Community Support

ARE YOU BORED?

I have noticed that recently a few folks have unsubscribed to our newsletter (shock!) and after some reflection –

I figured out why….

Life around our homestead has been peaceful, well sort of…Let’s face it, we ARE HAVING A FUNDRAISER THIS COMING WEEKEND.

But – Steven is well.

Thank God.

Boring.

So, lately my messages have been about research, people,

special events like CUREFEST

CANCERCON

and our awesome

Be Calm & Stay Strong Wellness Program.

So, yes life is boring – and isn’t that grand???

But please remember that there are hundreds of families out there

who would like to be bored.

Their children are fighting for their lives.

Let’s pray for them.

Let’s send them love and support.

And, let’ s support

Childhood, Adolescent and Young Adult Cancer Research. 

Remember, we will not rest until there is a Cure!

(not so boring after all…)

Being Thankful This Holiday Season

IT REALLY DOESN’T MATTER WHERE YOU LIVE

TIS THE SEASON

TIS THE SEASON TO BE THANKFUL

 TO BE MINDFUL

 TO BE GRATEFUL

…AND TO REMEMBER THOSE LOVED ONES

AND FRIENDS GONE FROM US.

PEACE TO ALL OF YOU!

MERRY CHRISTMAS

HAPPY HANUKKAH

JOYOUS KWANZAA

BLESSINGS TO YOU AND YOURS THIS HOLIDAY SEASON!

Thankfulness and Gratitude – OUR TEN YEAR ANNIVERSARY

HELLO FRIENDS

I CAN’T BELIEVE THAT IT IS NOVEMBER

THANKSGIVING IS NEXT WEEK,

AND IN TWO MONTHS WE WILL BE HOSTING OUR TENTH ANNUAL FUNDRAISER.

THE LAST TEN YEARS HAVE BEEN FILLED WITH GREATNESS AND SORROW.

DESPITE THE LOSS OF LOVED ONES AND DEAR FRIENDS

WE REMAIN RESOLUTE IN PROCLAIMING OUR DEEPEST THANKS TO ALL OF YOU.

HENCE A NEED TO CELEBRATE ALL OF YOU

AND TO

CELEBRATE LIFE!

I HOPE YOU WILL JOIN US

AS WE

TAKE A BITE OUT OF CANCER

Saturday, January 26, 2019

7:00 – 11:30 pm.

admission: $45

St. Demetrios Cultural Center

22909 Center Ridge Road

Rocky River, Ohio 44116

for more information contact:

angie@fightconquercure.com

or visit our website www.fightconquercure.org

to purchase your tickets or make a donation.

All funds raised go directly to our many programs –

Wellness, Social Support, Education and Research.

We are all volunteers!

WE WILL NOT REST UNTIL THERE IS A CURE

FIGHT CONQUER CURE!!!

AYA? What does THAT mean?

AYA?


YOU MAY BE WONDERING WHY ON EARTH I AM ASKING SUCH A QUESTION.

WHAT IS AYA?

IS THE WORD PRONOUNCED “AHYA”? …NOPE.

AYA MEANS FOR ADOLESCENT AND YOUNG ADULT. 

AYA REPRESENTS A POPULATION OF INDIVIDUALS FROM 15 YRS TO 40 YRS OLD.

AYA CANCER REPRESENTS A POPULATION OF INDIVIDUALS STRICKEN WITH A TYPE OF CANCER THAT IS OFTEN VERY AGGRESSIVE, LIFE THREATENING AND LIFE ALTERING.

AYA CANCER REPRESENTS 70,000 YOUNG PEOPLE THAT ARE DIAGNOSED EVERY YEAR HERE IN THE USA! 

AYA CANCER OFTEN MEANS THAT THESE YOUNG PEOPLE GET THE RAREST CANCERS AND THE MOST DIFFICULT TO TREAT AND CURE.

AYA CANCER SURVIVORS OFTEN ARE AFFLICTED WITH SECONDARY EFFECTS THAT WILL ALTER THE COURSE OF THEIR LIFE AND PRODUCTIVITY IN OUR SOCIETY.

WHAT CAN YOU DO ABOUT IT?

HELP US GET THE WORD OUT!

SUPPORT OUR FOUNDATION!

AS WE REACH OUT INTO THE COMMUNITY

AND HELP OUR YOUNG WARRIORS THROUGH

EDUCATION, ADVOCACY AND RESEARCH!

-REMEMBER-

WE WILL NOT REST UNTIL THERE IS A CURE!

FIGHT!

CONQUER!

CURE!!!

 

PS.

