Events

Report from Las Vegas: Stupid Cancer’s OMG! YA Cancer Summit 2014

Exuberant "Get To Know You Session" for NEW ATTENDEES!

Exuberant “Get To Know You Session” for NEW ATTENDEES!

Hi Friends,

I just returned from the OMG YA Cancer Summit 2014…although a bit tired I feel energized by the well orchestrated series of events that took place over the last few days in VEGAS!!!

Young Adult cancer survivors (some currently in treatment) from all of the USA, Canada, and Europe attended this action packed, fun filled, emotionally uplifting, and informative event.

Mathew Zachary, Ali Ward and the entire Stupid Cancer team should be applauded for the fantastic job they did to ensure everyone’s needs were met while attending the YA Cancer Summit.

Here are a few topics covered: Brain Tumor Support Group, Caregiver Support, Advocacy, Anger Management, Nutrition, Media and Survivorship, Insurance, Meditation and Relaxation, Pesticides, and more.

Plus there were Hair and Wig stylists available for anyone who wanted a new look…and also Makeup tips to put your glam on:)

I also had the pleasure of meeting two of the NE Ohio YA Cancer Survivors (Phoebe and Lauren) sent by the SGAYA Cancer Fund and In It Together.

Here are a few photographs of the event…

stupidcancerrecipients

Lauren and Phoebe are center between Angie and Amelia. The gentleman is Lauren’s boyfriend (sorry I forgot your name!!)

 

 

The Art of Survivorship is how you choose to get busy living!!!

The Art of Survivorship is how you choose to get busy living!!!

Even Wonder Woman was warming up for the Walk/Run for YA Cancer!

Even Wonder Woman was warming up for the Walk/Run for YA Cancer!

stupid cancer 4

Makeup artists volunteered their time

stupid cancer 92

A High Energy Event!

stupid cancer 99

Wigs for YA Cancer Patients

Remembering and honoring our YA Cancer Warriors.

stupid cancer 7

Check your self!!

stupid cancer 5

Yes, cancer is stupid.

Warming up for a Walk/Run Event

Warming up for a Walk/Run Event

stupid cancer 93

Lynn smiling with friends Lauren and Phoebe

Bonnie and Mike Lang, Pat Taylor, @cancerfightclub, Amelia and me chilling at our favorite restaurant:)

Bonnie and Mike Lang, Pat Taylor, @cancerfightclub, Amelia and me chilling at our favorite restaurant:)

EARTHFARE and SGAYA Partners for WELLNESS!

Patricia O'Donnell, Community Relations Coordinator for EarthFare Supermarket in Fairview Park, Ohio.

Patricia O’Donnell, Community Relations Coordinator

EarthFare Supermarket, Fairview Park, Ohio

Thank you EarthFare Supermarket for joining forces with the SGAYA Cancer Research Fund to provide Healthy Foods to Pediatric, Adolescent and Young Adult Cancer Patients and their Families.

Research has shown that PAYA Cancer Patients have a better chance of surviving their cancer and remaining healthy if they are well nourished. This means that the majority of their meals should be fresh vegetables, legumes and fruits!!

 

Part of our mission includes helping  patients survive their cancer through education.  You can imagine our satisfaction knowing that dads and moms, as well as young patients, are enjoying refreshing smoothies. 

This past Friday was Green Smoothie day, in honor of St. Patrick’s Day. 

Stephanie Jordan, Child life Worker, whipped up Green Smoothies that contained fresh pineapple, bananas, spinach, coconut water, and yogurt. 

Everyone (parents and children) agreed that despite the undesirable greenish hue of the beverage…it was quite tasty!!! One dad was reluctant…but after he took a sip…well what can I say…he really enjoyed the healthy drink!

Smoothie Fridays not only provide a healthy introduction to refreshing beverages, but a welcomed distraction to the often stressful days parents and children encounter on Rainbow 2.

Let’s face it CANCER STINKS!

BUT… One adolescent teen stated “wow I love these fruits!!! I am going to order fresh fruit everyday!!!”…when I asked her if I could quote her she said “SURE!!!”

AH, SUCH GRATIFICATION!!!

