Social Support

HELP OUR Be Calm & Stay Strong Wellness Gift Bags

Hello folks –

We need your help. Due the popularity of our Wellness Gift Bags to AYA Cancer Patients – our funds are gone – we are now dipping into our research and education funds in order to bring hope and peace to newly diagnosed cancer patients.

If you donate $125 or more your name will be mentioned as the Wellness Bag donor! Don’t have that kind of money? Well get a group of friends together and make it happen. All you need to do is include the group members names in your message to me.

Remember – no gift is too small. Every dollar helps!!

We humbly thank you for your generosity.

And – here is the GoFundMe Link: https://www.gofundme.com/aya-cancer-patient-wellness-bags

Sincerely,

Angie

PS – PLEASE CONTACT ME IF YOU need more information about the BE CALM & STAY STRONG WELLNESS PROGRAM?

 

YA CANCER SURVIVORS SHARE THEIR THOUGHTS & A BIG THANK YOU

We thought it would be nice to hear from some of the individuals we supported this year. In April a group of NE Ohio YA Cancer Survivors received scholarships to attend CancerCon (a conference dedicated to providing social support to YA Cancer Warriors).

Note: You will see photos of survivors, caregivers, family and friends – but Foundation Funding was strictly used for the six NE Ohioans: Tess Blasko, Jennifer Anand, Margaux Yerian, Samantha Krizo, Christopher Evans, and Peter Citro.

Here are some comments and reflections on cancer, CancerCon, and the Steven G Foundation.

 

“Dear Steven G Foundation,

On a daily basis, I’m reminded of the “bad” things cancer has done- from being on insulin, to aches and pains, to the various medications- sometimes it can be really tough. But then comes Cancer Con.  This weekend is about celebrating cancer. As weird as it sounds, that is your golden ticket into this exclusive conference.  We are celebrating the monster that brought us together.  From all over the United States and Canada, with a few other friends thrown in. For a few days, we get to be pampered by the makeover artists, get a chair massage, score some free swag from exhibitors, and dance the night away,  We get to forget our reality at home.  We get to not have to explain our tiredness, or our diets or our hair. We get not to have to explain our billion bathroom breaks. We get not to have to explain our weird cravings or sudden dizziness. That’s what this is about.  People who get it, without saying a word.  People who get the 3am moments alone, or the strained friendships, or the self-doubt and self-judgement. We are surviving, and thriving, and out living it.

Every year, this conference is what gives me the renewed strength, hope, and comfort to continue for another year.  It refreshes my soul, and lifts my spirits.  I leave with new friends, and a renewed sense of togetherness and hope for a brighter future that is cancer free.  Thank you so much for enabling me to go to this amazing conference. ”

Sincerely, Jennifer Anand

Dear Steven G Foundation,

“To start this off I just want to express how amazing this foundation is and how it has helped me in ways I didn’t think were possible. Through the Steven G foundation I got an opportunity to attend CancerCon 2018 in Denver, Colorado. When I first heard about CancerCon I was going through treatments in 2017 and it instantly caught my interest.  I just imagined being surrounded by so many different people who understood everything I was going through and I knew I had to go. When I arrived at CancerCon it felt like I was finally able to breath. I wasn’t constantly trapped in my mind thinking about my emotions and the trauma that I have just endured. I wasn’t self conscious about my hair being short and I wasn’t uncomfortable to show my scars. I was at this busy convention completely myself in a room full of strangers but there was a sense of calm when I looked around because we were all just connected and comfortable with each other. Cancer is so ugly in a lot of the things it brings. The side effects from the medicines, the losses, the emotional damage, and it changes your questions of life. The one thing is not ugly from cancer is the people that that this disease brought into my life. They have impacted me in a way that is indescribable. Being able to meet more amazing people at CancerCon and hearing all the different stories just jump started my new view on life and pushed me to better myself in every way possible. I didn’t fully understand how much I needed the weekend in Denver until I arrived. Not only was the whole convention amazing, I was able to explore Denver and I fell in love! It’s such a beautiful place and . I am so excited to let the relationships that I made with people grow and I cannot wait until CancerCon 2019! I defiantly would like to return again

Again thank you so much for everything this foundation has done for me. You truly helped changed a part of my life and I will forever be grateful for that!”

-Tess Blasko

 

“If there is anything that I can do to help your foundation in anyway I would love to help you guys out as much as you helped me.”

