Author Archive

Critical Mass Research Poster Awardees

Each year Critical Mass:YA Cancer Alliance, holds an important conference bringing together stakeholders in the field of YA Cancer. Researchers, doctors, nurses, non-profit administrators, survivors and caregivers come together to learn from each other. This year the conference was held in Chicago.

As a Critical Mass partner, and strong advocate for YA Cancer Research, our foundation annually awards researchers in two categories: Innovative Research and Clinical Trials and Innovative Programs and Services. The top three research posters are selected within each category and given a cash award.

We strongly believe that good research is an important step towards finding the best way to cure and treat cancer. FIGHT CONQUER CURE!!

Below are the names of the individuals awarded at the Critical Mass Conference 2015.

Innovative Research                                    Innovative Programs

First Place $500        DEBORAH MOROSINI,MD                       MEGAN BIANCHETTI, MSW

Second Place $300    THERESA KEEGAN, PH.D                         KATHLEEN VILLA, PH.D

Third Place $150        JEANNE ERICKSON, PH.D                       MARIA CABLE, RN

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MARIA CABLE RN Title: “Just In Case”: the Fertility information needs of teenagers and young adults with cancer.

 

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MEGAN BIANCHETTI, MSW Title: Distress in AYAs with Cancer: Components and Covariates

 

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THERESA KEEGAN, PH.D Title: Sociodemographic disparities in survival for adolescents and young adults with cancer differ by health insurance status: a population based-study in California, 2001-2011

 

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JAMES L. BAKER PHARM.D (for Kathleen Villa) Title: A Modeling Analysis of the Risks and Benefits of a Pediatric-Inspired Protocol Compared with a Hyper-CVAD Protocol in the Treatment of Adolescents and Young Adults with Philadelphia-Negative Acute Lymphoblastic Leukemia

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Jeanne Erickson, Ph.D. Title: The Pain Experience of Hospitalized Young Adults with Cancer

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MARK BAILEY PH.D. AND VINCENT MILLER MD (for Deborah Morosini) Title: Comprehensive genomic profiling of sarcomas from 203 adolescents and young adults reveals a distinct spectrum of targetable genomic alterations.

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PAT TAYLOR: Advocate, Parent, and Friend Organization: 3 LITTLE BIRDS 4 LIFE

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CHRISTABEL CHEUNG, MSW: Researcher and Survivor and new friend:) AND HER THERAPY DOG CALVIN.

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HERNAN BARANGAN: Movie Producer, Artist and Survivor (Check out his work on YouTube) Organization: TEEN CANCER AMERICA

EVIDENCED BASED CARE FOR AYA’S – AMELIA BAFFA

CONGRATULATIONS TO AMELIA BAFFA, CLINICAL ONCOLOGY NURSE, AYA PATIENT NAVIGATOR AT RAINBOW, BABIES & CHIMG_5577ILDRENS’ HOSPITAL AND SEIDMAN CANCER CENTER FOR HER CONTINUED EFFORTS TO IMPROVE CARE TO ADOLESCENTS AND YOUNG ADULT CANCER PATIENTS,

AMELIA RESEARCH POSTER WAS PRESENTED AT THE ACADEMY OF ONCOLOGY NURSE
NAVIGATOR CONFERENCE IN ATLANTA, GEORGIA LAST WEEK.

OVER 700 ONCOLOGY NURSES ATTENDED THE CONFERENCE, AND MOST OF THEM WERE WORKING VERY HARD TO RAISE AWARENESS OF THE NEEDS OF AYA CANCER PATIENTS DURING AND AFTER TREATMENTS.

THANK YOU AMELIA FOR YOUR DEDICATED WORK!!!

FIGHT! CONQUER! CURE!!!

do you know my rights

Navigating and Advocating for Yourself at School, College, and the Workplace: A Three Part Series

This three part series for Teens, Young Adults and their Caregivers.

SESSION ONE is on RIGHTS AND RESPONSIBILITIES (learn about legal rights and accommodations) and will take place on October 6th, 2015.

SESSION TWO is on THE ART OF ADVOCACY: identifying strategies for building positive relationships with teachers and employers. Session two will take place on October 20th, 2015.

SESSION THREE is on GETTING IT TOGETHER: creating a management system to manage your time and organize your documents. Session Three will take place on November 3rd, 2015.

WHERE:

Rainbow, Babies & Children’s Hospital: Pediatric Amphitheatre (RBC 1231)

11100 Euclid Ave, Cleveland, OHio 44016

TIME:

6 PM – 7:30 PM

SPEAKER:

Katie Wetherbee MA.Ed.