THIS WEEK IS AYA CANCER AWARENESS WEEK.

#FIGHTCONQUERCURE

 

Giving Thanks

It’s hard to believe that November is around the corner. And, like many of you, our family will join together to give thanks for all that is good in the world.

Faith, Family, Friends.

So much to be thankful for.

Please allow me to wish you a Happy Thanksgiving.

May you be blessed with love and peace.

“May You Live This Day

Compassionate of Heart,

Clear in Word,

Gracious in Awareness,

Courageous in Thought,

Generous in Love.”

From the poem “Matins” By John O’Donohue (2008)

 

 

 

 

 

A Slippery Slope Indeed – Reflections on Survivorship

A Slippery Slope Indeed

by Dan Dean

 

Dan & Amelia

At this year’s CancerCon in April—a national cancer conference for adolescents andyoung adults—I co-presented with Amelia Baffa and Dr. Jennifer Giesel a talk on the mental health challenges many cancer patients and survivors experience and the ways to treat them—TheSlippery Slope of Survivorship. Both Ameila and Jenn support the adolescent and young adult cancer population at University Hospitals with psychosocial care. Our presentation reminded me of a time early in my survivorship experience, two or three months after treatment ended in 2003.Several well-meaning friends suggested I see a therapist to help make sense of this intense, life-altering experience. In my family, therapy wasn’t necessarily stigmatized, but no one in my family used it before either, aside maybe from consulting our family priest. And so I didn’t really consider it as a tool, unless things got really bad.
I ended up working through all of challenges in survivorship without any kind of professional help. I read tons of books, tried different approaches to living in my new normal, and consulted with close friends and family about how to make sense of things. I did a lot of the heavy lifting in the three years after treatment ended and largely came out okay. But I was fortunate in that my biggest supporters—my mom and brother (and dog Lady)—did as much as they could to support my study in self-care and recovery. Close friends augmented their support and I leaned heavily upon them to get through.
Looking back, I realize that without them, I could have developed depression or PTSD or any number of ailments of the mind. Back then, I didn’t know the terms and what they meant, but I can see how my support systems’ unwavering commitment to my recovery more or less kept me on track and clear of more serious issues.
Not everyone is as lucky as I was. What I learned from Amelia and Jenn is how professional therapy, the way an individual processes cancer, and a support system all work together; my recovery leaned toward the latter two. For other people, that metric can be different; some many not have access to a professional or a support system, left on their own to figure things out.
Now that I am 14 years out from my cancer experience, I recommend the value of professional psychosocial support, even though my path was more solitary and self-guided. There are plenty of opportunities to take the baton a therapist hands off to you and wrestle with those challenges on your own.
The two therapies I wished I had that could have sped along parts of my recovery were 1) diaphragmic breathing and 2) using a thought log. Diaphragmic breathing is a great deep breathing technique that slows the mind down and calms a person’s physiology so they can actually do therapeutic work. Thought logs are a step-by-step way to break down recurrent, unhelpful thought patterns by challenging the assumptions behind them. They’re helpful not just for cancer patients, but anyone dealing with day-to-day life stress. (to download both tools, visit www.m-powerment.org/cancercon)
There’s no exact method a person can use to find their way from the end of treatment and into their new normal. The keys, in my opinion, to make it through are keeping on the path toward the new normal—even though it may take you down many side streets you don’t necessarily want to settle on—and not going at it alone.
I certainly tried many approaches and there were some I discarded early on and others that have stayed with me well beyond those initial weeks and months into survivorship. But as I engaged in an extended time of trial and error with all of those therapies, it was the constant support of my family and close friends that kept me on the path and into the life I enjoy today.

 

Dan Dean is a 13-year survivor of stage IV non-Hodgkin’s lymphoma. Recognizing that few resources exist geared specifically toward men affected by cancer, Dan founded M Powerment to bring men of all ages together to lead amazing, impactful lives after a cancer diagnosis. A lifelong Cleveland sports fan, Dan also plays basketball, kayaks, hikes, and likes to go trail running.

Dan is also a SGAYA Board Member.

The website for the therapies presented at CancerCon 2017 is www.m-powerment.org/cancercon

Dan’s professional sites: www.dan-dean.com and www.m-powerment.org

Lou G., Pat T., & Angie

NE Ohio Cancer Warriors and Friends

Here are some photos from this year’s #CANCERCON 2017 event. Many thanks to our donors who support the Steven G AYA Cancer Research Fund. This year you sent six cancer survivors to Stupid Cancer’s CANCERCON conference in Denver! FIGHT! CONQUER!! CURE!!!