Samantha Krizo

We love our Caregivers!

fight. conquer. cure.

 

 

AYA? What does THAT mean?

AYA?


YOU MAY BE WONDERING WHY ON EARTH I AM ASKING SUCH A QUESTION.

WHAT IS AYA?

IS THE WORD PRONOUNCED “AHYA”? …NOPE.

AYA MEANS FOR ADOLESCENT AND YOUNG ADULT. 

AYA REPRESENTS A POPULATION OF INDIVIDUALS FROM 15 YRS TO 40 YRS OLD.

AYA CANCER REPRESENTS A POPULATION OF INDIVIDUALS STRICKEN WITH A TYPE OF CANCER THAT IS OFTEN VERY AGGRESSIVE, LIFE THREATENING AND LIFE ALTERING.

AYA CANCER REPRESENTS 70,000 YOUNG PEOPLE THAT ARE DIAGNOSED EVERY YEAR HERE IN THE USA! 

AYA CANCER OFTEN MEANS THAT THESE YOUNG PEOPLE GET THE RAREST CANCERS AND THE MOST DIFFICULT TO TREAT AND CURE.

AYA CANCER SURVIVORS OFTEN ARE AFFLICTED WITH SECONDARY EFFECTS THAT WILL ALTER THE COURSE OF THEIR LIFE AND PRODUCTIVITY IN OUR SOCIETY.

WHAT CAN YOU DO ABOUT IT?

HELP US GET THE WORD OUT!

SUPPORT OUR FOUNDATION!

AS WE REACH OUT INTO THE COMMUNITY

AND HELP OUR YOUNG WARRIORS THROUGH

EDUCATION, ADVOCACY AND RESEARCH!

-REMEMBER-

WE WILL NOT REST UNTIL THERE IS A CURE!

FIGHT!

CONQUER!

CURE!!!

 

PS.

THIS WEEK IS AYA CANCER AWARENESS WEEK.

#FIGHTCONQUERCURE

 

Giving Thanks

It’s hard to believe that November is around the corner. And, like many of you, our family will join together to give thanks for all that is good in the world.

Faith, Family, Friends.

So much to be thankful for.

Please allow me to wish you a Happy Thanksgiving.

May you be blessed with love and peace.

“May You Live This Day

Compassionate of Heart,

Clear in Word,

Gracious in Awareness,

Courageous in Thought,

Generous in Love.”

From the poem “Matins” By John O’Donohue (2008)

 

 

 

 

 

A Slippery Slope Indeed – Reflections on Survivorship

A Slippery Slope Indeed

by Dan Dean

 

Dan & Amelia

At this year’s CancerCon in April—a national cancer conference for adolescents andyoung adults—I co-presented with Amelia Baffa and Dr. Jennifer Giesel a talk on the mental health challenges many cancer patients and survivors experience and the ways to treat them—TheSlippery Slope of Survivorship. Both Ameila and Jenn support the adolescent and young adult cancer population at University Hospitals with psychosocial care. Our presentation reminded me of a time early in my survivorship experience, two or three months after treatment ended in 2003.Several well-meaning friends suggested I see a therapist to help make sense of this intense, life-altering experience. In my family, therapy wasn’t necessarily stigmatized, but no one in my family used it before either, aside maybe from consulting our family priest. And so I didn’t really consider it as a tool, unless things got really bad.
I ended up working through all of challenges in survivorship without any kind of professional help. I read tons of books, tried different approaches to living in my new normal, and consulted with close friends and family about how to make sense of things. I did a lot of the heavy lifting in the three years after treatment ended and largely came out okay. But I was fortunate in that my biggest supporters—my mom and brother (and dog Lady)—did as much as they could to support my study in self-care and recovery. Close friends augmented their support and I leaned heavily upon them to get through.
Looking back, I realize that without them, I could have developed depression or PTSD or any number of ailments of the mind. Back then, I didn’t know the terms and what they meant, but I can see how my support systems’ unwavering commitment to my recovery more or less kept me on track and clear of more serious issues.
Not everyone is as lucky as I was. What I learned from Amelia and Jenn is how professional therapy, the way an individual processes cancer, and a support system all work together; my recovery leaned toward the latter two. For other people, that metric can be different; some many not have access to a professional or a support system, left on their own to figure things out.
Now that I am 14 years out from my cancer experience, I recommend the value of professional psychosocial support, even though my path was more solitary and self-guided. There are plenty of opportunities to take the baton a therapist hands off to you and wrestle with those challenges on your own.
The two therapies I wished I had that could have sped along parts of my recovery were 1) diaphragmic breathing and 2) using a thought log. Diaphragmic breathing is a great deep breathing technique that slows the mind down and calms a person’s physiology so they can actually do therapeutic work. Thought logs are a step-by-step way to break down recurrent, unhelpful thought patterns by challenging the assumptions behind them. They’re helpful not just for cancer patients, but anyone dealing with day-to-day life stress. (to download both tools, visit www.m-powerment.org/cancercon)
There’s no exact method a person can use to find their way from the end of treatment and into their new normal. The keys, in my opinion, to make it through are keeping on the path toward the new normal—even though it may take you down many side streets you don’t necessarily want to settle on—and not going at it alone.
I certainly tried many approaches and there were some I discarded early on and others that have stayed with me well beyond those initial weeks and months into survivorship. But as I engaged in an extended time of trial and error with all of those therapies, it was the constant support of my family and close friends that kept me on the path and into the life I enjoy today.

