Fundraising Events

EMILY’S RAINBOW RUN and Family Walk – April 19th

YOU ARE INVITED

TO

EMILY’S RAINBOW RUN and Family Walk

In honor of the Memory of our friend Emily Lewis 

The event will take place

Sunday, April 19th, 2015

Westlake High School

Westlake, Ohio 44145

4 MILE TIME RACE starts at 8 am

2 MILE RUN/WALK starts at 8:05 am

Kids Run starts approximately at 9:15 am

To register and for more information visit:

www.emilysrainbowfund.org

or

info@emilysrainbowfund.org

or download this flyer and registration form 2015_ERR_Registration

EmilyPhoto Emily8

TAKE A BITE OUT OF AYA CANCER – WE DID IT!!

Hello Friends,

I wish to report that last week’s fundraiser was a HUGH success. We raised over $27,000!!!

The evening was filled with warm wishes, fun, great food and music. We had an excellent presentation by our Key Note Speaker Robert Pugert (AYA Cancer Warrior and future Pediatric Oncologist). Robert touched our hearts with words of wisdom on the love and support of family,  the value of solid cancer research and hope for a future where cancer is but a thing of the past!!! Imagine..a world without cancer! 

Special thanks to Committee Chair Tina Poulos, Jean Hillman, Elaine Campbell, Mary and Jim Diamond, Toula Pyros, Fr. F Jim and Presbytera Goldie Doukas, Acia Shaheen, Betty and John Poulos, Becky Giallourakis, Elpida Kosmides, Jan Spooner, Nick Giallourakis, Stephanie Zavatchen, Polly Furey, CJ Mosure, Lee Santorelli, Helene & Anthony Santorelli, Gabby Kariotakis, Nick and Diane Kariotakis, Maria and Steve Alex, Matina Manos, Bryan Boss, Irene Steffas, Maggie Steffas, Steve Steffas, Claude Campbell, Mary Levendusky, Myrta Holden, Edna Oroczo,  Phil and Alysse Giallourakis, Barb Michael, Tracy Michael, Ellie Chrisman, Tammy Asimakis, Alexis Steffas, Sophia Asmis, Maria Steffas and Linda Glynias.

I really hope I didn’t leave anyone out of my list…if so, I will add them next week.

Also, special thanks to our new friends from Korea (Jin Chou, Yegi and Ashley) who are producing a Documentary on Cancer in the USA. Soon you will receive a link to this new documentary where the SGAYA Cancer Research Foundation and Friends will be highlighted.

AND Special Thanks to our Sponsors and Donors —

YOUR CONTINUOUS SUPPORT HUMBLES US!

George Giallourakis, Mike Catanzarite, Lou and Ann Frangos, Jim Doyle, Gary L. Gross, Rob Risman, David and Dena Grubb, The Paras Family, Paul  & Christine Venizelos, Thrivent Gift Multiplier Program, Paul Porch, David P Richards, Scott & Kimberly Williams, Steven Zalany, Cindy & Don Sears, Renee Seybert, Sue Giallourakis, Estelle Callas, Amanda Dempsey, Sandy Tata, Janette O’Brian, Mary Kelly Baddour, Linda Damiani, Philoptochos Society of St. Demetrios Greek Orthodox Church, Eileen Tassie, Bobby Catanza, Elaine Campbell, Toula Pyros, Linda Lens Photography, Jeremy Dancy, Debbie Webster, Jim & Joel Spevock, Jimmy Lee, Mr & Mrs. Richard R. McClain, Anna & David Goldense, David Wozniak, Becky Prince, Acia Shaheen, Jim Voiklis, Lee & Anglikie Zapis, Tom Abersold, Charles Scott Salon…

AND ABOUT THE BE CALM STAY STRONG YA Cancer Packages—

Description of the YA Cancer Patient Packages: 

