Events

YA CANCER SURVIVORS SHARE THEIR THOUGHTS & A BIG THANK YOU

We thought it would be nice to hear from some of the individuals we supported this year. In April a group of NE Ohio YA Cancer Survivors received scholarships to attend CancerCon (a conference dedicated to providing social support to YA Cancer Warriors).

Note: You will see photos of survivors, caregivers, family and friends – but Foundation Funding was strictly used for the six NE Ohioans: Tess Blasko, Jennifer Anand, Margaux Yerian, Samantha Krizo, Christopher Evans, and Peter Citro.

Here are some comments and reflections on cancer, CancerCon, and the Steven G Foundation.

 

“Dear Steven G Foundation,

On a daily basis, I’m reminded of the “bad” things cancer has done- from being on insulin, to aches and pains, to the various medications- sometimes it can be really tough. But then comes Cancer Con.  This weekend is about celebrating cancer. As weird as it sounds, that is your golden ticket into this exclusive conference.  We are celebrating the monster that brought us together.  From all over the United States and Canada, with a few other friends thrown in. For a few days, we get to be pampered by the makeover artists, get a chair massage, score some free swag from exhibitors, and dance the night away,  We get to forget our reality at home.  We get to not have to explain our tiredness, or our diets or our hair. We get not to have to explain our billion bathroom breaks. We get not to have to explain our weird cravings or sudden dizziness. That’s what this is about.  People who get it, without saying a word.  People who get the 3am moments alone, or the strained friendships, or the self-doubt and self-judgement. We are surviving, and thriving, and out living it.

Every year, this conference is what gives me the renewed strength, hope, and comfort to continue for another year.  It refreshes my soul, and lifts my spirits.  I leave with new friends, and a renewed sense of togetherness and hope for a brighter future that is cancer free.  Thank you so much for enabling me to go to this amazing conference. ”

Sincerely, Jennifer Anand

Dear Steven G Foundation,

“To start this off I just want to express how amazing this foundation is and how it has helped me in ways I didn’t think were possible. Through the Steven G foundation I got an opportunity to attend CancerCon 2018 in Denver, Colorado. When I first heard about CancerCon I was going through treatments in 2017 and it instantly caught my interest.  I just imagined being surrounded by so many different people who understood everything I was going through and I knew I had to go. When I arrived at CancerCon it felt like I was finally able to breath. I wasn’t constantly trapped in my mind thinking about my emotions and the trauma that I have just endured. I wasn’t self conscious about my hair being short and I wasn’t uncomfortable to show my scars. I was at this busy convention completely myself in a room full of strangers but there was a sense of calm when I looked around because we were all just connected and comfortable with each other. Cancer is so ugly in a lot of the things it brings. The side effects from the medicines, the losses, the emotional damage, and it changes your questions of life. The one thing is not ugly from cancer is the people that that this disease brought into my life. They have impacted me in a way that is indescribable. Being able to meet more amazing people at CancerCon and hearing all the different stories just jump started my new view on life and pushed me to better myself in every way possible. I didn’t fully understand how much I needed the weekend in Denver until I arrived. Not only was the whole convention amazing, I was able to explore Denver and I fell in love! It’s such a beautiful place and . I am so excited to let the relationships that I made with people grow and I cannot wait until CancerCon 2019! I defiantly would like to return again

Again thank you so much for everything this foundation has done for me. You truly helped changed a part of my life and I will forever be grateful for that!”

-Tess Blasko

 

“If there is anything that I can do to help your foundation in anyway I would love to help you guys out as much as you helped me.”

Samantha Krizo

We love our Caregivers!

fight. conquer. cure.

 

 

Giving Thanks

It’s hard to believe that November is around the corner. And, like many of you, our family will join together to give thanks for all that is good in the world.

Faith, Family, Friends.

So much to be thankful for.

Please allow me to wish you a Happy Thanksgiving.

May you be blessed with love and peace.