You can expect to hear more about our WELLNESS PROGRAM in the future. In the meantime, know that every Friday something HEALTHY is happening courtesy of EarthFare and the Steven G AYA Cancer Research Fund. 

FIGHT! CONQUER! CURE!!!

Stupid Cancer’s OMG It’s Cancer Conference 2014

Hello Friends,

We are happy to announce that the SGAYA Cancer Research Fund will be sending a qualified applicant to the OMG 2014 Conference.

OMG 2014 Conference is an annual event sponsored by

Stupid Cancer

AKA “i’m too young for this! ”

Stupid Cancer, a 501(c)3 non-profit organization, is the dominant healthcare brand for millions affected by young adult cancer.

I am a huge fan of Stupid Cancer because of the genuine commitment to serving Young Adult Cancer Survivors through Social Media Advocacy work (and more). I urge you to check out their website to learn more about Stupid Cancer!

Visit them at stupidcancer.org 

OMG 2014 Conference info:

The conference will take place in Vegas on April 24 – 27, 2014.

If you are a Young Adult Cancer Survivor and are thinking about attending this fabulous conference please visit this link:

The link for the submission form is: http://stpdcn.cr/SGAYAPSF

For more information upload the flyer here (this might take an extra step): patient scholarship flyer

As a Caregiver and YA Cancer Advocate I am looking forward to attending this conference.

I hope to see you in Vegas on April 24!!!

Angie

176840.3060190

 

NO WINTER BLUES..WE KICKED CANCER’S BUTT AND PURPLE Smoothie Day was a HIT!!!

It’s not everyday I can report on two successful events in one week…but here it is!

A BIG THANK YOU to our SUPPORTERS who helped us Take a BITE out of AYA Cancer  at our Fundraiser last week!!! Despite the snow and cold (old man winter did a number on us) folks were determined to inform cancer that NOTHING IS GOING TO STOP THEM FROM FIGHTING CANCER!!!

Many thanks to our SPONSORS, DONORS, FUNDRAISING COMMITTEE, VOLUNTEERS, BAKERS, PHOTOGRAPHER, AND TECH SUPPORT STAFF.

Our Event Sponsors were:

CATANZARITE FAMILY FOUNDATION

LOU AND ANN FRANGOS

THE RIPICH FAMILY

CHARLES AND CHARLENE FOWLER

JIM DOYLE REALTY

MCGLADRY, LLP

GROSS BUILDERS

PORTER WRIGHT

WILLIAM & SUSAN WEIR

PURE BARRE WESTLAKE – LORI STANDON

TOME & LESLIE BASISTA

BELLWETHER ENTERPRISE

We will post all the names of our many wonderful donors in our Event Power Point very soon. Our donors enabled us to have some fantastic and unique Silent and Chinese Auction items:)

Thank you to our Fundraising committee:

Tina Poulos, Chair

Elaine & Claude Campbell

Jean & Nick Hillman

Mary & Jim Diamond

Polly & Tim Furey

Betty & John Poulos

Toula & Nick Pyros

Helene & Anthony Santerelli

Lee Santerelli

Myrta Holden

Elpida Kosmidis

Fr. James & Presbytera Goldie Doukas

Nick Giallourakis

Becky Giallourakis

We couldn’t have done it without you!!!!!

 

fatherjim

Fr. James Doukas, Polly Furey, Helene Santerelli, Goldie Doukas, and Ang===============================

nickycam

MC Nick Giallourakis and Camilla Cullis

======

vera

Vera Karydes, Alan & Aggie Arabian, Toula Pyros

pollytim

CJ Mosure, Jim Diamond, Stephanie Missirlis, Polly & Tim Furey

 

 
 
 
more photos will be posted very soon!
 
 

 

 

 

 

 

 

 

========================================================

 

purple smoothie little health nut

PURPLE SMOOTHIE DAY

 FOR STAFF, FAMILIES, AND PATIENTS ON RAINBOW 2

Our very first Wellness Project took place on Friday at Rainbow Babies & Childrens’ Hospital. The SGAYA Smoothie Day was a hit! Smoothies are a healthy and easy way to enjoy a nourishing TREAT…especially for young people receiving chemotherapy…and for family members who, day after day, choose to remain at the side of their loved ones.