The treatment itches, it burns, it makes you exhausted and sick, and because it’s so expensive, many young patients can’t afford the simple things that make it bearable. When you support the BE CALM STAY STRONG program, by sponsoring a cancer care basket for a young cancer patient in need, you are making an immediate impact in the life of a cancer patient. When you sponsor a BE CALM STAY STRONG basket, we work with hospitals and social workers that support cancer patients to ensure that it gets to someone who needs it, right when they need it the most. A personal note is included in the basket. All proceeds from your sponsorship are used to support the BE CALM STAY STRONG program – it’s a purchase with a purpose. FOR MORE INFORMATION CONTACT INFO@FIGHTCONQUERCURE.COM.

SPECIAL THANKS TO THE FOLLOWING INDIVIDUALS WHO HAVE ENABLED US TO PROVIDE BE CALM STAY STRONG PACKAGES TO PATIENTS. YOUR NAMES WILL BE INCLUDED IN A PATIENT PACKAGE.

 Andrew & Jenny Illcin, Tom Basista, Kelly Orozco, Tim Greene, Tim O’Shaugnessy, David Hillie, Ken Yackle, Mike Kraft, Manual & Linda M. Glynias, Donna Vassos, Betty & John Poulos, Brendan & Anne Fitzgerald, Darrin & Tricia Rodatz, Nancy & Rick Cusic, Jim & Connie Giallourakis, Bill & Connie Pastis, Scott & Lisa Lee, Rick & Ilona Bartch, Jerry & Diane Babinyecz, Jack & Rita Sabolid, Lou & Baiba Celesky, Deborah Barkauskas, George & Jan Giallourakis, Ted & Angela Giallourakis, Bill  & Shannon Giallourakis, and  (will your name be next??)…

2015 evening 210649591_1044544355572578_1211191570983181861_n (1) 1012983_1044544588905888_5638547904224652504_n 10952411_1044544818905865_4420761336225640273_n 10952116_1044544918905855_1766155033557131484_n 10947230_1044544832239197_2198225543566364832_n 10945572_1044545118905835_8252298570502884950_n 10945029_1044544442239236_6559908465070072989_n 10943028_1044544532239227_3919245488509642511_n 10943026_1044544652239215_2960211617151187393_n 10941511_1044545552239125_5866887060160562491_n 10941128_1044545475572466_9126375999653272832_n 10933879_1044545195572494_8786093802984489018_n 10933872_1044545508905796_344706946385790319_n 10690063_1044545068905840_2107069984969866405_n 10685405_1044545808905766_123100814777564742_n 10550958_1044545218905825_2706608675996438553_n 10947230_1044544832239197_2198225543566364832_n 10537892_1044544662239214_130605591950053939_n 10502084_1044545428905804_3730039277410658577_n 10443647_1044544888905858_1740394821187377630_n 10433797_1044544488905898_574613532735352627_n 10426090_1044545165572497_5096192227518416717_n 10422136_1044545235572490_2686333445472657503_n 10410837_1044544945572519_6401407926762387490_n 10410348_1044545575572456_4179347314100151179_n 10420047_1044545928905754_1832548983047755920_n 10408778_1044544762239204_4048748029739333087_n 10408485_1044545175572496_7909522277753982675_n 10014668_1044545275572486_472497021103185746_n 1926637_1044544715572542_7281941649534335535_n 1654402_1044545018905845_2915333149773750994_n 1509844_1044544742239206_6260338848872322395_n 1012983_1044544985572515_8768331132328753192_n 66189_1044545092239171_1357202303334483726_n 15928_1044545918905755_5886564520980156621_n 1012983_1044544588905888_5638547904224652504_n 10801767_1044545635572450_3079211843410487425_n

WE ARE READY FOR YOU: TAKE A BITE OUT OF CANCER IS ON!!!

WE HAVE A FUN FILLED EVENING PLANNED SO I HOPE YOU CA2015 auction promorN JOIN US.

