Events

What’s New? Or…Wow summer is almost over and…..

DSC02364June was a busy month in the world of PAYA Cancer Advocacy Work. I joined fellow PAYA Cancer Stakeholders  (parents, survivors, doctors, lawyers, and social workers) from all over the country to walk on Washington DC for Childhood Cancer Action Day. We visited our State Legislators to encourage them to support  (1) The Caroline Pryce Walker Conquer Childhood Cancer Reauthorization Act (2) The Childhood Cancer Quality of Life Act, (3) the Patients Access to Treatments Act, (4) The Federal Fund for Childhood Cancer Research, and lastly (5) we encouraged our House Representatives to join the Congressional Childhood Cancer Caucus, chaired by Representatives McCaul  (R-TX) and Van Hollen (D-MD).

Also during our time in Washington DC I was pleased to participate in the Coalition Against Childhood Cancer (CAC2) Symposium. Dedicated individuals collaborated to form CAC2 to ensure that the best possible treatments and cures are made available to our children. Many of these people have lost a child to cancer, or, like myself, have a child who survived this horrible disease. I am sure you can imagine the intensity of emotions generated at the three day long event.

It is my hope that our visits to Washington DC continue to make a positive impact on our legislators. We will return as often as needed to ensure that proper legislation is enacted to protect our families from this horrible disease!!!

SUPPORTING PEDIATRIC ADOLESCENT AND YOUNG ADULT CANCER RESEARCH CANNOT BE IGNORED.

OUR CHILDREN (YOUNG AND OLD) SHOULDN’T SUFFER….

Below are photographs of many wonderful advocates who participated in Childhood Action Day!!!

ALSO, DON’T FORGET THAT SEPTEMBER IS CHILDHOOD CANCER AWARENESS MONTH!!!

WE WILL NOT REST UNTIL THERE IS A CURE!!!

FIGHT!

CONQUER!

CURE!!!

TEAM RAINBOW LOSES HAIR FOR CHILDHOOD CANCER RESEARCH!!!

We are so proud of our friends at Rainbow Babies and Childrens’ Hospital in Cleveland! Last week TEAM RAINBOW had a “hair raising experience”…and helped promote and fund CHILDHOOD CANCER RESEARCH!!!  Team Rainbow raised over $29,000 for St. Baldrick’s.

Please join me in thanking Dr. Alex Huang, Deborah Barkauskas, David Askew, Jeremy Willets, Ed Greenfield, Chad Wecgraff, Patrick Holzheimer, Christopher Anthony, Seth Karol, Justin Williams, James Beraducci, Kathy Lazar Jason Makii, Marcello Chieppa, Dixon Dorand, Lindsay A., Carolyn Askew, Nedal E., Jay Myers, Matthew Tsao, Nic Peters, Alexander Tong, Graziella Solinas, Anthony Huszcsa, Jeffery Ford, Anthony Serio, James Hegzi, Lindsey Forur, Peter Serios, Corinne Willets, Guiseppe  Bagorda, Tim Guy, Peter de Blank, Elizabeth Pierce, Adam Brumma, Murad Talahma, Judith Weiss, Kathy Griswold, Erica Johnson, Heather Reyes, Peter A., and Nurse Leslie for humbling themselves for the benefit of our children!davidaskewphoto
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CHILDHOOD CANCER ACTION DAY IN WASHINGTON DC!!!

AllianceActionDay2013

SAVE THE DATE –

2013 CHILDHOOD CANCER ACTION DAY IN WASHINGTON, DC

 

Children’s Cause for Cancer Advocacy (CCCA), a member of the Alliance for Childhood Cancer, is pleased to announce that this year’s Childhood Cancer Action Day in Washington, DC is scheduled for June 17-18, 2013.

This year, members of the Alliance for Childhood Cancer will once again host a two-day event that includes issues and advocacy training, and pre-arranged Capitol Hill visits with Congressional representatives and their staff. Our goal: to provide the childhood cancer community – parents, children, and others – with the opportunity to visit Capitol Hill and advocate for the important childhood cancer issues currently before Congress.

Save the Date! Childhood Cancer Action Day in Washington, DC June 17-18, 2013
Monday, June 17, 1:00 – 6:30 p.m. Training and issues presentation
Tuesday, June 18, 8:00 a.m. – 5:00 p.m. Kick-off and Hill visits
Event Participation: Online registration opens Monday, April 15th
Hotel Reservations: A block of rooms has been reserved at the Hotel Residence Inn Old Town South Carlyle, at a room rate of $218 per night. The hotel will accept reservations on a first-come, first-served basis. Ph: 703-549-1155
Transportation to/from Childhood Cancer Action Day is the responsibility of those attending.
More information to follow.
This year, the training will take place at the American Society of Clinical Oncology (ASCO) in Old Town Alexandria, VA. ASCO is located just a few subway stops from Ronald Reagan National Airport, and the hotel is across the street from ASCO. The Alliance will provide buses to and from Capitol Hill on the 18th for Congressional Visits.