 

Dan Dean is a 13-year survivor of stage IV non-Hodgkin’s lymphoma. Recognizing that few resources exist geared specifically toward men affected by cancer, Dan founded M Powerment to bring men of all ages together to lead amazing, impactful lives after a cancer diagnosis. A lifelong Cleveland sports fan, Dan also plays basketball, kayaks, hikes, and likes to go trail running.

Dan is also a SGAYA Board Member.

The website for the therapies presented at CancerCon 2017 is www.m-powerment.org/cancercon

Dan’s professional sites: www.dan-dean.com and www.m-powerment.org

Lou G., Pat T., & Angie

NE Ohio Cancer Warriors and Friends

Here are some photos from this year’s #CANCERCON 2017 event. Many thanks to our donors who support the Steven G AYA Cancer Research Fund. This year you sent six cancer survivors to Stupid Cancer’s CANCERCON conference in Denver! FIGHT! CONQUER!! CURE!!!

Alex & Jennifer A.

Bryan, Kim & Steven

Amelia, Angie, & Jennifer

CANCERCON 2016 – BY DAN DEAN

CancerCon is a set of two paradoxes:

the conference operates likes a living,

breathing pair of theater masks

and you talk more than normal,

but need fewer words to do so.

If you’re not familiar with it, CancerCon is a three-day cancer jam held in Denver, bringing together over 600 adolescent and young adult (AYA) fighters and survivors from around the country to attend seminars and network with those who share their same diagnosis. The hallways, breakout rooms and lobby buzz with the sounds of old friends catching up and new ones forming bonds that circumvent time and geography.

At times, the conference can feel overwhelming: connections are being made and rekindled, helpful information and stories are swapped between patients and survivors, attendees are dealing with aspects of their recovery for the first time, while also finding the community and resources to continue their healing. Emotions run high and deep.

Through every encounter, whether shared in joy or sadness, is a sense of relief. For the first time, many patients and survivors don’t have to give their 15-minute cancer back story. There’s not the urge or need to explain their journey that people on the outside don’t quite understand. Over time, cancer fighters and survivors become practiced storytellers, explaining gaps in employment and dating and taking outsiders on a CliffsNotes tour of their treatment and recovery.

In that sense, AYAs can feel alone, separated from their peer group and friends at home. When social dynamics change so starkly into the ascension of adulthood, throwing a cancer diagnosis in the mix can feel isolating and confusing. The same challenges that cause a person to feel alienated in one circle are embraced and accepted at CancerCon. No longer is the cancer preamble needed.

Instead, patients and survivors jump into deep conversations right away, much in the same way two old friends catch up instantaneously. About midway through a conversation you realize how amazing it is to form a bond with someone you met only 20 minutes ago who lives seven states away.

There’s no way to neatly encapsulate the range of emotions at CancerCon. It’s unique to both laugh and cry about the same experience. When you say the three words, “I had cancer,” everyone gets you. And those things are worth the trip to Denver.

Dan Dean

May 25th, 2016

Dan is an actor, writer, advocate, survivor and we are lucky to have him as a board member.