LET’S FACE IT, WHERE CAN YOU GO, PAY $40 AND HAVE DINNER, WINE, BEER or SODA, COFFEE AND GREEK DESSERTS…PLUS MUSIC, DANCING, VISIT WITH FRIENDS,…AND HAVE AN OPPORTUNITY TO WIN SOME FABULOUS PRIZES???

WAIT UNTIL YOU SEE OUR AUCTION ITEMS!

HERE ARE A SAMPLE OF ITEMS WE ARE AUCTIONING OFF: VACATION DESTINATIONS, LOGE SEATING, JEWELRY, AUTOGRAPHED FOOTBALLS, BASEBALLS, AND BASKETBALLS ALL FROM CLEVELAND!!!  HAIR AND SPA TREATMENTS, ART WORK, GIFT CARDS TO A NIGHT ON THE TOWN, YOGA, PERSONAL TRAINERS, ICE CREAM, GOLF, THEATER TICKETS,  COSMETICS TO BEAUTIFY AND MAKE YOU LOOK YOUNGER:)

SO JOIN US THIS SATURDAY, JANUARY 24th, 2015.

7 PM – 11:30 PM

 ST. DEMETRIOS CULTURAL CENTER

22909 CENTER RIDGE ROAD

ROCKY RIVER, OHIO 44116.

ALL PROCEEDS GO TO PAYA* CANCER RESEARCH, FUTURE PAYA CANCER RESEARCHERS, PAYA CANCER PATIENTS AND THEIR FAMILIES.

WE ARE A VOLUNTEER ORGANIZATION SO PLEASE JOIN US THIS SATURDAY!

QUESTIONS? CONTACT ANGIE AT: INFO@FIGHTCONQUERCURE.COM.

ORDER TICKETS ON-LINE…ON OUR WEBSITE: FIGHTCONQUERCURE.ORG

EACH YEAR 70K YOUNG ADULTS ARE DIAGNOSED WITH CANCER.

EVERY DAY 23 CHILDREN UNDER 18 YRS ARE DIAGNOSED WITH CANCER.

AREN’T YOU TIRED OF HEARING THESE HORRID STATISTICS?

PLEASE HELP US AS WE FIGHT! CONQUER! CURE!! CANCER!!!

*PAYA  cancer patients = pediatric, adolescent, and young adults = too many young people suffering = we need better research to treat and cure!

CRITICAL MASS CONFERENCE 2014 – why we do what we do

I had the pleasure of attending the Critical Mass Conference in Denver two weeks ago. The conference was fantastic!!! There’s nothing like being with a group of like minded people so dedicated to finding better ways to treat and cure AYA Cancer!!

Oncologists, nurses, social scientists and workers all banded together with a common goal: Collaborate to Cure Cancer!!

Many of the conference leaders are YA Cancer survivors who know first hand what it means to be part of a unique group of individuals considered to be “the least likely to survive their cancer.”

Like last year, the Steven G AYA Cancer Research Fund awarded six individuals for their work in either Innovative Scientific Research or Innovative Service and Programs.

Critical Mass Conference 2014, Denver, CO  SGAYA Cancer Poster Session Awardees

Critical Mass Conference 2014, Denver, CO
SGAYA Cancer Poster Session Awardees

 

 

 

 

 

 

 

 

 

 

Their names are below listed as follows:

Innovative Research and Clinical Trials

First Place – $500 Award

Author Name: Deborah Morosini, MD, MSW

(not in photo)

Abstract Title: FoundationOne’s comprehensive genomic profiling of solid tumors from 669 adolescents and young adults reveal a distinct spectrum of targetable genomic alterations.