“May You Live This Day

Compassionate of Heart,

Clear in Word,

Gracious in Awareness,

Courageous in Thought,

Generous in Love.”

From the poem “Matins” By John O’Donohue (2008)

 

 

 

 

 

A Slippery Slope Indeed – Reflections on Survivorship

A Slippery Slope Indeed

by Dan Dean

 

Dan & Amelia

At this year’s CancerCon in April—a national cancer conference for adolescents andyoung adults—I co-presented with Amelia Baffa and Dr. Jennifer Giesel a talk on the mental health challenges many cancer patients and survivors experience and the ways to treat them—TheSlippery Slope of Survivorship. Both Ameila and Jenn support the adolescent and young adult cancer population at University Hospitals with psychosocial care. Our presentation reminded me of a time early in my survivorship experience, two or three months after treatment ended in 2003.Several well-meaning friends suggested I see a therapist to help make sense of this intense, life-altering experience. In my family, therapy wasn’t necessarily stigmatized, but no one in my family used it before either, aside maybe from consulting our family priest. And so I didn’t really consider it as a tool, unless things got really bad.
I ended up working through all of challenges in survivorship without any kind of professional help. I read tons of books, tried different approaches to living in my new normal, and consulted with close friends and family about how to make sense of things. I did a lot of the heavy lifting in the three years after treatment ended and largely came out okay. But I was fortunate in that my biggest supporters—my mom and brother (and dog Lady)—did as much as they could to support my study in self-care and recovery. Close friends augmented their support and I leaned heavily upon them to get through.
Looking back, I realize that without them, I could have developed depression or PTSD or any number of ailments of the mind. Back then, I didn’t know the terms and what they meant, but I can see how my support systems’ unwavering commitment to my recovery more or less kept me on track and clear of more serious issues.
Not everyone is as lucky as I was. What I learned from Amelia and Jenn is how professional therapy, the way an individual processes cancer, and a support system all work together; my recovery leaned toward the latter two. For other people, that metric can be different; some many not have access to a professional or a support system, left on their own to figure things out.
Now that I am 14 years out from my cancer experience, I recommend the value of professional psychosocial support, even though my path was more solitary and self-guided. There are plenty of opportunities to take the baton a therapist hands off to you and wrestle with those challenges on your own.
The two therapies I wished I had that could have sped along parts of my recovery were 1) diaphragmic breathing and 2) using a thought log. Diaphragmic breathing is a great deep breathing technique that slows the mind down and calms a person’s physiology so they can actually do therapeutic work. Thought logs are a step-by-step way to break down recurrent, unhelpful thought patterns by challenging the assumptions behind them. They’re helpful not just for cancer patients, but anyone dealing with day-to-day life stress. (to download both tools, visit www.m-powerment.org/cancercon)
There’s no exact method a person can use to find their way from the end of treatment and into their new normal. The keys, in my opinion, to make it through are keeping on the path toward the new normal—even though it may take you down many side streets you don’t necessarily want to settle on—and not going at it alone.
I certainly tried many approaches and there were some I discarded early on and others that have stayed with me well beyond those initial weeks and months into survivorship. But as I engaged in an extended time of trial and error with all of those therapies, it was the constant support of my family and close friends that kept me on the path and into the life I enjoy today.

 

Dan Dean is a 13-year survivor of stage IV non-Hodgkin’s lymphoma. Recognizing that few resources exist geared specifically toward men affected by cancer, Dan founded M Powerment to bring men of all ages together to lead amazing, impactful lives after a cancer diagnosis. A lifelong Cleveland sports fan, Dan also plays basketball, kayaks, hikes, and likes to go trail running.

Dan is also a SGAYA Board Member.