You can check out his blog at: http://www.cancer-youngadult.org

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LET’S SAVE A LIFE – BMT DRIVE APRIL 17TH

Hello friends,

Most of you are familiar with Steve’s journey through cancer and the fact that he had a LIFE SAVING BONE MARROW TRANSPLANT. And many of you did register with the Be The Match Foundation in hopes of helping Steven.

BUT SOME OF YOU DIDN’T….PROBABLY BECAUSE YOU WERE TOO YOUNG or too busy…

SO IF YOU ARE 18 – 44 YEARS OLD… HERE IS YOUR CHANCE TO SAVE A LIFE!!!

Our friend Joanne Filina was first diagnosed at 35 years old with Leukemia. She went into remission but it came back a second time. She is in remission again. BUT her doctors are telling her that it might come back again…and soon.

PRETTY FRIGHTENING DON’T YOU THINK?

So here is your chance to help her and others like Joanne.

JOIN THE REGISTRY.

IF YOU ARE A MATCH YOU WILL BE NOTIFIED BY TELEPHONE.

IF YOU ARE CONTACTED…PLEASE SAY YES TO BEING FURTHER TESTED.

AND THEN IF YOU ARE STILL A MATCH YOU JUST MIGHT GET THE CHANCE TO SAVE A LIFE.

YOU WILL BE INCONVENIENCED FOR A COUPLE OF DAYS. AND THAT’S IT!!!

IF YOU NEED MORE CONVINCING TO HELP OUT…THEN HERE IS A QUOTE FROM STEVEN’S DONOR:

“I am honored to have an opportunity to help save a life. When I was first notified that I was a match I didn’t tell anyone until it was confirmed I am a match for someone in need. 

So I mentioned it to my wife…she didn’t hesitate for a moment. I am a parent just like you with three boys… and I couldn’t imagine someone turning down a boy with a full life in front of him….Please know this, you, your husband and your son Steven do not owe me a single thing no even a debt of gratitude, what I did was for myself, and the act in itself was self gratifying. I think you all are great people, and if anything, it is I who owes you and not the other way around. Please keep doing what you are doing in helping other cancer patients and may God help and Bless you. 

With warm regards,  A…..” [Note from Angie: I am maintaining our donor’s anonymity because I did not ask him if I could share this message on the website.]

SO JOIN US 

SUNDAY, APRIL 17TH, 2016 – NOON – 4:00 PM

ST. DEMETRIOS CULTURAL CENTER – FELLOWSHIP ROOM

22909 CENTER RIDGE ROAD

ROCKY RIVER, OHIO 44116

THERE WILL BE A RAFFLE TO RAISE FUNDS FOR “BE THE MATCH”

REFRESHMENTS WILL ALSO BE AVAILABLE.

QUESTIONS:

CONTACT ANGIE: Angie@fightconquercure.com

OR TONYA DAVIS

tdavis2@nmdp.org

for more information

or to make a donation visit:

http:www.bethematchfoundation.org/goto/jojofilina

or to download more information

Joanne Filina Event Flier (1)2016 FAQ and Responses

 

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ARE YOU COMING? WE NEED YOUR SUPPORT!

Hello Friends,

It is not in my nature to be bossy (ha) or demanding (double ha) but we are getting down to the wire. Our annual fundraiser TAKE A BITE OUT OF CANCER – will take place in  TWO WEEKS!!!

Uncle_Sam_(pointing_finger)

Please remember that your donations go directly to support local PAYA (pediatric, adolescent and young adult) cancer research at Case Medical School’s Huang PAYA Cancer Research Lab (www.huanglab.com),  and adolescent and young adult cancer patients and families right here is NE Ohio!!!

This year we distributed over 40 Wellness bags (which cost approximately $150 each) to YA Cancer Patients while in Treatment

We supplied fresh fruit and yogurt for Smoothie Day (bi-weekly) for young cancer patients while in treatment.

We supplied products for “BEAUTY DAY” which uplifted the morale of moms and patients by providing make-up and beauty hints, hand massages and manicures (I never thought massaging another’s hands could be so gratifying.)

We sent four young adult patients  from NE Ohio to CANCER CON 2015  in Colorado.

Also, just last week we sent a $250 check to support a dad and young son with cancer to the Annie Appleseed Project Conference. Annie Appleseed focuses on wellness through Integrative Oncology methods. You can visit their website at www.annieappleseedproject.org.