Thanks to VitaMix of Cleveland, we were able to blend blueberries, bananas, and orange juice into a delightful beverage that EVERYONE enjoyed….even children currently receiving  chemotherapy (that destroys ones taste buds)..

When I saw the youngsters enjoy the fruit filled smoothie and smile…my heart soared!!!

Special thanks to Child Life Worker Stephanie Jordan for printing off the recipes to distribute to families and making the event HAPPEN!!! Coordination of time and space is required to make such a simple event successful!!!

I look forward to our next WELLNESS EVENT… Healthy Snack Day!!

purple smoothy 2purple smoothy day

Stephanie and a helpful Volunteer prepared

 smoothies

Thanks to

Stephanie for letting me get in on

the fun!!!

Take A BITE out of AYA CANCER!!!

 

Hello Friends,

Our 5th Annual fundraiser will take place this Saturday, January 25th, 2014.

Tickets are being sold at a rapid pace, so if you are thinking about attending may I suggest you visit our website (www.fightconquercure.org) or email me (angie@fightconquercure.com) to make your purchase.

Our wonderful committee has been working diligently to make this event the best ever!!!

Our Silent and Chinese Auction Items include (but are not limited to the following):

Vacation Get-Away Packages!

Golf Packages!

Autographed Sports Items!

   (including Nick Swisher autographed        baseball and  bat that includes his named  engraved and signed!!!)

Pure Barre Workout Gift Basket!

Spa Items  From Charles Scott and Fusions Salons!

Get Fit with  Jeremy Dancy of Official Fitness Pro!

Loge Seating for Cleveland Sporting Events!

Art Work!

Restaurant Gift Certificates!!

Chocolates!!!

and more!!!

What a great way to help us Fight Conquer Cure Cancer!!!

See you soon!!!

Angie

event-logo (1)

MEET STEVE G AT THE BARRE: PURE BARRE

Hello all,

Don’t forget this Saturday,

January 18th at noon or

1:15pm for the PURE BARRE –

Pure Give Class!!!

Proceeds will go towards the Steven G AYA Cancer Research Fund!

Support AYA Cancer Research, Education and Advocacy and GET INTO SHAPE!!!

Also, Steven G will be joining us at 1:00 pm to thank all of you for supporting our cause!

you can register on-line at

www.purebarre.com/oh-westlake

or

email at westlake@purebarre.com

Thanks for helping us

FIGHTCONQUERCURE

Cancer!!!

 

Screen Shot 2013-12-30 at 9.49.16 AM

GET THE PURE BARRE (L)EDGE AND SUPPORT AYA CANCER

Screen Shot 2013-12-30 at 9.49.16 AM

HI FRIENDS!

LORI STANDON, OWNER

OF

PURE BARRE AVON/WESTLAKE AND ROCKY RIVER, OHIO

IS

DEMONSTRATING

HER SUPPORT

OF

 THE STEVEN G AYA CANCER RESEARCH FUND

BY

DESIGNATING US AS

CHARITY OF THE MONTH FOR

JANUARY, 2014. 

YOU

HAVE THE OPPORTUNITY

TO HAVE THE

WORKOUT OF YOUR LIFE

AND

SUPPORT

AYA CANCER RESEARCH, AWARENESS AND EDUCATION.

SO

SIGN UP TO PARTICIPATE IN THE

PURE GIVE WORKOUT

ON

SATURDAY, JANUARY 18TH.

THE WORK OUT SESSIONS WILL TAKE PLACE AT:

12:15 PM

OR

1:00 PM

TO SIGN UP PLEASE VISIT HER WEBSITE AT

WWW.PUREBARRE.COM/WESTLAKE-OH

OR 

EMAIL LORI AT

WESTLAKE@PUREBARRE.COM

SIGN UP IS FREE 

BUT LORI SUGGESTS A DONATION OF $20 AT THE DOOR.

ALL PROCEEDS GO TO

THE STEVEN G AYA CANCER RESEARCH FUND’S

RESEARCH

EDUCATION AND AWARENESS PROGRAMS.

PLEASE JOIN ME

IN THANKING LORI

FOR HER GRACIOUSNESS

IN HELPING THE CAUSE!

