Uncategorized

Letter from Steven

Hi Everyone,

For those that haven’t heard, I regret to inform you that this pass September I was diagnosed with two new cancers. If you are keeping count that makes number three and four. There are currently two tumors in my body. One is Renal Cell Carcinoma located on my right kidney. The other is what we call a Soft Tissue Sarcoma. The Sarcoma tumor is specifically caused by my previous treatment and is in my lower spinal muscles.

As you can imagine this was not expected and has taken my whole family by surprise. This new little hiccup in my life has cast many things in my life into doubt. Let me be clear though, I am doing well. I have recently finished radiation for the tumor in my back. I am currently waiting to have surgery which will be in Mid-February. Near that surgery we will also operate on the kidney mass. I will not have my kidney removed, only a very small portion of it will be removed.

Even before the discovery of these new cancers, I already viewed life a little differently. Since being diagnosed again, I have begun to question the time frame I have to achieve the goals of my life.
If you are reading this then you are acutely aware of one of them, providing for the needs of cancer patients. The truth of the matter is, that as much as I want to solve all the problems for my fellow cancer patients and survivors, I cannot do it alone. The Steven G AYA Cancer Research Fund (SGAYA) is a small organization and we can’t continue this fight without your support.

Since being re-diagnosed in September I have lost three very close friends to cancer. This fight to ensure the health of our young people must become our number one priority. No matter what becomes of me in the following years, I hope that this wonderful community can continue to step up. You have already helped so much but now I must ask you to give more. Not just monetarily but physically. This is a fight that must be waged at every level of society. If we are unwilling to secure the well-being of our young people that we have failed as a society.

The measure of one’s society is not by looking at how well we can care for ourselves but rather, how well we care for those people who are the most vulnerable. My greatest fear isn’t dying, it is dying without making a difference in the lives of those who need my help the most.

We will not be having the annual fundraiser this year. We ask for your continued support in helping those like myself dealing with cancer.

To donate to the Steven G AYA Cancer Research Fund visit https://give.classy.org/SGAYA2020.

I love you all so much. SGAYA would not be what it is today without your generous support. I wish you all a wonderful New Year filled with happy and heartwarming moments.

Your Friend Always,
Steven Giallourakis

Critical Mass Research Poster Awardees

Each year Critical Mass:YA Cancer Alliance, holds an important conference bringing together stakeholders in the field of YA Cancer. Researchers, doctors, nurses, non-profit administrators, survivors and caregivers come together to learn from each other. This year the conference was held in Chicago.

As a Critical Mass partner, and strong advocate for YA Cancer Research, our foundation annually awards researchers in two categories: Innovative Research and Clinical Trials and Innovative Programs and Services. The top three research posters are selected within each category and given a cash award.

We strongly believe that good research is an important step towards finding the best way to cure and treat cancer. FIGHT CONQUER CURE!!

Below are the names of the individuals awarded at the Critical Mass Conference 2015.

Innovative Research                                    Innovative Programs

First Place $500        DEBORAH MOROSINI,MD                       MEGAN BIANCHETTI, MSW

Second Place $300    THERESA KEEGAN, PH.D                         KATHLEEN VILLA, PH.D

Third Place $150        JEANNE ERICKSON, PH.D                       MARIA CABLE, RN

IMG_5671

MARIA CABLE RN Title: “Just In Case”: the Fertility information needs of teenagers and young adults with cancer.

 

IMG_5673

MEGAN BIANCHETTI, MSW Title: Distress in AYAs with Cancer: Components and Covariates

 

IMG_5674

THERESA KEEGAN, PH.D Title: Sociodemographic disparities in survival for adolescents and young adults with cancer differ by health insurance status: a population based-study in California, 2001-2011

 

IMG_5676

JAMES L. BAKER PHARM.D (for Kathleen Villa) Title: A Modeling Analysis of the Risks and Benefits of a Pediatric-Inspired Protocol Compared with a Hyper-CVAD Protocol in the Treatment of Adolescents and Young Adults with Philadelphia-Negative Acute Lymphoblastic Leukemia

IMG_5672

Jeanne Erickson, Ph.D. Title: The Pain Experience of Hospitalized Young Adults with Cancer

IMG_5675

MARK BAILEY PH.D. AND VINCENT MILLER MD (for Deborah Morosini) Title: Comprehensive genomic profiling of sarcomas from 203 adolescents and young adults reveals a distinct spectrum of targetable genomic alterations.

IMG_5651

PAT TAYLOR: Advocate, Parent, and Friend Organization: 3 LITTLE BIRDS 4 LIFE

IMG_5655

CHRISTABEL CHEUNG, MSW: Researcher and Survivor and new friend:) AND HER THERAPY DOG CALVIN.