PLEASE HELP US WITH OUR MISSION

WE WILL NOT REST UNTIL THERE IS A CURE!!!

FIGHT! CONQUER! CURE!!!

take a BITE OUT OF CANCER!!

Saturday, January 23rd, 2016

event-logo (1)7 – 11 pm

23023 Center Ridge Road

Rocky River, Ohio 44116

Cost: $40

Can’t attend?

Well, feel free to make a cash donation or donate an auction item. Email me at info@fightconquercure.com for more info:)

Wishing you a Joyous Holiday With Family and Friends

Dear Family and Friends

YOU ARE VERY IMPORTANT!!! WITHOUT YOU WE WOULDN’T EXIST!!!

Through your support the Steven G AYA Cancer Research Fund has reached out and served the pediatric, adolescent and young adult (PAYA) cancer community. We have funded clinicians and researchers in medicine and the social sciences to find better ways to treat and serve PAYA Cancer Patients and Survivors. 

Your financial support sent YA cancer patients to the uplifting and empowering annual Stupid Cancer Conference where young adults interact and learn what it means to be a cancer survivor between the ages of 21-39 years.

Our Wellness Packages have been a hit at Rainbow Babies and Children Hospital, Seidman Cancer Hospital and the Cleveland Clinic. Each newly diagnosed AYA Cancer Patient receives a large canvas bag of materials that encourage and support positive mental and physical health behaviors. Let’s face it these young people need as much support and encouragement as possible!

Our foundation is small but mighty!

THANKS TO YOU!!

We wish you and your families a Merry Christmas, Happy Hanukkah, Joyous Kwanzaa, and a Blessed New Year.Christmas-Candle-and-Rose

Looking forward to seeing you on January 23rd, 2016.

God Bless.

Angie and Harry

Critical Mass Research Poster Awardees

Each year Critical Mass:YA Cancer Alliance, holds an important conference bringing together stakeholders in the field of YA Cancer. Researchers, doctors, nurses, non-profit administrators, survivors and caregivers come together to learn from each other. This year the conference was held in Chicago.

As a Critical Mass partner, and strong advocate for YA Cancer Research, our foundation annually awards researchers in two categories: Innovative Research and Clinical Trials and Innovative Programs and Services. The top three research posters are selected within each category and given a cash award.

We strongly believe that good research is an important step towards finding the best way to cure and treat cancer. FIGHT CONQUER CURE!!

Below are the names of the individuals awarded at the Critical Mass Conference 2015.

Innovative Research                                    Innovative Programs

First Place $500        DEBORAH MOROSINI,MD                       MEGAN BIANCHETTI, MSW

Second Place $300    THERESA KEEGAN, PH.D                         KATHLEEN VILLA, PH.D

Third Place $150        JEANNE ERICKSON, PH.D                       MARIA CABLE, RN

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MARIA CABLE RN Title: “Just In Case”: the Fertility information needs of teenagers and young adults with cancer.

 

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MEGAN BIANCHETTI, MSW Title: Distress in AYAs with Cancer: Components and Covariates

 

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THERESA KEEGAN, PH.D Title: Sociodemographic disparities in survival for adolescents and young adults with cancer differ by health insurance status: a population based-study in California, 2001-2011

 

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JAMES L. BAKER PHARM.D (for Kathleen Villa) Title: A Modeling Analysis of the Risks and Benefits of a Pediatric-Inspired Protocol Compared with a Hyper-CVAD Protocol in the Treatment of Adolescents and Young Adults with Philadelphia-Negative Acute Lymphoblastic Leukemia

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Jeanne Erickson, Ph.D. Title: The Pain Experience of Hospitalized Young Adults with Cancer

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MARK BAILEY PH.D. AND VINCENT MILLER MD (for Deborah Morosini) Title: Comprehensive genomic profiling of sarcomas from 203 adolescents and young adults reveals a distinct spectrum of targetable genomic alterations.

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PAT TAYLOR: Advocate, Parent, and Friend Organization: 3 LITTLE BIRDS 4 LIFE

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CHRISTABEL CHEUNG, MSW: Researcher and Survivor and new friend:) AND HER THERAPY DOG CALVIN.

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HERNAN BARANGAN: Movie Producer, Artist and Survivor (Check out his work on YouTube) Organization: TEEN CANCER AMERICA