Alex & Jennifer A.

Bryan, Kim & Steven

Amelia, Angie, & Jennifer

LET’S SAVE A LIFE – BMT DRIVE APRIL 17TH

Hello friends,

Most of you are familiar with Steve’s journey through cancer and the fact that he had a LIFE SAVING BONE MARROW TRANSPLANT. And many of you did register with the Be The Match Foundation in hopes of helping Steven.

BUT SOME OF YOU DIDN’T….PROBABLY BECAUSE YOU WERE TOO YOUNG or too busy…

SO IF YOU ARE 18 – 44 YEARS OLD… HERE IS YOUR CHANCE TO SAVE A LIFE!!!

Our friend Joanne Filina was first diagnosed at 35 years old with Leukemia. She went into remission but it came back a second time. She is in remission again. BUT her doctors are telling her that it might come back again…and soon.

PRETTY FRIGHTENING DON’T YOU THINK?

So here is your chance to help her and others like Joanne.

JOIN THE REGISTRY.

IF YOU ARE A MATCH YOU WILL BE NOTIFIED BY TELEPHONE.

IF YOU ARE CONTACTED…PLEASE SAY YES TO BEING FURTHER TESTED.

AND THEN IF YOU ARE STILL A MATCH YOU JUST MIGHT GET THE CHANCE TO SAVE A LIFE.

YOU WILL BE INCONVENIENCED FOR A COUPLE OF DAYS. AND THAT’S IT!!!

IF YOU NEED MORE CONVINCING TO HELP OUT…THEN HERE IS A QUOTE FROM STEVEN’S DONOR:

“I am honored to have an opportunity to help save a life. When I was first notified that I was a match I didn’t tell anyone until it was confirmed I am a match for someone in need. 

So I mentioned it to my wife…she didn’t hesitate for a moment. I am a parent just like you with three boys… and I couldn’t imagine someone turning down a boy with a full life in front of him….Please know this, you, your husband and your son Steven do not owe me a single thing no even a debt of gratitude, what I did was for myself, and the act in itself was self gratifying. I think you all are great people, and if anything, it is I who owes you and not the other way around. Please keep doing what you are doing in helping other cancer patients and may God help and Bless you. 

With warm regards,  A…..” [Note from Angie: I am maintaining our donor’s anonymity because I did not ask him if I could share this message on the website.]

SO JOIN US 

SUNDAY, APRIL 17TH, 2016 – NOON – 4:00 PM

ST. DEMETRIOS CULTURAL CENTER – FELLOWSHIP ROOM

22909 CENTER RIDGE ROAD

ROCKY RIVER, OHIO 44116

THERE WILL BE A RAFFLE TO RAISE FUNDS FOR “BE THE MATCH”

REFRESHMENTS WILL ALSO BE AVAILABLE.

QUESTIONS:

CONTACT ANGIE: Angie@fightconquercure.com

OR TONYA DAVIS

tdavis2@nmdp.org

for more information

or to make a donation visit:

http:www.bethematchfoundation.org/goto/jojofilina

or to download more information

Joanne Filina Event Flier (1)2016 FAQ and Responses

 

223091_249388515398597_6010225000835250782_n

ARE YOU COMING? WE NEED YOUR SUPPORT!

Hello Friends,

It is not in my nature to be bossy (ha) or demanding (double ha) but we are getting down to the wire. Our annual fundraiser TAKE A BITE OUT OF CANCER – will take place in  TWO WEEKS!!!

Uncle_Sam_(pointing_finger)

Please remember that your donations go directly to support local PAYA (pediatric, adolescent and young adult) cancer research at Case Medical School’s Huang PAYA Cancer Research Lab (www.huanglab.com),  and adolescent and young adult cancer patients and families right here is NE Ohio!!!

This year we distributed over 40 Wellness bags (which cost approximately $150 each) to YA Cancer Patients while in Treatment

We supplied fresh fruit and yogurt for Smoothie Day (bi-weekly) for young cancer patients while in treatment.

We supplied products for “BEAUTY DAY” which uplifted the morale of moms and patients by providing make-up and beauty hints, hand massages and manicures (I never thought massaging another’s hands could be so gratifying.)

We sent four young adult patients  from NE Ohio to CANCER CON 2015  in Colorado.

Also, just last week we sent a $250 check to support a dad and young son with cancer to the Annie Appleseed Project Conference. Annie Appleseed focuses on wellness through Integrative Oncology methods. You can visit their website at www.annieappleseedproject.org.