REMEMBER…

WE WILL NOT REST UNTIL THERE IS CURE!!!

FIGHT! CONQUER! CURE!!!

SAVE THE DATE: Take a BITE Out Of Cancer Fundraiser – JANUARY 25, 2014

Hello Friends of the Steven G AYA Cancer Research Fund

Just a friendly reminder that our

Annual AYA Cancer Fundraiser

– TAKE A BITE OUT OF CANCER!!! –

is scheduled for

Saturday, January 25th, 2014

 7 pm – 11:30 pm.

The event will take place at the

St. Demetrios Cultural Center

22909 Center Ridge Road

Rocky River, Ohio 44116.

Live Jazz Music , DJ Sounds by Nick Mavroidis, Dinner and Dancing, Raffles, Silent Auctions

ALL PROCEEDS GO TOWARDS

AYA CANCER RESEARCH,

EDUCATION AND WELLNESS PROGRAMS

WE SINCERELY HOPE YOU WILL BE ABLE TO JOIN US ON SATURDAY, JANUARY 25TH, 2014!!!

PLEASE DON’T FORGET THAT

Each year 70,000 young adults ( 18 – 39 years) are diagnosed with cancer!

The survival statistics for adolescents and young adults with cancer have NOT  improved since the 1970’s!!!

Too many young people suffering and too many young people losing their lives to CANCER!!!

We will not rest until there is a cure!!!

FIGHT! CONQUER! CURE!!!

For more information please contact: angie@fightconquercure.com

TICKETS: $40 per person

You may purchase your tickets on-line or mail your check  (payable to The Steven G AYA Cancer Fund) to

The Steven G AYA Cancer Research Fund 

2368 Georgia Drive

Westlake, Ohio 44145

_DSC0517_DSC0455_DSC0295_DSC0183_DSC0104_DSC0103_DSC0299_DSC0130_DSC0022_DSC0066_DSC0063_DSC0628_DSC0527

Cleveland Hosted Critical Mass : SGAYA Fund Awards Six Researchers!!!

The Steven G AYA Cancer Research Fund participated in the Critical Mass: YA Cancer Alliance conference last week. The Critical Mass Conference was held here in Cleveland, Ohio at the Renaissance Hotel. All the participants were pleased and impressed by our fine city…and frankly Cleveland you should give yourselves a pat on the back!!!

Yes friends AYA Cancer is addressed here in Cleveland!!! The Angie Fowler AYA Cancer Institute of University Hospitals of Cleveland, The Gathering Place, Leukemia Lymphoma Society NE Ohio, Raise Above It (RAI), In It Together, and The SGAYA Cancer Research Fund represented NE Ohio as advocates, researchers, service providers to AYA Cancer patients and their families.

As part of the SGAYA Cancer Research Fund’s mission – to support AYA Cancer Research – Six Innovative Cancer Research Awards were awarded to researchers and program developers who presented and attended the conference.

Here are the awardees of the Steven G AYA Cancer Innovative Cancer Research Awards

MODELS OF CARE & PARTNERSHIPS: AYA CENTERS, PROGRAMS & UNITS

First Prize ($500) to Mike Lang and Emily Drake for their examination of the therapeutic process of Survive and Thrive Expeditions. for more information about “Reflect. Refocus. Rebuild. Live: The Therapeutic Process of Survive & Thrive Expeditions” contact mike@survivethrive.org.

Second Prize ($300) to Mindy Buchanan (buchanmi@ohsu.edu) “Leveraging Interns: A model for partnership with university systems to expand services to AYAs and increase influence inside the Academic Medical Center.”

Third Prize ($150) to Anthony N. Audino, MD (anthony.audino@nationwidechildrens.org) for “L.E.A.P. – Learning, Education, Awareness, Prevention Young Adult Cancer.” 

MOVING FORWARD (AYA BEST PRACTICES, RESEARCH, AND IMPLEMENTATION)

First Prize ($500) to Brad Love (lovebrad@utexas.edu) for “The Uncertainty is What is Driving Me Crazy”: The Tripartite Model of Uncertainty in the Adolescent and Young Adult Cancer Context.”