Second Place – $300 Award

Author Name: Leonard Sender, MD

Abstract Title: A Phase II, Open-Label, Single-Arm, Multicenter, Pharmacokinetic Study of Intramuscular Asparaginase in Young Adults with Acute Lymphoblastic Leukemia or Lymphoblastic Lymphoma

Third Place – $150 Award

Author Name: Melanie Goldfarb, MD, MS FACS

Abstract Title: Thyroid Cancer Specific Quality of Life and Health Utility in Adolescent and Young Adult Thyroid Survivors

Innovative Programs and Services Awards

 First Place Award – $500

Author Name: Laura Mitchell, BA, BScN, MN, CON(C)

Abstract Title: Enhancing Young Adult Cancer Care: the significance of improving access to community programs

Second Place Award – $300

Author Name: Karen Fasciano, Psy.D.

Abstract Title: Development of a web-based support program for caregivers of young adults coping with cancer.

Third Place Award – $150

Author Name: Julie Kinamore

Abstract Title: An Outdoor Adventure Program for Young Adults with Cancer: Positive Effects on Body Image and Psychosocial Functioning

Congratulations to all these very talented individuals!

Last, but not least!!!

I wanted to share an email from one of last years’ recipients.

Dr. Catherine Fiona MacPherson’s  (in photo below) research  study is titled:

 

criticalmassfiona

Link to the RESEARCH ARTICLE: feasibility acceptability of an iPad app to explore symptom clusters in AYAs with cancer_Pediatr Blood Cancer_2014

 The Computerized Symptom Capture Tool (C-SCAT): A Novel Approach to Exploring Symptoms and Symptom Clusters.

Please read an excerpt from Catherine’s message regarding the SGAYA Fund’s $500 Award impacted her research project:

...follow-up to our conversation regarding the impact of the generous award from the Steven G. AYA Cancer Research Fund which the Consortium to Study Symptoms in Adolescents with Cancer (CS2AC) received at Critical Mass 2013. 

 I have attached the paper published in Pediatric Blood and Cancer this past summer which reports the primary findings of our study evaluating the feasibility and acceptability of a novel iPad application to explore symptoms and symptom clusters in AYAs with cancer.  

The award enabled us to pay a medical illustrator to design Figure 1 which appears on page 3. 

The inclusion of this figure notably enhanced the paper by providing example images of step by step completion of the app screens to complement the text description of the same. The figure enabled us to better convey the innovation and paradigm-shifting potential of the app and generate reader interest in further use and study of it. The paper is important in that it will serve as published preliminary data to support future grant applications for clinical pilot testing of the app’s potential to empower AYAs to gain insight into and communicate their unique symptom experience.  Our award from the Steven G. AYA Cancer Research Fund therefore contributed significantly to moving forward our research agenda to positively impact symptom management for AYAs with cancer.

Again, thank you so very much, on behalf of all of us in CS2AC (cc’d on this email).  Please do not hesitate to let us know if there is ever any way in which we could assist you. Your work is vitally important to advancing research and clinical care to benefit AYAs with cancer and we would be delighted to support it in any way we can to give back in return for the support you have given us.”

-we are working hard to help others

find a better way to treat and cure aya cancer!!!-

fight! conquer!! cure!!! 


SEE YOU JANUARY 24TH, 201

 

fundraiserflyer2014-2015

SEPTEMBER IS CHILDHOOD CANCER AWARENESS MONTH

 

 

Gold-ribbon

HELLO FRIENDS,

I AM WONDERING IF YOU ARE AWARE THAT SEPTEMBER IS CHILDHOOD CANCER AWARENESS MONTH?

WE WOULD LIKE YOU TO PAUSE FOR A MOMENT AND JOIN US AS WE HONOR OUR YOUNGEST OF CANCER WARRIORS.

WE HAVE LOST TOO MANY CHILDREN, ADOLESCENTS AND YOUNG ADULTS.

OUR CHILDREN HAVE SUFFERED GREATLY…

WE NEED TO REMIND OUR LEGISLATORS THAT OUR CHILDREN DESERVE THEIR ATTENTION…

WE NEED TO REMIND OUR GENEROUS DONORS ($$$) THAT THEIR MONEY WILL HELP PAY FOR IMPORTANT, LIFE SAVING RESEARCH!

