As I sit here watching Neptune dump another 6 inches of snow, I remember a time when Steve was in the hospital during a mega February snow storm. Harry was supposed to stay the night and I was going home…however, the weather was so incredibly awful, I just decided to remain safe in Steve’s hospital room. Harry and I shared a single bed next to Steven… It was a good decision as the weather was wicked!
Safety in the hospital…staying over night in the hospital…common phrases we hear everyday when we are impacted by a serious illness or a planned or unplanned surgery.
We are fortunate to have that “safe place” here in Cleveland. We our blessed to have University Hospitals and the Cleveland Clinic. It’s nice to be able to choose based on one’s needs.
Interestingly folks outside of Cleveland, particularly our friends on the East and West Coasts…aren’t aware of the medical facilities available to us Clevelanders’. I recall attending a conference where out of towners’ were AMAZED at the medical facilities and AYA CANCER SERVICES …here in Cleveland…Wow!
So this is my plug for my hometown.
And also to say…thanks.
Last but not least…we continue to deliver BE CALM STAY STRONG PACKAGES for YA Cancer Patients. Feel free to email me at email@example.com to learn how you can support this important service.
Below you will see a photo of Erin Gibson, Pediatric Oncology Social Worker at the Cleveland Clinic’s Children’s Hospital, and me…with ten BE CALM STAY STRONG PACKAGES for Ya Cancer patients and two bags of apples and two bags of oranges for their Ronald MacDonald Family Room. Anyone who has had an extended stay in a children’s hospital has likely visited the Ronald MacDonald Family Room….a great refuge.
We have raised $2105 for the BE CALM STAY STRONG PACKAGES. SO MANY PEOPLE TO THANK.
HERE ARE THE NAMES OF THE PEOPLE WHO HAVE CONTRIBUTED TO THE CONTENTS:
John & Christine Steigerwald
George & Jan Giallourakis
Bill & Connie Pastis
Jim & Connie Giallourakis
Betty & John Poulos
Darrin & Tricia Rudatz
Nancy & Rick Cusick
Andy & Jennifer Ilcin
Tom & Leslie Basista
Manuel & Linda Glynias
I wish to report that last week’s fundraiser was a HUGH success. We raised over $27,000!!!
The evening was filled with warm wishes, fun, great food and music. We had an excellent presentation by our Key Note Speaker Robert Pugert (AYA Cancer Warrior and future Pediatric Oncologist). Robert touched our hearts with words of wisdom on the love and support of family, the value of solid cancer research and hope for a future where cancer is but a thing of the past!!! Imagine..a world without cancer!
Special thanks to Committee Chair Tina Poulos, Jean Hillman, Elaine Campbell, Mary and Jim Diamond, Toula Pyros, Fr. F Jim and Presbytera Goldie Doukas, Acia Shaheen, Betty and John Poulos, Becky Giallourakis, Elpida Kosmides, Jan Spooner, Nick Giallourakis, Stephanie Zavatchen, Polly Furey, CJ Mosure, Lee Santorelli, Helene & Anthony Santorelli, Gabby Kariotakis, Nick and Diane Kariotakis, Maria and Steve Alex, Matina Manos, Bryan Boss, Irene Steffas, Maggie Steffas, Steve Steffas, Claude Campbell, Mary Levendusky, Myrta Holden, Edna Oroczo, Phil and Alysse Giallourakis, Barb Michael, Tracy Michael, Ellie Chrisman, Tammy Asimakis, Alexis Steffas, Sophia Asmis, Maria Steffas and Linda Glynias.
I really hope I didn’t leave anyone out of my list…if so, I will add them next week.
Also, special thanks to our new friends from Korea (Jin Chou, Yegi and Ashley) who are producing a Documentary on Cancer in the USA. Soon you will receive a link to this new documentary where the SGAYA Cancer Research Foundation and Friends will be highlighted.
George Giallourakis, Mike Catanzarite, Lou and Ann Frangos, Jim Doyle, Gary L. Gross, Rob Risman, David and Dena Grubb, The Paras Family, Paul & Christine Venizelos, Thrivent Gift Multiplier Program, Paul Porch, David P Richards, Scott & Kimberly Williams, Steven Zalany, Cindy & Don Sears, Renee Seybert, Sue Giallourakis, Estelle Callas, Amanda Dempsey, Sandy Tata, Janette O’Brian, Mary Kelly Baddour, Linda Damiani, Philoptochos Society of St. Demetrios Greek Orthodox Church, Eileen Tassie, Bobby Catanza, Elaine Campbell, Toula Pyros, Linda Lens Photography, Jeremy Dancy, Debbie Webster, Jim & Joel Spevock, Jimmy Lee, Mr & Mrs. Richard R. McClain, Anna & David Goldense, David Wozniak, Becky Prince, Acia Shaheen, Jim Voiklis, Lee & Anglikie Zapis, Tom Abersold, Charles Scott Salon…
Description of the YA Cancer Patient Packages:
The treatment itches, it burns, it makes you exhausted and sick, and because it’s so expensive, many young patients can’t afford the simple things that make it bearable. When you support the BE CALM STAY STRONG program, by sponsoring a cancer care basket for a young cancer patient in need, you are making an immediate impact in the life of a cancer patient. When you sponsor a BE CALM STAY STRONG basket, we work with hospitals and social workers that support cancer patients to ensure that it gets to someone who needs it, right when they need it the most. A personal note is included in the basket. All proceeds from your sponsorship are used to support the BE CALM STAY STRONG program – it’s a purchase with a purpose. FOR MORE INFORMATION CONTACT INFO@FIGHTCONQUERCURE.COM.