IMG_5654

HERNAN BARANGAN: Movie Producer, Artist and Survivor (Check out his work on YouTube) Organization: TEEN CANCER AMERICA

EMILY’S RAINBOW RUN and Family Walk – April 19th

YOU ARE INVITED

TO

EMILY’S RAINBOW RUN and Family Walk

In honor of the Memory of our friend Emily Lewis 

The event will take place

Sunday, April 19th, 2015

Westlake High School

Westlake, Ohio 44145

4 MILE TIME RACE starts at 8 am

2 MILE RUN/WALK starts at 8:05 am

Kids Run starts approximately at 9:15 am

To register and for more information visit:

www.emilysrainbowfund.org

or

info@emilysrainbowfund.org

or download this flyer and registration form 2015_ERR_Registration

EmilyPhoto Emily8

New Cancer Publication Supported by SGAYA Cancer Fund

WE ARE PLEASED TO ANNOUNCE THAT RESEARCHERS IN HUANG LAB AT THE CASE MEDICAL SCHOOL HAVE PUBLISHED AN ARTICLE

TITLED

“FOCAL TRANSIENT CNS VESSEL LEAK PROVIDES A TISSUE NICHE FOR SEQUENTIAL IMMUNE CELL ACCUMULATION DURING THE ASYMPTOMATIC PHASE OF EAE INDUCTION.”

Purgert

Robert Purgert

Dr. Askew

Dr. David Askew

Two of our Scholarship recipients, Dr. David Askew and Robert Purgert, assisted in the research study and article development.

According to Dr. Alex Huang results of the study help researchers better understand…

1) how immune cells cross the blood-brain barrier during the development of autoimmune diseases such as multiple sclerosis can be a knowledge base for improving anti-tumor immune cells to cross the same blood brain barrier when used to fight cancers in the brain.
And,
2) how immune cells (lymphocytes such as T cells and B cells) cross the blood brain barrier will also help us understand and prevent leukemia cells crossing the blood brain barrier from the blood to CNS metastasis.
And, of course, there is always the curiosity of how things actually work in this wonderful body that God gives to each of us!

Below please find the Bibliography details and the link ( Barkauskas Exp Neurol 2015 ) to the article.

Article title: Focal transient CNS vessel leak provides a tissue niche for sequential immune cell accumulation during the asymptomatic phase of EAE induction
Reference: YEXNR11938
Journal title: Experimental Neurology
Corresponding author: Dr. Alex Yee-Chen Huang
First author: Dr. Deborah S. Barkauskas
Final version published online: 28-FEB-2015
Full bibliographic details: Experimental Neurology  (2015), pp. 74-85
DOI information: 10.1016/j.expneurol.2015.02.018

 

fight conquer cure

Breast Cancer Research Fundraiser

breast cancerDid you know that Breast Cancer affects Young Adult Women? 

Did you know that Breast Cancer in Young Adult Women tends to more aggressive that in any other age group?

Did you know that there are more Young Adult Women being diagnosed with Breast Cancer than at another time in our history?

If you find these issues appalling, please consider supporting an important Fundraiser Event.

BREAST CANCER VACCINE RESEARCH FUNDRAISER

SPONSORED BY THE

DAUGHTERS OF PENELOPE 

ARE

HOSTING A FASHION SHOW AND LUNCHEON*

ON

MARCH 28TH, 2014

NOON

TICKETS: $35 (half is tax deductible)

Fashions by CaBi Clothing

Jewelry by Sabika

Makeup by Fields and Rodan

For more information and to purchase your ticket place telephone:

440-835-1913

*Event will take place at the

St. Demetrios Cultural Center

22909 Center Ridge Road

Rocky River, Ohio 44116

(please do not delay in making your reservation as seating is limited)

Attached please find the flyer:

flyer march 28

Cleveland: what a great place!

Hi folks,

As I sit here watching Neptune dump another 6 inches of snow, I remember a time when Steve was in the hospital during a mega February snow storm. Harry was supposed to stay the night and I was going home…however, the weather was so incredibly awful, I just decided to remain safe in Steve’s hospital room.  Harry and I shared a single bed next to Steven… It was a good decision as the weather was wicked!

Safety in the hospital…staying over night in the hospital…common phrases we hear everyday when we are impacted by a serious illness or a planned or unplanned surgery.

We are fortunate to have that “safe place” here in Cleveland.  We our blessed to have University Hospitals and the Cleveland Clinic.  It’s nice to be able to choose based on one’s needs.

