St. Demetrios Cultural Center
22909 Center Ridge Road
Rocky River, Ohio 44116
TICKETS ARE $45
TO PURCHASE TICKETS OR MAKE A DONATION
and food and beverages, music, raffles, auctions, fun!
ALL PROCEEDS GO TO OUR
RESEARCH, PATIENT EDUCATION, SOCIAL SUPPORT AND WELLNESS PROGRAMS.
YOU MAY BE WONDERING WHY ON EARTH I AM ASKING SUCH A QUESTION.
WHAT IS AYA?
IS THE WORD PRONOUNCED “AHYA”? …NOPE.
AYA MEANS FOR ADOLESCENT AND YOUNG ADULT.
AYA REPRESENTS A POPULATION OF INDIVIDUALS FROM 15 YRS TO 40 YRS OLD.
AYA CANCER REPRESENTS A POPULATION OF INDIVIDUALS STRICKEN WITH A TYPE OF CANCER THAT IS OFTEN VERY AGGRESSIVE, LIFE THREATENING AND LIFE ALTERING.
AYA CANCER REPRESENTS 70,000 YOUNG PEOPLE THAT ARE DIAGNOSED EVERY YEAR HERE IN THE USA!
AYA CANCER OFTEN MEANS THAT THESE YOUNG PEOPLE GET THE RAREST CANCERS AND THE MOST DIFFICULT TO TREAT AND CURE.
AYA CANCER SURVIVORS OFTEN ARE AFFLICTED WITH SECONDARY EFFECTS THAT WILL ALTER THE COURSE OF THEIR LIFE AND PRODUCTIVITY IN OUR SOCIETY.
WHAT CAN YOU DO ABOUT IT?
HELP US GET THE WORD OUT!
SUPPORT OUR FOUNDATION!
AS WE REACH OUT INTO THE COMMUNITY
AND HELP OUR YOUNG WARRIORS THROUGH
EDUCATION, ADVOCACY AND RESEARCH!
It’s hard to believe that November is around the corner. And, like many of you, our family will join together to give thanks for all that is good in the world.
Faith, Family, Friends.
So much to be thankful for.
Please allow me to wish you a Happy Thanksgiving.
May you be blessed with love and peace.
“May You Live This Day
Compassionate of Heart,
Clear in Word,
Gracious in Awareness,
Courageous in Thought,
Generous in Love.”
From the poem “Matins” By John O’Donohue (2008)
Dan Dean is a 13-year survivor of stage IV non-Hodgkin’s lymphoma. Recognizing that few resources exist geared specifically toward men affected by cancer, Dan founded M Powerment to bring men of all ages together to lead amazing, impactful lives after a cancer diagnosis. A lifelong Cleveland sports fan, Dan also plays basketball, kayaks, hikes, and likes to go trail running.
Dan is also a SGAYA Board Member.
The website for the therapies presented at CancerCon 2017 is www.m-powerment.org/cancercon
Here are some photos from this year’s #CANCERCON 2017 event. Many thanks to our donors who support the Steven G AYA Cancer Research Fund. This year you sent six cancer survivors to Stupid Cancer’s CANCERCON conference in Denver! FIGHT! CONQUER!! CURE!!!
WE WILL NOT REST UNTIL THERE IS A CURE
FIGHT CONQUER CURE!!!
“From Bench to Bedside and Beyond:
Uniting the childhood cancer community
in a collaborative forum to advance research for childhood cancers”
Cold Spring Harbor Laboratory, Long Island, NY
October 30 – November 2, 2016
FIGHT! CONQUER! CURE!!!
JOIN US ON THURSDAY, SEPTEMBER 29TH, 2016
5 PM TO 8 PM
TALBOTS WOMEN’S CLOTHIERS
140 MAIN STREET
WESTLAKE, OHIO 44145
If you’re not familiar with it, CancerCon is a three-day cancer jam held in Denver, bringing together over 600 adolescent and young adult (AYA) fighters and survivors from around the country to attend seminars and network with those who share their same diagnosis. The hallways, breakout rooms and lobby buzz with the sounds of old friends catching up and new ones forming bonds that circumvent time and geography.
At times, the conference can feel overwhelming: connections are being made and rekindled, helpful information and stories are swapped between patients and survivors, attendees are dealing with aspects of their recovery for the first time, while also finding the community and resources to continue their healing. Emotions run high and deep.
Through every encounter, whether shared in joy or sadness, is a sense of relief. For the first time, many patients and survivors don’t have to give their 15-minute cancer back story. There’s not the urge or need to explain their journey that people on the outside don’t quite understand. Over time, cancer fighters and survivors become practiced storytellers, explaining gaps in employment and dating and taking outsiders on a CliffsNotes tour of their treatment and recovery.
In that sense, AYAs can feel alone, separated from their peer group and friends at home. When social dynamics change so starkly into the ascension of adulthood, throwing a cancer diagnosis in the mix can feel isolating and confusing. The same challenges that cause a person to feel alienated in one circle are embraced and accepted at CancerCon. No longer is the cancer preamble needed.
Instead, patients and survivors jump into deep conversations right away, much in the same way two old friends catch up instantaneously. About midway through a conversation you realize how amazing it is to form a bond with someone you met only 20 minutes ago who lives seven states away.
There’s no way to neatly encapsulate the range of emotions at CancerCon. It’s unique to both laugh and cry about the same experience. When you say the three words, “I had cancer,” everyone gets you. And those things are worth the trip to Denver.
May 25th, 2016
Dan is an actor, writer, advocate, survivor and we are lucky to have him as a board member.
You can check out his blog at: http://www.cancer-youngadult.org