The website for the therapies presented at CancerCon 2017 is www.m-powerment.org/cancercon

Dan’s professional sites: www.dan-dean.com and www.m-powerment.org

Lou G., Pat T., & Angie

NE Ohio Cancer Warriors and Friends

Here are some photos from this year’s #CANCERCON 2017 event. Many thanks to our donors who support the Steven G AYA Cancer Research Fund. This year you sent six cancer survivors to Stupid Cancer’s CANCERCON conference in Denver! FIGHT! CONQUER!! CURE!!!

Alex & Jennifer A.

Bryan, Kim & Steven

Amelia, Angie, & Jennifer

JOIN IN THE MARCH MADNESS FUN and HELP RAISE MONEY FOR CHILDHOOD CANCER

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It’s THAT time of year!

You are personally invited to play a bracket supporting

Childhood Cancer Research!

This year The Steven G AYA Cancer Research Fund and Win It Together have joined forces…

because let’s face it

WE ARE STRONGER TOGETHER!!!

Put your college hoop skills to the test by playing a bracket (or two) with us. $10 to play (per bracket). Bracket picks will start Selection Sunday (March 12th) and need to be in by the start of the tournament games (March 14th) by noon.

Grand Prize is $300

Second Prize is $150

Third Prize is $50

GET NOTIFIED WHEN BRACKETS ARE OPEN BY

Visiting  winittogether.org

So Sign Up and Play!

You can pay online, or if you prefer, mail your check made payable to the Steven G AYA Cancer Research Fund and mail to 1269 Overlook Road, Lakewood, Ohio 44107. The site will go live on the evening of SELECTION SUNDAY when you’ll be able to make your bracket selections.

As always, we appreciate your continued support as we

FIGHT!

CONQUER!!

CURE!!!

CANCER

 

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MOONSHOT 2017: TAKE A BITE OUT OF CANCER

HELLO FOLKS,

JUST A FRIENDLY REMINDER

THAT OUR

TAKE A BITE OUT OF CANCER FUNDRAISER

IS LESS

THAN

TWO WEEKS AWAY!!!

SO VISIT OUR WEBSITE  (AND CLICK ON EVENTS) TO ORDER TO YOUR TICKETS ON-LINE!

HERE ARE SOME OF THE ITEMS UP FOR SILENT AUCTION

RESORT VACATIONS

GOLF OUTINGS

PRIME INDIAN TICKETS

PRIME CAVS TICKETS

CLEVELAND PLAY HOUSE TICKETS

CLEVELAND ORCHESTRA TICKETS

TITO’S VODKA GIFT BASKET

JEWLERY

CHINCHILLA SCARF

ART

LADIES CLOTHING & ACCESSORIES

CAVS MEMORABILIA

ROMANTIC DINNERS

BOWLING PARTIES

BASKETS GALORE!

SOMETHING FOR EVERYONE!

 

join-us-copy

REMEMBER

WE WILL NOT REST UNTIL THERE IS A CURE

FIGHT CONQUER CURE!!!

Childhood Cancer Researchers Receive Award from Steven G Fund!

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CAC2 CONFERENCE Speakers and Participants

CAC2 Pediatric Cancer Research Conference – 2016

“From Bench to Bedside and Beyond:

Uniting the childhood cancer community

in a collaborative forum to advance research for childhood cancers”

Cold Spring Harbor Laboratory, Long Island, NY

October 30 – November 2, 2016

The Steven G AYA Cancer Research Fund was honored to award $500 to the following scientists for their work in Childhood Cancer Research:

Angela Waanders (center) from Children's Hospital of Philadelphia. Research Title: Cavatica: empowering research with a pediatric genomic cloud.

Angela Waanders, M.D., M.P.H., Assistant Professor, NeuroOncology Program (in center) from Children’s Hospital of Philadelphia. Research Title: Cavatica: empowering research with a pediatric genomic cloud.

 

Sunitha Rangaraju,Ph.D Precision Medicine Liaison Global Medial & Diagnostic Affairs for IGNYTA. Research Title: Pediatric phas 1/1b dose-finding trial of entrectinib with expansion into patients with primary brain tumors, neuroblastoma, NTRK, ROS1, or ALK fusions.