Interestingly folks outside of Cleveland, particularly our friends on the East and West Coasts…aren’t aware of the medical facilities available to us Clevelanders’. I recall attending a conference where out of towners’ were AMAZED at the medical facilities and AYA CANCER SERVICES  …here in Cleveland…Wow!

So this is my plug for my hometown.

And also to say…thanks.

Last but not least…we continue to deliver BE CALM STAY STRONG PACKAGES for YA Cancer Patients. Feel free to email me at angie@fightconquercure.com to learn how you can support this important service.

Below you will see a photo of Erin Gibson, Pediatric Oncology Social Worker at the Cleveland Clinic’s Children’s Hospital, and me…with ten BE CALM STAY STRONG PACKAGES  for Ya Cancer patients and two bags of apples and two bags of oranges for their Ronald MacDonald Family Room. Anyone who has had an extended stay in a children’s hospital has likely visited the Ronald MacDonald Family Room….a great refuge.

 

clevel clinic photo

Stuart Scott

 

 

I must confess that I am not an avid sports enthusiast. However when I learned of the passing of Stuart Scott I immediately wanted to share some thoughts.

espn_e_sscott_203x114Stuart’s war against cancer represents that battle so many of our young people fight each day. Stuart was diagnosed at the age of 41 years… which in case you didn’t already notice…is pretty young. His passing reminded me of why we do what we do..that is to help others fight the cancer war through supporting AYA CANCER RESEARCH and creating AWARENESS that CANCER is a disease that crosses all ages, social and ethnic groups…and needs to be stopped!

Good people die from cancer every day. Don’t you think it is time for us to find a CURE?

In closing I would like to share a quote from Stuart Scott:

“When you die, it does not mean that you lose to cancer.

You beat cancer by how you live,

why you live,

and in the manner in which you live.”

Have a Wonderful Holiday!

The Steven G AYA Cancer Research Fund would like to wish our supporters a wonderful Holiday Season. Take time to give thanks for all that is good in the world. Hug your family and show them you care.

Peace on Earth and Good Will Towards All Men and Women!

Christmas-Candle-and-Rose

SEE YOU IN 2015!

SAVE THE DATE: IT’S TIME TO TAKE A BITE OUT OF AYA CANCER!!!

HELLO EVERYONE, 

WE HOPE YOU WILL BE ABLE TO JOIN US ON

SATURDAY, JANUARY 24TH, 2015.

YOUR $40 TICKET

WILL BUY YOU AN EVENING OF

LIVE MUSIC, RAFFLES, SILENT AUCTIONS,

DINNER WITH WINE/BEER/SODA,

COFFEE AND GREEK DESSERTS,

AND AN OPPORTUNITY TO LEARN HOW TO DANCE GREEK!!!

GUEST SPEAKER WILL BE ROBERT PURGERT

(FORMER CANCER WARRIOR AND FUTURE PEDIATRIC ONCOLOGIST)

SO HELP US..

-SUPPORT OUR NEW WELLNESS PROGRAM-

 -SPA PACKAGES FOR YOUNG ADULT CANCER PATIENTS-

-AYA CANCER RESEARCH FELLOWSHIPS-

fundraiserflyer2014-2015-SOCIAL SUPPORT FOR AYA CANCER WARRIORS-

SO…

WE HATE CANCER – BUT WE LOVE YOU!

 

FOR MORE INFORMATION PLEASE CONTACT ANGIE:

ANGIE@FIGHTCONQUERCURE.COM

TO PURCHASE YOUR TICKETS ONLINE

VISIT OUR WEBSITE 

WWW.FIGHTCONQUERCURE.ORG

2014 Adolescent and Young Adult Cancer Symposium

website-logo

 

 

PLEASE JOIN US!!!

SAVE THE DATE!!

OCTOBER 30-31, 2014

IRIS S. & BERT L. WOLSTEIN RESEARCH BUILDING

2103 CORNELL ROAD

CLEVELAND, OHIO 44106

 

The symposium is sponsored by the Angie Fowler Adolescent and Young Adult Cancer Institute at University Hospitals Rainbow Babies & Children’s Hospital, UH Seidman Cancer, Case Comprehensive Cancer Center, and the Oregon Health & Science University Knight Cancer Institute.

(REGISTRATION FORM aya symposium 2014)

The focus of this two-day symposium is advancing AYA-related research, increasing federal funding, and exploration of scientific, clinical and psychological considerations in the AYA population.

KEY NOTE SPEAKER:

Clifton Leaf, Deputy Manager Editor, Fortune Magazine and Author, The Truth In Small Doses – Why We’re Losing the War on Cancer – and How to Win It.

FOR MORE INFORMATION PLEASE CONTACT: AYASYM2014@UHHOSPITALS.ORG