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Our Thoughts and Ideas.

Creating Hope Act of 2011: Tell your representative!!!

  Congressional Legislation Details Title as Introduced: Creating Hope Act of 2011 – A bill to expand and strengthen the FDA's priority review voucher incentive program relating to rare childhood diseases, including cancer   Bill Number: S.606   Description: The Creating Hope Act has bipartisan support and does not require taxpayer funding. In the past 20 […]

Reflections on Childhood Cancer Awareness Month

On March 6, 2006 our 15 year old son Steven was diagnosed with Stage Four Osteosarcoma. My husband and I were welcomed into a world that is a parent’s worst nightmare.  Being told that our lives were never going to be the same is an understatement. Since that initial diagnosis we witnessed our son struggle […]

Research Update: Pediatric Treatment Approach has better results for AYA’s with Acute Lymphoblastic Leukemia

In a article published in Journal of Adolescent and Young Adult Oncology researchers have reported that AYA’s (adolescents and young adults) with ALL (acute lymphoblastic leukemia) have had better responses to pediatric oncology treatment vs. adult oncology treatment. For a complete description of the study and findings read the attached article. Pediatric Treatment Approach to Improve […]

September is Almost Over

SEPTEMBER IF ALMOST OVER AND CHILDHOOD CANCER IS STILL THE LEADING CAUSE OF DEATH OF CHILDREN  IN THE UNITED STATES OF AMERICA. FOR THE STATISTICS CLICK ON THE LINK BELOW. https://acco.org/Information/AboutChildhoodCancer/ChildhoodCancerStatistics.aspx  

NEED TO EDUCATE THE PUBLIC THAT CANCER SURVIVAL RATES FOR AYA’S NOT IMPROVING!!!

In a recently  published paper by Dr. Archie Bleyer, the survival trends of individual cancers among AYA's (adolescents and young adults) indicate that survival rates have not significantly improved when compared with children and older adults. Males seem to survive less than females.  Issues could be due to socio-economic factors, being less likely to adhere […]

Concerned about the Prevalence of Cancer in Your Home Town?

Here are three articles reporting on the amount of carcinogens being pumped into our environment. If you are as disturbed by the increase in the number of PAYA's (pediatric, adolescents and young adults) with cancer then take the time to read the articles. Thanks, Angie ToxicPollutionandHealth2007OH EnvOH-OzonePollutionReport-Mar2011 Consider_Ohio

Take Time To Acknowledge Childhood Cancer Awareness Month

                                                                                                         School started this week […]

ONCOLOGY DRUG SHORTAGES WORSENING!

  What would you do if your oncologist informed you that your child's life saving medications were no longer available? According to Oncology Times (OT), August 10, 2011, Volume 33, No. 15: The Oncology Drug Shortages will threaten patient treatment. Consider your reaction if you were told that your child's life saving chemotherapy drugs were […]

GvHD National Symposium 2011

  FRIDAY, NOVEMBER 4TH RENAISSANCE CLEVELAND HOTEL CLEVELAND, OHIO PLEASE CLICK ON LINK TO VIEW AGENDA FINAL AGENDA 11.4.11 (2)   This is an important event for anyone interested in learning more about Acute or Chronic Graft Vs. Host Disease. GvHD is a serious, and sometimes life threatening condition that can occur following a Bone […]

Inaugural PAYA Symposium Scheduled for September 1st, 2011

Join us for the Inaugural PAYA (Pediatric, Adolescent and Young Adult) Cancer Symposium. For more information please click the link to read the Program Brochure! PAYA Program 8-2011