SPECIAL THANKS TO THE FOLLOWING INDIVIDUALS WHO HAVE ENABLED US TO PROVIDE BE CALM STAY STRONG PACKAGES TO PATIENTS. YOUR NAMES WILL BE INCLUDED IN A PATIENT PACKAGE.
Andrew & Jenny Illcin, Tom Basista, Kelly Orozco, Tim Greene, Tim O’Shaugnessy, David Hillie, Ken Yackle, Mike Kraft, Manual & Linda M. Glynias, Donna Vassos, Betty & John Poulos, Brendan & Anne Fitzgerald, Darrin & Tricia Rodatz, Nancy & Rick Cusic, Jim & Connie Giallourakis, Bill & Connie Pastis, Scott & Lisa Lee, Rick & Ilona Bartch, Jerry & Diane Babinyecz, Jack & Rita Sabolid, Lou & Baiba Celesky, Deborah Barkauskas, George & Jan Giallourakis, Ted & Angela Giallourakis, Bill & Shannon Giallourakis, and (will your name be next??)…
Author Name: Deborah Morosini, MD, MSW
(not in photo)
Abstract Title: FoundationOne’s comprehensive genomic profiling of solid tumors from 669 adolescents and young adults reveal a distinct spectrum of targetable genomic alterations.
Author Name: Leonard Sender, MD
Abstract Title: A Phase II, Open-Label, Single-Arm, Multicenter, Pharmacokinetic Study of Intramuscular Asparaginase in Young Adults with Acute Lymphoblastic Leukemia or Lymphoblastic Lymphoma
Author Name: Melanie Goldfarb, MD, MS FACS
Abstract Title: Thyroid Cancer Specific Quality of Life and Health Utility in Adolescent and Young Adult Thyroid Survivors
First Place Award – $500
Author Name: Laura Mitchell, BA, BScN, MN, CON(C)
Abstract Title: Enhancing Young Adult Cancer Care: the significance of improving access to community programs
Author Name: Karen Fasciano, Psy.D.
Abstract Title: Development of a web-based support program for caregivers of young adults coping with cancer.
Author Name: Julie Kinamore
Abstract Title: An Outdoor Adventure Program for Young Adults with Cancer: Positive Effects on Body Image and Psychosocial Functioning
I wanted to share an email from one of last years’ recipients.
Dr. Catherine Fiona MacPherson’s (in photo below) research study is titled:
Please read an excerpt from Catherine’s message regarding the SGAYA Fund’s $500 Award impacted her research project:
“...follow-up to our conversation regarding the impact of the generous award from the Steven G. AYA Cancer Research Fund which the Consortium to Study Symptoms in Adolescents with Cancer (CS2AC) received at Critical Mass 2013.
I have attached the paper published in Pediatric Blood and Cancer this past summer which reports the primary findings of our study evaluating the feasibility and acceptability of a novel iPad application to explore symptoms and symptom clusters in AYAs with cancer.
The award enabled us to pay a medical illustrator to design Figure 1 which appears on page 3.
The inclusion of this figure notably enhanced the paper by providing example images of step by step completion of the app screens to complement the text description of the same. The figure enabled us to better convey the innovation and paradigm-shifting potential of the app and generate reader interest in further use and study of it. The paper is important in that it will serve as published preliminary data to support future grant applications for clinical pilot testing of the app’s potential to empower AYAs to gain insight into and communicate their unique symptom experience. Our award from the Steven G. AYA Cancer Research Fund therefore contributed significantly to moving forward our research agenda to positively impact symptom management for AYAs with cancer.
Again, thank you so very much, on behalf of all of us in CS2AC (cc’d on this email). Please do not hesitate to let us know if there is ever any way in which we could assist you. Your work is vitally important to advancing research and clinical care to benefit AYAs with cancer and we would be delighted to support it in any way we can to give back in return for the support you have given us.”
SAVE THE DATE!!
OCTOBER 30-31, 2014
IRIS S. & BERT L. WOLSTEIN RESEARCH BUILDING
2103 CORNELL ROAD
CLEVELAND, OHIO 44106
The symposium is sponsored by the Angie Fowler Adolescent and Young Adult Cancer Institute at University Hospitals Rainbow Babies & Children’s Hospital, UH Seidman Cancer, Case Comprehensive Cancer Center, and the Oregon Health & Science University Knight Cancer Institute.
(REGISTRATION FORM aya symposium 2014)
The focus of this two-day symposium is advancing AYA-related research, increasing federal funding, and exploration of scientific, clinical and psychological considerations in the AYA population.
KEY NOTE SPEAKER:
Clifton Leaf, Deputy Manager Editor, Fortune Magazine and Author, The Truth In Small Doses – Why We’re Losing the War on Cancer – and How to Win It.
FOR MORE INFORMATION PLEASE CONTACT: AYASYM2014@UHHOSPITALS.ORG