WE NEED TO REMIND EVERYONE THAT WHEN YOUR CHILD IS DIAGNOSED WITH CANCER YOUR LIFE WILL BE FOREVER CHANGED!!!

JOIN US SEPTEMBER 19-21, 2014 AS WE WALK ON WASHINGTON DC FOR CUREFEST TO HONOR AND REMEMBER ALL OUR CHILDHOOD, ADOLESCENT AND YOUNG ADULT CANCER WARRIORS!

FOR MORE INFORMATION VISIT: CUREFESTDC.ORG

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Where are you now, Rock Hudson?

Where are you now, Rock Hudson?

Originally Posted for Four Square Clobbers Cancer: http://4sqclobberscancer.com/

Thank you to Joe Baber for his assistance in preparing this blog. I couldn’t have done it without his assistance!

RockHudson_edited-1Are you wondering who is Rock Hudson? Do you think I have lost my mind? Well …..

Since my son Steven’s diagnoses with Stage Four Osteosarcoma over 7 years ago, followed by a diagnosis of Secondary Acute Myelogenous Leukemia, which required a lifesaving Bone Marrow Transplant, I have learned a great deal about PAYA (Pediatric, Adolescent StevenandAngieand Young Adult) Cancer.

  • I learned that cancer is the leading cause of DEATH (from a disease) in children.
  • I learned that there haven’t been any new drugs developed in over 20 YEARS to treat children with cancer.
  • I learned that the statistics for Adolescent and Young Adult (AYA) cancer survivorship has not improved in twenty years.

I tend to obsess over these issues each and every time I hear about another young person being diagnosed with cancer. I obsess when I meet someone who is fighting for their life from cancer that is not the result of life style behaviors.

So what am I getting at? This morning I had a revelation!

rocktaylor-giant_optI was sitting on the floor with  Steven, who was struggling with immobilizing neuropathic pain, cancer treatment one side effect, and I thought: WE NEED A ROCK HUDSON.        HUH?

Rock Hudson was a handsome movie star during the 1950’s and 60’s. During his youth women loved him! For over 30 years Rock was seen in movies and television. He left the public eye for a few years and then attempted to make a comeback. In the early 1980’s he returned to television to starrockhudson1in Dynasty with Linda Evans. Audiences were shocked at his appearance. What happened to Rock? Was he ill? He looked so gaunt! This isn’t the Rock we remember!

Sadly we later learned that Rock had AIDS. The public was shocked.

Rock Hudson provided a catalyst to the AIDS MOVEMENT. His diagnoses and death was the reality check needed for our society to realize that ANYONE COULD GET AIDS. After his passing, the entertainment industry embraced and used the legacy of Rock Hudson to300.taylor.cm_.32311create awareness about AIDS. One of Rock’s leading ladies of the movie era, Elizabeth Taylor took on the task of creating awareness for this terrible disease. There was a complete and total assault on AIDS in the Media and Entertainment Industry.

Since 1981, 1.7 million people were diagnosed with AIDS. Since 1981, approximately 619,000 have died from AIDS in the United States. Fortunately for AIDS Research, the media and the entertainment industry saw fit to create AIDS awareness which resulted in the development of very effective efforts to fund AIDS research and prevention programs.  Apparently the attention caused by Rock Hudson, and the work of the media and entertainment industry since then were very effective! Today, AIDS is more treatable than ever before, and fewer people are dying each year from this tragic disease.

What does this have to do with Steven and all the other PAYA’s diagnosed with cancer?

Well, our children, adolescents and young adults with cancer have not been so fortunate! We have not experienced a media blitz to raise awareness. Yes, progress has been made for some life threatening cancers, but what about the more rare forms of the disease?

