgary, AB T2W 5S2

E-mail Address: info@survivethrive.org
Phone Number: 403-923-8032
Website: http://www.survivethrive.otrg/

Testicular Cancer Society

The testicular Cancer Society raises awareness for the common form of cancer in men age 15-35 years. They are dedicated to increasing awareness and education about the disease and providing support for fighters, survivors, and caregivers.

Visit: www.testicularcancersociety.org

Or contact Mike Craycraft R.Ph. (Survivor/Founder)

561.703.1788 or email him at mike@testicularcancersociety.org

Website: http://www.testicularcancersociety.org/
Contact: Mike Craycraft   mike@testicularcancersociety.org   561-703-1788

The Always Keep Pedaling Foundation

To provide young adults in financial need with the means to use adventure sports, athletics, and adaptive sports to energize a comeback from cancer.

The AKP Foundation

65 East Branch Farms

Manchester Center, VT 05255

www.akpfoundation.org

Website: http://www.akpfoundation.org/

The Colon Club

The Colon Club was founded in 2003 by Molly McMaster, a colon cancer survivor who was diagnosed on her 23rd birthday, and Hannah Vogler, whose cousin and Molly’s friend, Amanda Sherwood Roberts, died of the disease at the age of 27. Our main goal is to educate as many people as possible, as early as possible, about colorectal cancer in interesting and out-of-the-box ways. Our wishes are for people to have “colon talk” in their everyday lives, to know the risk factors and symptoms, and to get screened when it is appropriate for them.

For more information:

Visit: www.colonclub.com

Or

The Colon Cancer Alliance

Helpline: 1.877.422.2030 or visit: www.ccalliance.org

Phone Number: 187-742-22030
Website: http://www.colonclub.com/

The Liddy Shriver Sarcoma Initiative

The mission of the Liddy Shriver Sarcoma Initiative is to improve the quality of life for people dealing with sarcoma. The Initiative increases public awareness of sarcoma, raises funds to award research grants, and provides support and timely information to sarcoma patients, their families, and medical professionals. These efforts are achieved through collaboration with numerous individuals and organizations that share a similar vision.

The Liddy Shriver Sarcoma Initiative

17 Bethea Drive

Ossining, New York 10562-1620

Phone: (914) 762-3251

Fax: (914) 941-9181

www.sarcomahelp.org

Phone Number: 914-762-3251
Website: http://www.sarcomahelp.org/

The SAMFund

The SAMFund provides grants and scholarships to young adult survivors to help supplement money that was lost during treatment. The grants and scholarships we provide help pay for transitional issues such as education, living, job search and lingering medical expenses. We will partner with existing organizations to provide the best support possible so that these young adults can not only survive, but truly move forward.

Phone Number: 617-938-3484
Website: http://www.thesamfund.org/