About the Alliance for Childhood Cancer

Founded in 2001, the Alliance for Childhood Cancer is a forum of twenty-six national patient advocacy groups, and medical and scientific organizations. These organizations meet regularly in Washington, DC to share ideas and concerns and work collaboratively to advance policies leading to improved research, public education, and diagnosis, treatment, supportive care and survivorship for children and adolescents with cancer.

On behalf of the Children’s Cause for Cancer Advocacy and the Alliance for Childhood Cancer, I look forward to seeing you in Washington, DC in June.

If you have any questions, please contact Maureen Lilly at 202.336.8375 or mlilly@childrenscause.org.

 

FIGHT! CONQUER! CURE!!!

 

(W)IN IT TOGETHER: A MARCH MADNESS FUNDRAISER!!

 

Looking for something to

do on Friday, March 22nd?

march-madness

 

 

 

 

 

 

Itching to watch some College Basketball and perhaps win a prize or two?

Well come to the Market Brewery, 1947 W. 25th Street, Ohio City.

The fun begins at 6:00 pm.

Tickets: $35 Advance and $40 at the Door

Includes food and drink!

$500 in Prizes!!!

Please RSVP to holly@cardiganevents.com with the number of people attending. Check (made out to “In It Together“) can be sent to:

In It  Together 

P.O. Box 771303

Lakewood, Ohio 44107

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In It Together’s Mission is to raise awareness and provide resources for families affected by Pediatric and Adolescent Young Adult Cancers.

Visit our website at: http://www.neo4u.org to learn how you can participate in In It Together’s online March Madness Bracketology!

See you on the 22nd!

The Steven G AYA Cancer Research Fund is in Partnership with In It Together. THE WAY TO MAKE A DIFFERENCE IS THROUGH COLLABORATION AND BY SHARING OF RESOURCES AND INFORMATION! We are IN IT TOGETHER!!!

 

fight! conquer! cure!!!

St Ed’s High School Students Raise $4500 for Childhood Cancer Research

HOW SWEET it is to hear that a group of high school students got together to help raise awareness and funds for Childhood Cancer Research!!! These young men, sophomores, from ST. EDWARD’S HIGH SCHOOL in Cleveland, Ohio banded together, tossed there vanity out the window and shaved their heads for ST. BALDRICK’S an organization dedicated to funding CHILDHOOD CANCER RESEARCH!

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This month keep your eye out for more “HEAD SHAVING EVENTS” in your community. Head Shaving events are a wonderful (and fun) way to call attention to the issues related to PAYA (pediatric adolescent and young adult) CANCER RESEARCH!! For more information about St. Baldrick’s visit www.stbaldricks.org .

REMEMBER,

WE WILL NOT REST UNTIL THERE IS A CURE!

 FIGHT!!! CONQUER!!! CURE!!!

Breast Cancer Vaccine Research Fundraiser

breast cancerWhy am I writing about Breast Cancer?

Doesn’t this website focus on pediatric, adolescent and young adult cancers?

Yes, it does.

In case you didn’t already know, Breast Cancer in Young Adult Women can be very lethal. According to National Cancer Institute “women ages 15 to 34 and 35 to 54 die more frequently from breast cancer than any other disease” ( http://obf.cancer.gov/financial/attachments/06Factbk.pdf).

Just the other day a friend told me about a 20 year old young woman recently diagnosed with Breast Cancer. Her family is shocked and feeling helpless. As many of us know, being diagnosed with cancer is a very frightening and life altering experience. Fortunately, there are many organizations that can provide support and information about breast cancer. Here are two groups I would like to highlight: The Young Survival Coalition (www.youngsurvival.org) and Team Shan (www.teamshan.ca).  Both organizations are lead by dedicated women seeking to reach out and help breast cancer survivors. I recommend you check out these organizations.

We know how important research is to finding better ways to treat and cure cancer. What about prevention. I recently learned about fundraising efforts by the Cleveland Clinic to support the development of research for a Breast Cancer Vaccine http://giving.ccf.org/site/PageServer?pagename=vaccine.

What can I say…it certainly makes sense to support efforts for breast cancer research given the number of young adult women diagnosed each year with this horrible disease..

So I would like to plug a very nice upcoming event right here in Cleveland, Ohio.

For $35 you can support the breast cancer research, eat lunch with your friends, and have fun checking out the latest fashions courtesy of MACY’S.