The National Institute of Health/National Cancer Institute (NIH/NCI) budget will provide only $195 million to Childhood Cancer Research (for ages 0-19 years) for 2014.  This amount has decreased for the last several years.  If you consider the effects of sequestration and inflation, you could say childhood cancer research funding is down 30% over 2008!   To put  aids funding in perspective to cancer funding, consider this: While the entire budget for all cancers, adults and children, is $4.9 billion, AIDS research is more than half at 2.9 billion! An estimated 15,529 people with an AIDS diagnosis died in the US during 2010 compared with 569,490 who died of cancer.  Do you see a discrepancy here?

Every year 2,700 children (0 – 19 years old) will die from cancer. That’s 17% of the children diagnosed with cancer. What about the survivors? Do you recall Joe Baber’s report last week? To paraphrase Joe “even when a child reaches the 5-year survival milestone (an arbitrary number), they are still at risk of long term effects…When we talk about “cure rate” it never mentions that more than 90% of those “cured” have serious or life threatening side effects or even secondary cancers caused by the treatment.”

What about AYA (adolescents and young adults’ ages 15 – 39 years) with cancer? Cancer is the leading cause of death (excluding homicide, suicide and unintentional injury) in this age group. In males, besides heart disease, cancer is the leading cause of death. In women it is the leading cause of death  (Bleyer, Viny, & Barr, 2006).

StepUpShineWhere is the Media? Where is the Entertainment Industry? PAYA Cancer shouldn’t be relegated to Special Interest Blogs by heartbroken parents who have lost their children or PAYA Cancer survivors sharing their stories. PAYA Cancer shouldn’t be a sound bite on the evening news that highlights a Walkathon by a few hundred parents and children during the month of September (childhood cancer awareness month) or about a young man or woman bike riding across the country to raise money for a specific cancer. MORE NEEDS TO BE DONE!!!

We appreciate last year’s STAND UP TO CANCER television program highlighting Taylor Swift’s awesome song “Ronan” but MORE NEEDS TO BE DONE!!! After the Stand Up To Cancer Program, did you hear the song “Ronan” played on the radio? Did it make the TOP TEN?

We appreciate all of the wonderful childhood, adolescent and young adult cancer organizations raising awareness and providing support to hundreds of families each year…..BUT MORE NEEDS TO BE DONE!!

We appreciate movies like 50/50 creating some awareness (a rather light hearted attempt at that) of the stresses and fears that a young adult experiences when diagnosed with cancer, BUT MORE NEEDS TO BE DONE.

Where is our ROCK HUDSON???

Is there some way the media and our society can come to an understanding that we parents and family members also grieve each time we lose one of our children to cancer?

The other day, I was reminded of parental pain of loss when I watched the news as a couple grieved over the loss of their child who was murdered at Sandy Hook Elementary School.

How often are parents asked to share their grief over the loss of their child to cancer on national television?

Is the grief of parent who lost their child to cancer any less than those unfortunate families at Sandy Hook? Where is the shock? Where is the disgust?

starprofile_edited-2Who will champion the cause of Pediatric, Adolescent, and Young Adult Cancers? What will it take for the media to dig in and help? How many more children will we lose to Brain Tumors (a childhood cancer that is increasing in frequency every year)? How many teenage boys and girls will lose their limbs or life to a Sarcoma (where treatments haven’t changed in over 30 years)? How many young adult women will die of Breast Cancer (as this age group is more likely to die than any other group)?

Where is our champion? Who else needs to die for the cause?

 

Report from Las Vegas: Stupid Cancer’s OMG! YA Cancer Summit 2014

Exuberant "Get To Know You Session" for NEW ATTENDEES!

Exuberant “Get To Know You Session” for NEW ATTENDEES!

Hi Friends,

I just returned from the OMG YA Cancer Summit 2014…although a bit tired I feel energized by the well orchestrated series of events that took place over the last few days in VEGAS!!!

