This year McGladry LLP of Cleveland, Ohio selected the Steven G AYA Cancer Research Fund as one of their Charities. The months of September and October will be filled with opportunities to raise money and awareness about AYA Cancer.
We thank McGladry LLP for their generosity and belief in the Steven G AYA Cancer Research Fund as we continue to raise money for research, education and hope for the future of our young people fighting this terrible disease!
Please take a moment to visit http://fightconquercure.org/birdies-fore-love/ for more information!
SERVICE AND SUPPORT FOR PEOPLE BATTLING CANCER
Last week I had to pleasure of participating in an intensive week long Integrative Patient Navigation training program at the Pearlstone Center in Baltimore, MD. Our training was sponsored by the Smith Center of Washington DC http://smithcenter.org/.
How fortunate I was to be part of a group of wonderful, kind and dedicated individuals who desire to serve cancer survivors and their families. All of the participants had experience with cancer: professionally or personally. Most, I should state had a PERSONAL experience with cancer. Each of us shared our experiences with cancer which lended itself to the learning process. No stone was left unturned. Integrative Patient Navigation is a serious and heartfelt vocation. Our lessons began in the early morning and stretched into the evening hours. They were filled with research based information that will enable us to appropriately serve survivors and their families. Our experiences went beyond the text book. We were encouraged to engage each other and simulate patient navigation to ensure comprehension.
So what is Integrative Patient Navigation?
According to the Smith Center “Integrative Patient Navigation in cancer care refers to personalized assistance and support offered to individuals and their caregivers facing cancer.”
An Integrative Patient Navigator can (1) facilitate access to treatment, (2) honor the cultural and religious believe of the individual, (3) increase patient’s knowledge of resources, tool and skills to help them cope with their disease, (4) provide information and teach about the healing power of nutrition, stress reduction, mind-body skills, and creative resources, and their role in treatment and survivorship, (5) support patients and caregivers emotionally and spiritually, (6) help improve the quality of the cancer experience, (7) empower individuals to become more engaged in their health care experience and healing process, and (8) be available to the patient throughout the course of the cancer experience, from screening through diagnosis, treatment, recovery, survivorship, including recurrence and/end-of-life (Smith Center, 2013).
Many of you may have (or will) receive services from an Integrative Patient Navigator. They are highly trained professionals, and are often oncology nurses, oncology social workers, integrative practitioners, cancer survivors, or former caregivers. They are also people who deeply care and want to ease suffering from this horrible disease.
From time to time I will be including information about Integrative Medicine. In addition please look for a new Resource Section on Integrative Medicine.
Please let me know if you have any questions about Patient Navigation.
We are in this together and we will not rest until there is a cure.
FIGHT! CONQUER! CURE!!!
Please join me in thanking Dr. Alex Huang, Deborah Barkauskas, David Askew, Jeremy Willets, Ed Greenfield, Chad Wecgraff, Patrick Holzheimer, Christopher Anthony, Seth Karol, Justin Williams, James Beraducci, Kathy Lazar Jason Makii, Marcello Chieppa, Dixon Dorand, Lindsay A., Carolyn Askew, Nedal E., Jay Myers, Matthew Tsao, Nic Peters, Alexander Tong, Graziella Solinas, Anthony Huszcsa, Jeffery Ford, Anthony Serio, James Hegzi, Lindsey Forur, Peter Serios, Corinne Willets, Guiseppe Bagorda, Tim Guy, Peter de Blank, Elizabeth Pierce, Adam Brumma, Murad Talahma, Judith Weiss, Kathy Griswold, Erica Johnson, Heather Reyes, Peter A., and Nurse Leslie for humbling themselves for the benefit of our children!
Just the other day a friend told me about a 20 year old young woman recently diagnosed with Breast Cancer. Her family is shocked and feeling helpless. As many of us know, being diagnosed with cancer is a very frightening and life altering experience. Fortunately, there are many organizations that can provide support and information about breast cancer. Here are two groups I would like to highlight: The Young Survival Coalition (www.youngsurvival.org) and Team Shan (www.teamshan.ca). Both organizations are lead by dedicated women seeking to reach out and help breast cancer survivors. I recommend you check out these organizations.
We know how important research is to finding better ways to treat and cure cancer. What about prevention. I recently learned about fundraising efforts by the Cleveland Clinic to support the development of research for a Breast Cancer Vaccine http://giving.ccf.org/site/PageServer?pagename=vaccine.
What can I say…it certainly makes sense to support efforts for breast cancer research given the number of young adult women diagnosed each year with this horrible disease..
