CHILDHOOD CANCER

Washington DC = WOW! The Raulerson’s Advocate For Childhood Cancer

Meet the Raulerson’s!

Thanks to our donors Micheal, Tammy and Tacey were able to attend the Alliance for Childhood Cancer’s Advocacy Day this past April!

It is people like the Raulerson’s who continue to share the responsibility of making sure our legislators know about the serious impact childhood cancer has on youngsters and their families.

It goes without saying that good solid Research and long term Survivorship Programs are needed…

And now Tammy (mom) Raulerson:

Washington, D.C.=WOW!

As usual, our trip began with its our normal hiccups and bumps.  Also, as usual, God had it all worked out.

Our first flight got cancelled and we were rescheduled to fly out of Houston in the evening.  That meant us arriving in D.C. very late at night.  In fact, we were so late the hotel shuttle had stopped running.

We left Houston in 80° weather and arrived in DC to 47° weather!  Thankfully, I had packed our jackets and travel blankets in our carryon bags!

As most of you know, our family rarely goes anywhere without making new friends.  Having been a teacher of world geography, I am curious about learning more about people when I hear accents.  Of our 5 cab rides while in DC, we learned more about Afghanistan, Ethiopia, Laos and Sierra Leone.  It was fun to make conversation with the drivers.

Even though we got very little sleep due to such a late arrival, our Tuesday training was great!  It was hard to settle down and sleep because we knew 2 of our very best friends were in the room next to us.  They came to represent South Carolina.  It had been 2 years since we had seen each other, so we were so excited to be reunited Tuesday morning!!

Not only did we meet important leaders in childhood cancer awareness and research, we also heard from vital leaders in health care organizations.  We especially enjoyed getting to know so many from other states and from Texas!  Not that I am biased or anything, but our contingency from Texas was exceptional!

One of the ladies and I got to talking about where we were from.  She grew up in Dallas and still lives there.  However, in our discussion we realized she was born in MY hometown!  Some of her family still lives there.  As we were talking, I realized I know several members of her family.  What a small world!

One of the members of our team was a 12-year-old and his dad from Houston.  As we talked, he and Tacey realized they had the same oncologist and had several common friends.  Another member was a senior biology student at A&M.  We also had friends in common with him.  Again, it felt like a small world.

Training was so informative, interesting and important.  We were updated on all the imperative points and notes we needed to share with the legislators.

After traveling and getting to the hotel in the early morning hours, the day began to be a little long and overwhelming for Tacey during lunch.  She needed a break and went up to the room to rest.  Just as I was about to text her to come back to the training, she sent me a text letting me know she was headed back down.

This may not seem like much to a lot of you, but to me it was huge.  In a very unfamiliar environment, a large city full of strangers, etc., Tacey took the initiative to leave the hotel room, find the elevator and return to training without us assisting her.  She is very independent and self-reliant, but being in an environment like this can be unsettling to most! [Editor’s Note: Tacey has a visual impairment.]

After a long day of training, we and other families were treated to dinner by St. Baldrick’s Foundation.  Tacey has been an ambassador/honored child for St. Baldrick’s since 2007.  It is an amazing foundation.

Wednesday was our big day on Capitol Hill.  It started early with the bus ride to the Hill and a group photo.  We took a few minutes to take small group photos, too.  Then, we took off to our first meeting.

While waiting to get through security at one of the building of House offices, we saw Secret Service rush to set up a perimeter as Secretary of State Pompeo exited a car and entered the building.  Later in the day, we were asked to step aside in a hallway of another House building.  As we moved to the side of the hallway, we saw security escorting the Joint Chiefs of Staff.  Yes, these things were surreal.  They also happen so quickly you don’t think to grab your phone to snap photos!

Our day was long.  We walked over 5 miles between House and Senate buildings.  At one point, Tacey walked barefoot from one of the Senate buildings to one of the House buildings.  We were rushing to get to our next meeting, so once again I didn’t get a photo!  LOL

Thankfully, we had a lobbyist from DC helping us get from one place to another.  At one point, I think we took some short-cuts in the tunnels under the House buildings that weren’t necessarily open to the public!  LOL

We met with legislative leaders from 5 of our Texas congressmen’s offices.  Everyone we met was very gracious, listened and gave us great hope for the future of childhood cancer research.

