info@fightconquercure.com

Category: legislation

Washington DC = WOW! The Raulerson’s Advocate For Childhood Cancer

Meet the Raulerson’s! Thanks to our donors Micheal, Tammy and Tacey were able to attend the Alliance for Childhood Cancer’s Advocacy Day this past April! It is people like the Raulerson’s who continue to share the responsibility of making sure our legislators know about the serious impact childhood cancer has on youngsters and their families.…
Read more

AYA? What does THAT mean?

AYA? YOU MAY BE WONDERING WHY ON EARTH I AM ASKING SUCH A QUESTION. WHAT IS AYA? IS THE WORD PRONOUNCED “AHYA”? …NOPE. AYA MEANS FOR ADOLESCENT AND YOUNG ADULT.  AYA REPRESENTS A POPULATION OF INDIVIDUALS FROM 15 YRS TO 40 YRS OLD. AYA CANCER REPRESENTS A POPULATION OF INDIVIDUALS STRICKEN WITH A TYPE OF…
Read more

GO FOR THE GOLD – CHILDHOOD CANCER AWARENESS MONTH

FRIENDS PLEASE REMEMBER THAT SEPTEMBER IS CHILDHOOD CANCER AWARENESS MONTH.  PLEASE REMEMBER THAT CHILDHOOD CANCER SURVIVORS BECOME ADOLESCENTS AND YOUNG ADULTS WITH SECONDARY ILLNESSES  PLEASE REMEMBER THAT EACH DAY PARENTS ARE MOURNING THE LOSS OF THEIR CHILD AS A RESULT OF CANCER. PLEASE REMEMBER THAT PEDIATRIC CANCER IS THE #1 DISEASE RELATED KILLER OF KIDS…
Read more

ASK ME WHY IT’S NOT OKAY?

  Our weekend in Washington DC began with important meetings with  USA government officials from Congress, The White House, National Institute of Health, National Cancer Institute and Department of Defense.     CUREFEST 2014 did an excellent job making sure parents, grandparents, siblings and survivors had several opportunities to engage, socialize and share their stories.…
Read more

Where are you now, Rock Hudson?

Where are you now, Rock Hudson? Originally Posted for Four Square Clobbers Cancer: http://4sqclobberscancer.com/ Thank you to Joe Baber for his assistance in preparing this blog. I couldn’t have done it without his assistance! Are you wondering who is Rock Hudson? Do you think I have lost my mind? Well ….. Since my son Steven’s diagnoses with Stage Four…
Read more

In Memory: Erik Kratky – YA Cancer Warrior

I wanted to share some sad news about a young man who lost his battle with Cancer. Erik Kratky lost his battle two weeks ago. I didn’t personally know him, but have several photos of him as a result of his participation in the St. Baldrick’s Head Shaving Event at Rainbow, Babies and Children’s Hospital.…
Read more

#STEPUP: More funding for CHILDHOOD CANCER RESEARCH!!!

#STEPUP – LET’S SUPPORT CHILDHOOD CANCER RESEARCH CAMPAIGN!!! A coordinated community effort is underway to storm Congress – on foot and online. Childhood cancer organizations throughout the country are joining together to send Congress the message of #StepUp: More Funding for Childhood Cancer Research. History will be made  when 250+ advocates come to Washington, D.C. for Childhood…
Read more

Report from Las Vegas: Stupid Cancer’s OMG! YA Cancer Summit 2014

Hi Friends, I just returned from the OMG YA Cancer Summit 2014…although a bit tired I feel energized by the well orchestrated series of events that took place over the last few days in VEGAS!!! Young Adult cancer survivors (some currently in treatment) from all of the USA, Canada, and Europe attended this action packed,…
Read more

Are We Ever Cancer Free?

When Steven was diagnosed with a secondary cancer, (AML), and then had a Bone Marrow Transplant I often wondered if he would be free of cancer. We were told that time would tell and just to enjoy the moment. Time has passed. This year, happily, Steve was told that he is five years out from…
Read more

Research! Research! Research! = $$$$$$

This blog reviews the recently passed Kids First Research Act of 2013 and the impact of limited research dollars on places like Huang lab.   The Kids First Research Act of 2013 (H.R. 2019) Description: The presidential candidates do not use the funds set aside from the income tax option because they find it to…
Read more