Second Prize ($300) to David Askew (dxa25@case.edu) for “Identification of CD8+ and CD4+CD8+T-cell acute lymphoblastic leukemia cells generated through constitutive expression of intracellular NOTchH1.”

Third Prize ($150) to Catherine Fiona Macpherson (cfmacph@uw.edu) for “The Computerized Symptom Capture Tool (C-SCAT): A Novel Approach to Exploring Symptoms and Symptom Clusters in Adolescents and Young Adults (AYAs) with Cancer.”

The Steven G AYA Cancer Research Fund was very impressed with the breadth and depth of the Poster Submissions to the Critical Mass Conference.

In addition, we appreciate the support of  conference committee, especially Heidi Adams, Fayruz Benyousef, and Rebecca Block, for allowing the Local Spotlight on NE Ohio’s AYA Cancer Programs.

Lastly, it was great to see familiar faces:) There are so many dedicated people out there trying to make a difference.

Collaboration is the key to finding better ways to treat and cure AYA Cancer!!!

We will Fight! We will Conquer! We will Cure cancer!

FIGHT! CONQUER! CURE!!!

criticalmassdotscriticalmassfiona criticalmassdavid criticalmassposter

LATEST UPDATE: HONOR AND SERVICE

 

macgladry

We are HONORED to be selected as Charity of the Month by the McGladrey Group in Cleveland, Ohio.

This year McGladry LLP of Cleveland, Ohio selected the Steven G AYA Cancer Research Fund as one of their Charities. The months of September and October will be filled with opportunities to raise money and awareness about AYA Cancer.

We thank McGladry LLP for their generosity and belief in the Steven G AYA Cancer Research Fund as we continue to raise money for research, education and hope for the future of our young people fighting this terrible disease!

Please take a moment to visit http://fightconquercure.org/birdies-fore-love/ for more information!

SERVICE AND SUPPORT FOR PEOPLE BATTLING CANCER

smithcentergrads

Smith Center for the Healing and the Arts 2013 Graduates

Last week I had to pleasure of participating in an intensive week long Integrative Patient Navigation training program at the Pearlstone Center in Baltimore, MD. Our training was sponsored by the Smith Center of Washington DC http://smithcenter.org/.

How fortunate I was to be part of a group of wonderful, kind and dedicated individuals who desire to serve cancer survivors and their families. All of the participants had experience with cancer: professionally or personally. Most, I should state had a PERSONAL experience with cancer. Each of us shared our experiences with cancer which lended itself to the learning process. No stone was left unturned. Integrative Patient Navigation is a serious and heartfelt vocation. Our lessons began in the early morning and stretched into the evening hours. They were filled with research based information that will enable us to appropriately serve survivors and their families. Our experiences went beyond the text book. We were encouraged to engage each other and simulate  patient navigation to ensure comprehension.

So what is Integrative Patient Navigation?

According to the Smith Center “Integrative Patient Navigation in cancer care refers to personalized assistance and support offered to individuals and their caregivers facing cancer.”

An Integrative Patient Navigator can (1) facilitate access to treatment, (2) honor the cultural and religious believe of the individual, (3) increase patient’s knowledge of resources, tool and skills to help them cope with their disease, (4) provide information  and teach about the healing power of nutrition, stress reduction, mind-body skills, and creative resources, and their role in treatment and survivorship, (5) support patients and caregivers emotionally and spiritually, (6) help improve the quality of the cancer experience, (7) empower individuals to become more engaged in their health care experience and healing process, and (8) be available to the patient throughout the course of the cancer experience, from screening through diagnosis, treatment, recovery, survivorship, including recurrence and/end-of-life (Smith Center, 2013).

Many of you may have (or will) receive services from an Integrative Patient Navigator. They are highly trained professionals, and are often oncology nurses, oncology social workers, integrative practitioners, cancer survivors, or former caregivers.  They are also people who deeply care and want to ease suffering from this horrible disease.

From time to time I will be including information about Integrative Medicine. In addition please look for a new  Resource Section on  Integrative Medicine.

Please let me know if you have any questions about Patient Navigation.

We are in this together and we will not rest until there is a cure.

FIGHT! CONQUER! CURE!!!

Have Hope and Be Courageous!