Hearing Tacey and the other 2 childhood cancer survivors in our group share their stories with these critical people was so moving for all of us, but especially for those we were meeting.  We also had 2 moms who shared the stories of the passing of their children from childhood cancer and its complications.  One particular story brought my emotions to the surface as I realized we had been in the hospital and on the cancer floor the day the young girl passed.  I vividly remember praying for the family at the time!

Being part of this type of advocacy and awareness was energizing, inspiring and empowering!  It was an incredible experience we will never forget!  It was also something we want to continue!

We wrapped up a successful day with pizza in the hotel room with our friends.  It is a good thing it was in the room closest to the elevators and our room on the other side since we laughed and talked and laughed until after midnight!

We had plans to visit the Holocaust Museum and the National Zoo the next day, but Tacey’s health decided to give us a scare in the middle of the night.  Everything turned out to be okay, but our plans had to be postponed until the next time we get to travel to DC.

It is hard to put into words the true effect of the trip on our family.  It was surreal, empowering, encouraging, inspiring and so much more.  We are so thankful we made the trip and participated in something so monumental!

Without the very generous help from family, friends and cancer organizations this trip would not have been possible.  Itis only because of so many people’s help it happened.

Just to remind everyone of God’s hand in everything… We had some emergency issues come up the week before we left.  Those emergencies used all of our savings and what we had set aside in case our expenses were over what we estimated.  We had a debit card with our money for food and other incidentals.  We returned home with $0.61 on that card!  As always, God was in control!

BELATED THANK YOU TO OUR SUPPORTERS – 10 YEARS OF GRATITUDE

TAKE A BITE OUT OF CANCER

10 YEARS OF GRATITUDE

A HUGE SUCCESS!

PLEASE forgive my tardiness in thanking all of you. On January 26, 2019, we held our annual fundraiser where over $35,ooo was raised – THANKS TO YOUR HELP!

INDEED – IT DOES TAKE A VILLAGE…

I have so many people to thank – and please note that each of you will be receiving a personal letter – but I wanted to list out friends, family and sponsors for the record.

OUR SPONSORS:

The Char and Chuck Fowler Family Foundation

THRIVE CAUSEMETICS

Manual & Heidi Glynias

George and Jan Giallourakis

CR Construction

Dave and Dena Grubb

Ray Fogg, Jr.

Forst Foundation

Lou & Ann Frangos

John & Betty Poulos

John & Judith Kackloudis

William & Susan Weir

Tony & Jeanne Paras

Tony & Jean Chivilis

Taylor & Courtney Hawkins

Costa & Maria Mougiannis

Astoria Cafe and Market (George Kantzios)

Fairview Lanes

Bella Cappella Salon

Jeff & Christina Musser

Steve & Maria Alex

Paul & Christine Venizelos

Dimitrios & Deena Tsatiris

Sts. Constantine & Helen Philoptochos

Jan Layne

Kara Falkowski

Dick and Anna Warren

Lilly & John Anitas

Jim & Heidi Voiklis

Elyce Wozniak

Sue Giallourakis

St. Demetrios Philoptochos

Nick & Camilla Giallourakis

Estelle Callas

Jim Sofianos

Dr. & Mrs. Jeff Auletta

Dr. Debbie Webster

Steven Giallourakis

Brad & Alexa Ryan

Rudy & Carol Najda

Mary Beth Famiano

Mikie & David Hillie

Maria & Nick Mavroidis

Susan Donovan & Bill Reeder

Mr. & Mrs. Stuart Kline

Bryan & Debbie Rogan

David Olson

Don & Debbie George

Rob & Trish Risman

Burton Carol Management LLC

Porter Wright Law Firm

Brad & Renee Seybert

Alex & Aryn Kosmidis

Nick & Jean Hillman

Elaine & Claude Campbell

Petitti’s Garden Center

United Polish Club

Playhouse Square

Cleveland Browns

Alexandra & Ben Rawding

Fr. & Mrs. James A Doukas

Paula & Doug Randolph

Phil, Alysse & Alana Giallourakis

The Zapis Family

The Wymer Family

Christopher Elbow Chocolates

Westshore Wine Co.

Fusions Salon

Jim Ptacek

Red Tail Golf Club

Elpida Kosmidis

Sargeant Clean (Andrew Bendik & Brian Krusz)

Lake Erie Crushers

Cleveland CAVS

Canton CHARGE

Sat Nam Studios

Charles Scott Salon

Holden Forest

Walgreens

Old Firehouse Winery

Clague Playhouse

Spevock’s Nautical Lane

Claudia Nichol Allen (Our Photographer)

Coyne Catering (We love you!)