Young Adult cancer survivors (some currently in treatment) from all of the USA, Canada, and Europe attended this action packed, fun filled, emotionally uplifting, and informative event.

Mathew Zachary, Ali Ward and the entire Stupid Cancer team should be applauded for the fantastic job they did to ensure everyone’s needs were met while attending the YA Cancer Summit.

Here are a few topics covered: Brain Tumor Support Group, Caregiver Support, Advocacy, Anger Management, Nutrition, Media and Survivorship, Insurance, Meditation and Relaxation, Pesticides, and more.

Plus there were Hair and Wig stylists available for anyone who wanted a new look…and also Makeup tips to put your glam on:)

I also had the pleasure of meeting two of the NE Ohio YA Cancer Survivors (Phoebe and Lauren) sent by the SGAYA Cancer Fund and In It Together.

Here are a few photographs of the event…

stupidcancerrecipients

Lauren and Phoebe are center between Angie and Amelia. The gentleman is Lauren’s boyfriend (sorry I forgot your name!!)

 

 

The Art of Survivorship is how you choose to get busy living!!!

The Art of Survivorship is how you choose to get busy living!!!

Even Wonder Woman was warming up for the Walk/Run for YA Cancer!

Even Wonder Woman was warming up for the Walk/Run for YA Cancer!

stupid cancer 4

Makeup artists volunteered their time

stupid cancer 92

A High Energy Event!

stupid cancer 99

Wigs for YA Cancer Patients

Remembering and honoring our YA Cancer Warriors.

stupid cancer 7

Check your self!!

stupid cancer 5

Yes, cancer is stupid.

Warming up for a Walk/Run Event

Warming up for a Walk/Run Event

stupid cancer 93

Lynn smiling with friends Lauren and Phoebe

Bonnie and Mike Lang, Pat Taylor, @cancerfightclub, Amelia and me chilling at our favorite restaurant:)

Bonnie and Mike Lang, Pat Taylor, @cancerfightclub, Amelia and me chilling at our favorite restaurant:)

Stupid Cancer’s OMG It’s Cancer Conference 2014

Hello Friends,

We are happy to announce that the SGAYA Cancer Research Fund will be sending a qualified applicant to the OMG 2014 Conference.

OMG 2014 Conference is an annual event sponsored by

Stupid Cancer

AKA “i’m too young for this! ”

Stupid Cancer, a 501(c)3 non-profit organization, is the dominant healthcare brand for millions affected by young adult cancer.

I am a huge fan of Stupid Cancer because of the genuine commitment to serving Young Adult Cancer Survivors through Social Media Advocacy work (and more). I urge you to check out their website to learn more about Stupid Cancer!

Visit them at stupidcancer.org 

OMG 2014 Conference info:

The conference will take place in Vegas on April 24 – 27, 2014.

If you are a Young Adult Cancer Survivor and are thinking about attending this fabulous conference please visit this link:

The link for the submission form is: http://stpdcn.cr/SGAYAPSF

For more information upload the flyer here (this might take an extra step): patient scholarship flyer

As a Caregiver and YA Cancer Advocate I am looking forward to attending this conference.

I hope to see you in Vegas on April 24!!!

Angie

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NO WINTER BLUES..WE KICKED CANCER’S BUTT AND PURPLE Smoothie Day was a HIT!!!

It’s not everyday I can report on two successful events in one week…but here it is!

A BIG THANK YOU to our SUPPORTERS who helped us Take a BITE out of AYA Cancer  at our Fundraiser last week!!! Despite the snow and cold (old man winter did a number on us) folks were determined to inform cancer that NOTHING IS GOING TO STOP THEM FROM FIGHTING CANCER!!!

Many thanks to our SPONSORS, DONORS, FUNDRAISING COMMITTEE, VOLUNTEERS, BAKERS, PHOTOGRAPHER, AND TECH SUPPORT STAFF.