So I would like to plug a very nice upcoming event right here in Cleveland, Ohio.
For $35 you can support the breast cancer research, eat lunch with your friends, and have fun checking out the latest fashions courtesy of MACY’S.
SUNDAY, MARCH 10, 2013 AT 1:00 PM
ST. DEMETRIOS CULTURAL CENTER
22909 CENTER RIDGE ROAD
ROCKY RIVER, OHIO 44116
$35 WILL GET YOU A DELICIOUS LUNCHEON (chicken, rice, vegies, rolls, salad and dessert) AND FASHION SHOW by MACY’S
ADVANCE TICKETS ARE REQUIRED – PLEASE CALL 440-835-3809 OR 440-835-1913
FOR more information about the Breast Cancer Vaccine Research please visit: http://giving.ccf.org/site/PageServer?pagename=vaccine
Hello family and friends,
On Saturday, January 26, 2013 the Steven G AYA Cancer Research Fund hosted its Fourth Annual fundraiser “Take a BITE out of AYA Cancer” at the St. Demetrios Cultural Center in Rocky River, Ohio. Four hundred (I like writing that number out) supporters attended the successful event. Our supporters helped us raise over $28,000 for AYA Cancer Research and Education. This was our best effort ever!!!
In attendance were family, friends, pediatric oncology researchers and AYA Cancer medical team members. We were awestruck by the number of people who helped us Take a BITE out of AYA Cancer.
What a night! Our fundraising team and volunteers, under the fantastic coordinating efforts of Tina Poulos, prepared and attended to the Silent Auction, Chinese raffle, 50/50 raffle, Side Boards, and Lots of Liquor raffle which helped create a constant buzz of anticipation and excitement throughout the evening.
Following the Opening Prayer by Fr. James Doukas, we were entertained by Take Five Jazz Band who serenaded us with their classic jazz sound during dinner. After dinner we had a brief presentation hosted by MC Nick Giallourakis who introduced the AYA Cancer Researchers from Dr. Alex Huang’s Lab of UH/Case Medical Center, including this year’s Steven G AYA Cancer Scholarship recipient Dr. David Askew.
After the presentation of AYA Cancer Researchers, a video was shown to the entire group. Thanks to the Meredith A. Cowden Foundation for sharing an important video titled “A Day in the Life of Young Adults with GVHD (graft vs. host disease)”. The video provided the perfect testimony for the importance of supporting AYA Cancer Research. (This video can be found in our blog or at the Cowden Foundation website.)
After the brief, but impactful program, the musical sound volume was kicked up a notch or two through the awesome efforts of DJ Nick Mavroides who played both Greek and American dance tunes. Needless to say, we danced the night away!!! OPA!
What a night indeed! We must thank all our Sponsors for helping fund the event, our Silent Auction and Chinese Raffle, 50/50 Raffle, Side Boards, and Lots of Liquor Donors for contributing all the wonderful prizes that helped create such an exciting evening. (Please visit our website for the Fundraiser 2013 power point presentation that identifies all our Sponsors and In Kind contributors.)
In addition, we must thank our entire fundraising team under the direction of Tina Poulos. The Fundraising Team included: Jean Hillman, Mary and Jim Diamond, Elaine Campbell, Shawna Hofstetter, Toula Pyros, Myrta Holden, Lee Santarelli, Helene and Anthony Santerelli, Elpida Kosmidis, Betty and John Poulos, CJ Mosure, Donna Vassos, Goldie Doukas, and Nick Giallourakis. These key individuals took time out of their daily lives to ensure the event would run smoothly and be successful.
Other very important individuals were Irene Steffas, Becky Giallourakis, Debbie Cooper, Diane and Nick Kariotakis, Polly Furey, Betty Rozakis, Gabby Kariotakis, Maria and Steve Alex, Catherine Morrison, Maggie Steffas, Ellie Chrisman, Claude Campbell, Tracy Michael, Michael Diamond, Josh Walsh, Phillip Cooper, Nick Rozakis, Nick Petrakis, and Tammy Asimakis.
Also, thanks to all the folks who prepared the delicious home made desserts!!! I felt like we were having a Dessert Bake Off!!!
Lastly to our entire family and friends who continue to support us each and every year. Without your support and love we could not continue our mission.
Please remember that our fundraiser is about remembering our loved ones who have lost the battle to cancer and to honor those who continue to wage the war on this horrible disease.
We will FIGHT!
We will CONQUER!
We will not rest until there is a CURE!!!
FIGHT! CONQUER! CURE!!!
God Bless each of you.
Angie and Harry Giallourakis