Sunitha Rangaraju,Ph.D Precision Medicine Liaison Global Medial & Diagnostic Affairs for IGNYTA. Research Title: Pediatric phase 1/1b dose-finding trial of entrectinib with expansion into patients with primary brain tumors, neuroblastoma, NTRK, ROS1, or ALK fusions.

 

 

 

 

 

 

 

 

 

FIGHT! CONQUER! CURE!!!

TALBOTS AND STEVEN G WORK TOGETHER-COME CHECK US OUT!

TALBOTS TO CONTRIBUTE 10% OF YOUR PURCHASE TO SGAYA CANCER FUND!!!

JOIN US ON THURSDAY, SEPTEMBER 29TH, 2016

5 PM TO 8 PM

Where?

TALBOTS WOMEN’S CLOTHIERS 

140 MAIN STREET

CROCKER PARK

WESTLAKE, OHIO 44145

Help us

fight

conquer

cure cancer!!

 

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CANCERCON 2016 – BY DAN DEAN

CancerCon is a set of two paradoxes:

the conference operates likes a living,

breathing pair of theater masks

and you talk more than normal,

but need fewer words to do so.

If you’re not familiar with it, CancerCon is a three-day cancer jam held in Denver, bringing together over 600 adolescent and young adult (AYA) fighters and survivors from around the country to attend seminars and network with those who share their same diagnosis. The hallways, breakout rooms and lobby buzz with the sounds of old friends catching up and new ones forming bonds that circumvent time and geography.

At times, the conference can feel overwhelming: connections are being made and rekindled, helpful information and stories are swapped between patients and survivors, attendees are dealing with aspects of their recovery for the first time, while also finding the community and resources to continue their healing. Emotions run high and deep.

Through every encounter, whether shared in joy or sadness, is a sense of relief. For the first time, many patients and survivors don’t have to give their 15-minute cancer back story. There’s not the urge or need to explain their journey that people on the outside don’t quite understand. Over time, cancer fighters and survivors become practiced storytellers, explaining gaps in employment and dating and taking outsiders on a CliffsNotes tour of their treatment and recovery.

In that sense, AYAs can feel alone, separated from their peer group and friends at home. When social dynamics change so starkly into the ascension of adulthood, throwing a cancer diagnosis in the mix can feel isolating and confusing. The same challenges that cause a person to feel alienated in one circle are embraced and accepted at CancerCon. No longer is the cancer preamble needed.

Instead, patients and survivors jump into deep conversations right away, much in the same way two old friends catch up instantaneously. About midway through a conversation you realize how amazing it is to form a bond with someone you met only 20 minutes ago who lives seven states away.

There’s no way to neatly encapsulate the range of emotions at CancerCon. It’s unique to both laugh and cry about the same experience. When you say the three words, “I had cancer,” everyone gets you. And those things are worth the trip to Denver.

Dan Dean

May 25th, 2016

Dan is an actor, writer, advocate, survivor and we are lucky to have him as a board member.

You can check out his blog at: http://www.cancer-youngadult.org

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LET’S SAVE A LIFE – BMT DRIVE APRIL 17TH

Hello friends,

Most of you are familiar with Steve’s journey through cancer and the fact that he had a LIFE SAVING BONE MARROW TRANSPLANT. And many of you did register with the Be The Match Foundation in hopes of helping Steven.

BUT SOME OF YOU DIDN’T….PROBABLY BECAUSE YOU WERE TOO YOUNG or too busy…

SO IF YOU ARE 18 – 44 YEARS OLD… HERE IS YOUR CHANCE TO SAVE A LIFE!!!

Our friend Joanne Filina was first diagnosed at 35 years old with Leukemia. She went into remission but it came back a second time. She is in remission again. BUT her doctors are telling her that it might come back again…and soon.

PRETTY FRIGHTENING DON’T YOU THINK?

So here is your chance to help her and others like Joanne.