PLEASE HELP US WITH OUR MISSION

WE WILL NOT REST UNTIL THERE IS A CURE!!!

FIGHT! CONQUER! CURE!!!

take a BITE OUT OF CANCER!!

Saturday, January 23rd, 2016

event-logo (1)7 – 11 pm

23023 Center Ridge Road

Rocky River, Ohio 44116

Cost: $40

Can’t attend?

Well, feel free to make a cash donation or donate an auction item. Email me at info@fightconquercure.com for more info:)

WE ARE READY FOR YOU: TAKE A BITE OUT OF CANCER IS ON!!!

WE HAVE A FUN FILLED EVENING PLANNED SO I HOPE YOU CA2015 auction promorN JOIN US.

LET’S FACE IT, WHERE CAN YOU GO, PAY $40 AND HAVE DINNER, WINE, BEER or SODA, COFFEE AND GREEK DESSERTS…PLUS MUSIC, DANCING, VISIT WITH FRIENDS,…AND HAVE AN OPPORTUNITY TO WIN SOME FABULOUS PRIZES???

WAIT UNTIL YOU SEE OUR AUCTION ITEMS!

HERE ARE A SAMPLE OF ITEMS WE ARE AUCTIONING OFF: VACATION DESTINATIONS, LOGE SEATING, JEWELRY, AUTOGRAPHED FOOTBALLS, BASEBALLS, AND BASKETBALLS ALL FROM CLEVELAND!!!  HAIR AND SPA TREATMENTS, ART WORK, GIFT CARDS TO A NIGHT ON THE TOWN, YOGA, PERSONAL TRAINERS, ICE CREAM, GOLF, THEATER TICKETS,  COSMETICS TO BEAUTIFY AND MAKE YOU LOOK YOUNGER:)

SO JOIN US THIS SATURDAY, JANUARY 24th, 2015.

7 PM – 11:30 PM

 ST. DEMETRIOS CULTURAL CENTER

22909 CENTER RIDGE ROAD

ROCKY RIVER, OHIO 44116.

ALL PROCEEDS GO TO PAYA* CANCER RESEARCH, FUTURE PAYA CANCER RESEARCHERS, PAYA CANCER PATIENTS AND THEIR FAMILIES.

WE ARE A VOLUNTEER ORGANIZATION SO PLEASE JOIN US THIS SATURDAY!

QUESTIONS? CONTACT ANGIE AT: INFO@FIGHTCONQUERCURE.COM.

ORDER TICKETS ON-LINE…ON OUR WEBSITE: FIGHTCONQUERCURE.ORG

EACH YEAR 70K YOUNG ADULTS ARE DIAGNOSED WITH CANCER.

EVERY DAY 23 CHILDREN UNDER 18 YRS ARE DIAGNOSED WITH CANCER.

AREN’T YOU TIRED OF HEARING THESE HORRID STATISTICS?

PLEASE HELP US AS WE FIGHT! CONQUER! CURE!! CANCER!!!

*PAYA  cancer patients = pediatric, adolescent, and young adults = too many young people suffering = we need better research to treat and cure!

SEPTEMBER IS CHILDHOOD CANCER AWARENESS MONTH

 

 

Gold-ribbon

HELLO FRIENDS,

I AM WONDERING IF YOU ARE AWARE THAT SEPTEMBER IS CHILDHOOD CANCER AWARENESS MONTH?

WE WOULD LIKE YOU TO PAUSE FOR A MOMENT AND JOIN US AS WE HONOR OUR YOUNGEST OF CANCER WARRIORS.

WE HAVE LOST TOO MANY CHILDREN, ADOLESCENTS AND YOUNG ADULTS.

OUR CHILDREN HAVE SUFFERED GREATLY…

WE NEED TO REMIND OUR LEGISLATORS THAT OUR CHILDREN DESERVE THEIR ATTENTION…

WE NEED TO REMIND OUR GENEROUS DONORS ($$$) THAT THEIR MONEY WILL HELP PAY FOR IMPORTANT, LIFE SAVING RESEARCH!

WE NEED TO REMIND EVERYONE THAT WHEN YOUR CHILD IS DIAGNOSED WITH CANCER YOUR LIFE WILL BE FOREVER CHANGED!!!

JOIN US SEPTEMBER 19-21, 2014 AS WE WALK ON WASHINGTON DC FOR CUREFEST TO HONOR AND REMEMBER ALL OUR CHILDHOOD, ADOLESCENT AND YOUNG ADULT CANCER WARRIORS!

FOR MORE INFORMATION VISIT: CUREFESTDC.ORG

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