Fundraiser for Breast Cancer Vaccine Research

SUNDAY, MARCH 10, 2013 AT 1:00 PM

ST. DEMETRIOS CULTURAL CENTER

22909 CENTER RIDGE ROAD

ROCKY RIVER, OHIO 44116

$35 WILL  GET YOU A DELICIOUS LUNCHEON  (chicken, rice, vegies, rolls, salad and dessert) AND FASHION SHOW by MACY’S

ADVANCE TICKETS ARE REQUIRED – PLEASE CALL 440-835-3809 OR 440-835-1913

FOR more information about the Breast Cancer Vaccine Research please visit: http://giving.ccf.org/site/PageServer?pagename=vaccine

WOW!!! WHAT A NIGHT!!! FUNDRAISER WAS A SUCCESS!!!

memoryboardHello family and friends,
On Saturday, January 26, 2013 the Steven G AYA Cancer Research Fund hosted its Fourth Annual fundraiser “Take a BITE out of AYA Cancer” at the St. Demetrios Cultural Center in Rocky River, Ohio. Four hundred (I like writing that number out) supporters attended the successful event. Our supporters helped us raise over $28,000 for AYA Cancer Research and Education. This was our best effort ever!!!
In attendance were family, friends, pediatric oncology researchers and AYA Cancer medical team members. We were awestruck by the number of people who helped us Take a BITE out of AYA Cancer.
What a night! Our fundraising team and volunteers, under the fantastic coordinating efforts of Tina Poulos, prepared and attended to the Silent Auction, Chinese raffle, 50/50 raffle, Side Boards, and Lots of Liquor raffle which helped create a constant buzz of anticipation and excitement throughout the evening.
Following the Opening Prayer by Fr. James Doukas, we were entertained by Take Five Jazz Band who serenaded us with their classic jazz sound during dinner. After dinner we had a brief presentation hosted by MC Nick Giallourakis who introduced the AYA Cancer Researchers from Dr. Alex Huang’s Lab of UH/Case Medical Center, including this year’s Steven G AYA Cancer Scholarship recipient Dr. David Askew.
After the presentation of AYA Cancer Researchers, a video was shown to the entire group. Thanks to the Meredith A. Cowden Foundation for sharing an important video titled “A Day in the Life of Young Adults with GVHD (graft vs. host disease)”. The video provided the perfect testimony for the importance of supporting AYA Cancer Research. (This video can be found in our blog or at the Cowden Foundation website.)
After the brief, but impactful program, the musical sound volume was kicked up a notch or two through the awesome efforts of DJ Nick Mavroides who played both Greek and American dance tunes. Needless to say, we danced the night away!!! OPA!
What a night indeed! We must thank all our Sponsors for helping fund the event, our Silent Auction and Chinese Raffle, 50/50 Raffle, Side Boards, and Lots of Liquor Donors for contributing all the wonderful prizes that helped create such an exciting evening. (Please visit our website for the Fundraiser 2013 power point presentation that identifies all our Sponsors and In Kind contributors.)
In addition, we must thank our entire fundraising team under the direction of Tina Poulos. The Fundraising Team included: Jean Hillman, Mary and Jim Diamond, Elaine Campbell, Shawna Hofstetter, Toula Pyros, Myrta Holden, Lee Santarelli, Helene and Anthony Santerelli, Elpida Kosmidis, Betty and John Poulos, CJ Mosure, Donna Vassos, Goldie Doukas, and Nick Giallourakis. These key individuals took time out of their daily lives to ensure the event would run smoothly and be successful.
Other very important individuals were Irene Steffas, Becky Giallourakis, Debbie Cooper, Diane and Nick Kariotakis, Polly Furey, Betty Rozakis, Gabby Kariotakis, Maria and Steve Alex, Catherine Morrison, Maggie Steffas, Ellie Chrisman, Claude Campbell, Tracy Michael, Michael Diamond, Josh Walsh, Phillip Cooper, Nick Rozakis, Nick Petrakis, and Tammy Asimakis.
Also, thanks to all the folks who prepared the delicious home made desserts!!! I felt like we were having a Dessert Bake Off!!!
Lastly to our entire family and friends who continue to support us each and every year. Without your support and love we could not continue our mission.
Please remember that our fundraiser is about remembering our loved ones who have lost the battle to cancer and to honor those who continue to wage the war on this horrible disease.
We will FIGHT!
We will CONQUER!
We will not rest until there is a CURE!!!
FIGHT! CONQUER! CURE!!!
God Bless each of you.
Sincerely,
Angie and Harry Giallourakis

 

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“Take a Bite Out of AYA Cancer” Presentation

Images from the 2013 Fundraiser

AYA Cancer Fundraiser Less than 2 Weeks Away!!

Just a reminder..

 The

Take A BITE Out of AYA Cancer Fundraiser is only 11 days away!

There will be many opportunities to win high quality prizes.

Thanks to our very generous donors we have:

 Front Row Seats for the CAVS

Vacation Getaways!

Loge Seating for Cleveland Indian Games

Jewelry

Bushel of Cheer

Hand Made Corn Hole Game

Spa Deals

Night on the Town baskets including the Cleveland Orchestra, Cleveland Playhouse, Top Notch Restaurants, Rides with Lolly the Trolley, and More!!!

So, don’t delay in purchasing your tickets!!!

happypeople

See you on Saturday, January 26th!!