JOIN THE REGISTRY.

IF YOU ARE A MATCH YOU WILL BE NOTIFIED BY TELEPHONE.

IF YOU ARE CONTACTED…PLEASE SAY YES TO BEING FURTHER TESTED.

AND THEN IF YOU ARE STILL A MATCH YOU JUST MIGHT GET THE CHANCE TO SAVE A LIFE.

YOU WILL BE INCONVENIENCED FOR A COUPLE OF DAYS. AND THAT’S IT!!!

IF YOU NEED MORE CONVINCING TO HELP OUT…THEN HERE IS A QUOTE FROM STEVEN’S DONOR:

“I am honored to have an opportunity to help save a life. When I was first notified that I was a match I didn’t tell anyone until it was confirmed I am a match for someone in need. 

So I mentioned it to my wife…she didn’t hesitate for a moment. I am a parent just like you with three boys… and I couldn’t imagine someone turning down a boy with a full life in front of him….Please know this, you, your husband and your son Steven do not owe me a single thing no even a debt of gratitude, what I did was for myself, and the act in itself was self gratifying. I think you all are great people, and if anything, it is I who owes you and not the other way around. Please keep doing what you are doing in helping other cancer patients and may God help and Bless you. 

With warm regards,  A…..” [Note from Angie: I am maintaining our donor’s anonymity because I did not ask him if I could share this message on the website.]

SO JOIN US 

SUNDAY, APRIL 17TH, 2016 – NOON – 4:00 PM

ST. DEMETRIOS CULTURAL CENTER – FELLOWSHIP ROOM

22909 CENTER RIDGE ROAD

ROCKY RIVER, OHIO 44116

THERE WILL BE A RAFFLE TO RAISE FUNDS FOR “BE THE MATCH”

REFRESHMENTS WILL ALSO BE AVAILABLE.

QUESTIONS:

CONTACT ANGIE: Angie@fightconquercure.com

OR TONYA DAVIS

tdavis2@nmdp.org

for more information

or to make a donation visit:

http:www.bethematchfoundation.org/goto/jojofilina

or to download more information

Joanne Filina Event Flier (1)2016 FAQ and Responses

 

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YOU DID IT!!!

thanku low res

 

Dear Friends,

Thank you for your generous support. Our event: TAKE A BITE OUT OF AYA CANCER was a HIT!!! We raised over $33,000!!! OUR GREATEST AMOUNT EVER!!

-SPECIAL THANKS TO-

OUR SPONSORS

Michael Catanzarite – Manual & Heidi Glynias – David & Dena Grubb – George Giallourakis – Lou & Ann Frangos – Dr. & Mrs Antonios Paras – Philoptochos Society of St. Demetrios Greek Orthodox Church – Bryan & Deborah Rogan – Bellwether Enterprise – James Doyle – John & Judith Kackloudis – George & Laura Kappos – William Weir

-OUR DONORS-

Michaeline & David Hillie – George & Laura Kappos – Paul Porisch –Anonymous – Scott & Kimberly Williams – James Doyle – Heidi Glynias – Dr Mark Cain & Dr. Catherine Shaw – Leslie Orendorf – Evanthia Pallam – Bob & Kathy Steadley – Maribeth Famiano – Alex & Ricka Jelepis – Irene Pontikos – Moira Osborne – Allen & Agnes Arabian – Deborah Webster – Tony & Sue George – Marti & Susan Clancy – Ray Fogg Jr. – Linda & Manuel Glynias – Joseph Grace – Richard & Anna Warren – Karen & John Kackloudis – Thomas & Leslie Basista – Dr. Jeffery Auletta –  Michael Kriston -Don & Cindy Sears – Jock Callander – Lynne Varney – Gayle Knapp – Shannon Viets – Elyce Wozniak – William Weir – Jeremy Dancy – Diane Mares – Jim Voiklis – Lou Frangos – Shannon Fitzgerald – Peter Restifo – John & Betty Poulos – Elaine & Claude Campbell – Toula Pyros – Sue Giallourakis – Mary Diamond – Michelles – Linda Damiani – Jean & Nick Hillman – Costa & Maria Mougianis – Anthony Santarelli – Gerald Largent – Kriaris Family – Cleveland Public Theater – Hot Diggity Dog – Jan Spooner – Helene & Eleni Santarelli – Megan Diamond – Stephanie Zavatchen – Dan Giallourakis – Tim & Barb Hughes – Khaled Fawzy – Cheryl & Angelo Mango – 