Our Event Sponsors were:

CATANZARITE FAMILY FOUNDATION

LOU AND ANN FRANGOS

THE RIPICH FAMILY

CHARLES AND CHARLENE FOWLER

JIM DOYLE REALTY

MCGLADRY, LLP

GROSS BUILDERS

PORTER WRIGHT

WILLIAM & SUSAN WEIR

PURE BARRE WESTLAKE – LORI STANDON

TOME & LESLIE BASISTA

BELLWETHER ENTERPRISE

We will post all the names of our many wonderful donors in our Event Power Point very soon. Our donors enabled us to have some fantastic and unique Silent and Chinese Auction items:)

Thank you to our Fundraising committee:

Tina Poulos, Chair

Elaine & Claude Campbell

Jean & Nick Hillman

Mary & Jim Diamond

Polly & Tim Furey

Betty & John Poulos

Toula & Nick Pyros

Helene & Anthony Santerelli

Lee Santerelli

Myrta Holden

Elpida Kosmidis

Fr. James & Presbytera Goldie Doukas

Nick Giallourakis

Becky Giallourakis

We couldn’t have done it without you!!!!!

 

fatherjim

Fr. James Doukas, Polly Furey, Helene Santerelli, Goldie Doukas, and Ang===============================

nickycam

MC Nick Giallourakis and Camilla Cullis

======

vera

Vera Karydes, Alan & Aggie Arabian, Toula Pyros

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CJ Mosure, Jim Diamond, Stephanie Missirlis, Polly & Tim Furey

 

 
 
 
more photos will be posted very soon!
 
 

 

 

 

 

 

 

 

========================================================

 

purple smoothie little health nut

PURPLE SMOOTHIE DAY

 FOR STAFF, FAMILIES, AND PATIENTS ON RAINBOW 2

Our very first Wellness Project took place on Friday at Rainbow Babies & Childrens’ Hospital. The SGAYA Smoothie Day was a hit! Smoothies are a healthy and easy way to enjoy a nourishing TREAT…especially for young people receiving chemotherapy…and for family members who, day after day, choose to remain at the side of their loved ones.

Thanks to VitaMix of Cleveland, we were able to blend blueberries, bananas, and orange juice into a delightful beverage that EVERYONE enjoyed….even children currently receiving  chemotherapy (that destroys ones taste buds)..

When I saw the youngsters enjoy the fruit filled smoothie and smile…my heart soared!!!

Special thanks to Child Life Worker Stephanie Jordan for printing off the recipes to distribute to families and making the event HAPPEN!!! Coordination of time and space is required to make such a simple event successful!!!

I look forward to our next WELLNESS EVENT… Healthy Snack Day!!

purple smoothy 2purple smoothy day

Stephanie and a helpful Volunteer prepared

 smoothies

Thanks to

Stephanie for letting me get in on

the fun!!!

Take A BITE out of AYA CANCER!!!

 

Hello Friends,

Our 5th Annual fundraiser will take place this Saturday, January 25th, 2014.

Tickets are being sold at a rapid pace, so if you are thinking about attending may I suggest you visit our website (www.fightconquercure.org) or email me (angie@fightconquercure.com) to make your purchase.

Our wonderful committee has been working diligently to make this event the best ever!!!

Our Silent and Chinese Auction Items include (but are not limited to the following):

Vacation Get-Away Packages!

Golf Packages!

Autographed Sports Items!

   (including Nick Swisher autographed        baseball and  bat that includes his named  engraved and signed!!!)

Pure Barre Workout Gift Basket!

Spa Items  From Charles Scott and Fusions Salons!

Get Fit with  Jeremy Dancy of Official Fitness Pro!

Loge Seating for Cleveland Sporting Events!

Art Work!

Restaurant Gift Certificates!!

Chocolates!!!

and more!!!

What a great way to help us Fight Conquer Cure Cancer!!!

See you soon!!!

Angie

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