DJ Bryon Eulinberg

OUR ORGANIZERS:

Tina Poulos –

Jean & Nick Hillman

Elaine & Claude Campbell

John & Betty Poulos

Mary & Jim Diamond

Becky Giallourakis

Joey Terry

Elpida Kosmidis

Polly Furey

Nick Giallourakis

FRIENDS AND FAMILY:

Jan & Byron Spooner

The Santarelli Family

Ellen Chrisman

Morgan Pavlich

Maggie Steffas

The Giallourakis Clan

The Kackloudis Clan

The Chiviles Clan

The Kariotakis Family

Maria  & Steven Alex

Jeanne & Tony Paras

The In It Together Club

Philoptochos Society

St. Demetrios Church

Metropolis of Pittsburg

All the people in our beautiful community. God Bless All of You!!!

 

Thank you for another successful year.

Keep an eye out for a new kind of fundraiser in 2020…

We will not rest until there is a cure!

FIGHT! CONQUER!! CURE!!!

Please forgive me if I left out your name.
Shoot me an email and I will add you to the list!!
Hope you enjoy the photographs done by talented Claudia Nicole Allen:

FUNDRAISER

 

 

 

ARE YOU BORED?

I have noticed that recently a few folks have unsubscribed to our newsletter (shock!) and after some reflection –

I figured out why….

Life around our homestead has been peaceful, well sort of…Let’s face it, we ARE HAVING A FUNDRAISER THIS COMING WEEKEND.

But – Steven is well.

Thank God.

Boring.

So, lately my messages have been about research, people,

special events like CUREFEST

CANCERCON

and our awesome

Be Calm & Stay Strong Wellness Program.

So, yes life is boring – and isn’t that grand???

But please remember that there are hundreds of families out there

who would like to be bored.

Their children are fighting for their lives.

Let’s pray for them.

Let’s send them love and support.

And, let’ s support

Childhood, Adolescent and Young Adult Cancer Research. 

Remember, we will not rest until there is a Cure!

(not so boring after all…)

Summer is Gone!!!

This has been a busy summer!

Check out our photographs and see what we have been up to!!!

Childhood, Adolescent and Young Adult Cancer Advocacy

Hard At Work in Washington DC

Our GO FUND ME Page on Facebook

has generated $1470 to support the distribution

of Wellness Bags to AYA Cancer Patients!

Thank you for your generosity!

 

The Angie Fowler AYA Cancer Institute granted us $7500 to increase the distribution of our Be Calm & Stay Strong Wellness gift bags. We look forward to reaching out to more AYA Cancer Medical Facilities to help and support young cancer patients during their treatment.

and last but not least…

 SAVE THE DATE!!!!

TAKE A BITE OUT OF CANCER FUNDRAISER

WILL BE

SATURDAY, JANUARY 26, 2019!!!

GO FOR THE GOLD – CHILDHOOD CANCER AWARENESS MONTH

FRIENDS

PLEASE REMEMBER THAT SEPTEMBER IS CHILDHOOD CANCER AWARENESS MONTH. 

PLEASE REMEMBER THAT CHILDHOOD CANCER SURVIVORS BECOME ADOLESCENTS AND YOUNG ADULTS WITH SECONDARY ILLNESSES 

PLEASE REMEMBER THAT EACH DAY PARENTS ARE MOURNING THE LOSS OF THEIR CHILD AS A RESULT OF CANCER.

PLEASE REMEMBER THAT PEDIATRIC CANCER IS THE #1 DISEASE RELATED KILLER OF KIDS IN THE UNITED STATES.

KNOW THAT THE NIH (NATIONAL INSTITUTE OF HEALTH – WHERE YOUR TAX DOLLARS GO) GETS $30 BILLION FOR RESEARCH ANNUALLY, YET CHILDHOOD CANCER RESEARCH GETS LESS THAN $200 MILLION. THE DEADLIEST CHILDHOOD CANCERS GET LITTLE OR NO FUNDING.

IT’S NOT A MATTER OF MORE MONEY, IT’S A MATTER OF PRIORITIES.ribbon

 

 

 

 

WE MUST MAKE CHILDHOOD CANCER RESEARCH A NATIONAL PRIORITY AND GIVE KIDS PEDIATRIC CURES, TREATMENTS, PROTOCOLS AND HOPE!!!

fight! conquer! CURE!!!