-CORPORATE SPONSORS-

CR Construction Company – Hemingway Development – Kretz Family Foundation – Bellwether Enterprise – Darice Inc. – St. Demetrios Philoptochos – Genjed Inc. – Jennings Freeway Industrial Park – Charles Scott Salons, Inc – Red Tail Golf Club – #1 Express Care Wash -Porter Wright Law Firm – Official FitnessPro

Lake Erie Monsters – Rob & Trish Risman – Cleveland MetroParks – Charles Scott Salon & Spas – L’Oreal – Lolly the Trolly – Cleveland Orchestra – Red Tail Golf Club – Wine Styles – Fusions Salon – Dick’s Sporting Goods – Walmart – Giant Eagle – Mitchell’s Ice Cream – Oliver & Henry’s Pets – Inner Bliss Yoga Studio – Spevock Nautical Lanes – Fra Angelica – Walmart – White Oaks – Kathy’s Kolacke’s – Hospitality Management – Mediterranean Imported Foods – St. Panteleimon Ministry – Cleveland Clinic Aesthetics – Cleveland Browns – Cleveland Cavs – Fairview Lanes

-WELLNESS PACKAGE CONTRIBUTORS-

James & Connie Giallourakis – Dave Box & Sarah Cachat – Tony & Jean Chiviles and Family – Mike Cachat & Melanie Menendez

-OUR PHOTOGRAPHER-

Z PHOTOGRAPHY STUDIOS

KARA ZOLLOS

-OUR CATERER-

COYNE CATERING

TRISH & JIM COYNE

-OUR DJ-

GEORGE GOUNTIS

-OUR SPEAKER-

AMELIA BAFFA, RN, MSN

-OUR ENERGIZED COMMITTEE-

Tina Poulos, Chair

Nick Giallourakis, MC

Jean & Nick Hillman – Elaine & Claude Campbell – Mary & Jim Diamond – Toula & Nick Pyros –  Jan Spooner –  Elpida & Peter Kosmidis – Betty & John Poulos – Becky Giallourakis – Anthony & Helene Santarelli – Lee Santarelli – Fr. James & Presbytera Goldie Doukas – Donna Vassos – Dan Dean – Acia Shaheen

CJ Mosure – WebMaster

-OUR  WONDERFUL VOLUNTEERS-

   Camilla Giallourakis, Catherine Giallourakis, Dan Dean, Shannon FitzGerald,  Irene Steffas, Helene Santarelli, Melanie Baur, Sophia Asmis, Mary Diamond, Jean Hillman, Steve Alex, Maria Alex, Phil & Alysse Giallourakis, Myrta Holden, Edna Oroczo, Nick Kariotakis, Becky Giallourakis, Elpida Kosmidis, Gerald Largent, Jan Spooner, Betty & John Poulos and Luke Morrison

SGAYA BOARD MEMBERS

Mary & Jim Diamond

Shannon FitzGerald

Dan Dean

Harry Giallourakis

Angie Giallourakis

Becky Giallourakis

Phil Giallourakis

Jean Hillman – Fundraising

Alysse Shaheen Giallourakis – Legal Advisor

Dr. Jeffery Auletta – Medical Advisor

Steven Giallourakis – The reason we are here

FIGHT! CONQUER! CURE!!!

THANK YOU!!!

Harry & Angie Giallourakis