Katie is an experienced educational consultant who specializes in teens and young adults with cancer and other chronic medical issues.

REGISTRATION REQUIRED

PLEASE CONTACT AMELIA BAFFA @ 216-844-1969
THIS EVENT IS FREE OF CHARGE

THE EVENT WAS MADE POSSIBLE BY THE STEVEN G. AYA CANCER RESEARCH FUND

Please click on the link below for the Program Flyer

 

Navigating and ADV_Oct2015 AYA

ADA accessibility

GO FOR THE GOLD – CHILDHOOD CANCER AWARENESS MONTH

FRIENDS

PLEASE REMEMBER THAT SEPTEMBER IS CHILDHOOD CANCER AWARENESS MONTH. 

PLEASE REMEMBER THAT CHILDHOOD CANCER SURVIVORS BECOME ADOLESCENTS AND YOUNG ADULTS WITH SECONDARY ILLNESSES 

PLEASE REMEMBER THAT EACH DAY PARENTS ARE MOURNING THE LOSS OF THEIR CHILD AS A RESULT OF CANCER.

PLEASE REMEMBER THAT PEDIATRIC CANCER IS THE #1 DISEASE RELATED KILLER OF KIDS IN THE UNITED STATES.

KNOW THAT THE NIH (NATIONAL INSTITUTE OF HEALTH – WHERE YOUR TAX DOLLARS GO) GETS $30 BILLION FOR RESEARCH ANNUALLY, YET CHILDHOOD CANCER RESEARCH GETS LESS THAN $200 MILLION. THE DEADLIEST CHILDHOOD CANCERS GET LITTLE OR NO FUNDING.

IT’S NOT A MATTER OF MORE MONEY, IT’S A MATTER OF PRIORITIES.ribbon

 

 

 

 

WE MUST MAKE CHILDHOOD CANCER RESEARCH A NATIONAL PRIORITY AND GIVE KIDS PEDIATRIC CURES, TREATMENTS, PROTOCOLS AND HOPE!!!

fight! conquer! CURE!!!

EMILY’S RAINBOW RUN and Family Walk – April 19th

YOU ARE INVITED

TO

EMILY’S RAINBOW RUN and Family Walk

In honor of the Memory of our friend Emily Lewis 

The event will take place

Sunday, April 19th, 2015

Westlake High School

Westlake, Ohio 44145

4 MILE TIME RACE starts at 8 am

2 MILE RUN/WALK starts at 8:05 am

Kids Run starts approximately at 9:15 am

To register and for more information visit:

www.emilysrainbowfund.org

or

info@emilysrainbowfund.org

or download this flyer and registration form 2015_ERR_Registration

EmilyPhoto Emily8

New Cancer Publication Supported by SGAYA Cancer Fund

WE ARE PLEASED TO ANNOUNCE THAT RESEARCHERS IN HUANG LAB AT THE CASE MEDICAL SCHOOL HAVE PUBLISHED AN ARTICLE

TITLED

“FOCAL TRANSIENT CNS VESSEL LEAK PROVIDES A TISSUE NICHE FOR SEQUENTIAL IMMUNE CELL ACCUMULATION DURING THE ASYMPTOMATIC PHASE OF EAE INDUCTION.”

Purgert

Robert Purgert

Dr. Askew

Dr. David Askew

Two of our Scholarship recipients, Dr. David Askew and Robert Purgert, assisted in the research study and article development.

According to Dr. Alex Huang results of the study help researchers better understand…

1) how immune cells cross the blood-brain barrier during the development of autoimmune diseases such as multiple sclerosis can be a knowledge base for improving anti-tumor immune cells to cross the same blood brain barrier when used to fight cancers in the brain.
And,
2) how immune cells (lymphocytes such as T cells and B cells) cross the blood brain barrier will also help us understand and prevent leukemia cells crossing the blood brain barrier from the blood to CNS metastasis.
And, of course, there is always the curiosity of how things actually work in this wonderful body that God gives to each of us!

Below please find the Bibliography details and the link ( Barkauskas Exp Neurol 2015 ) to the article.

Article title: Focal transient CNS vessel leak provides a tissue niche for sequential immune cell accumulation during the asymptomatic phase of EAE induction
Reference: YEXNR11938
Journal title: Experimental Neurology
Corresponding author: Dr. Alex Yee-Chen Huang
First author: Dr. Deborah S. Barkauskas
Final version published online: 28-FEB-2015
Full bibliographic details: Experimental Neurology  (2015), pp. 74-85
DOI information: 10.1016/j.expneurol.2015.02.018

 

fight conquer cure

Breast Cancer Research Fundraiser

breast cancerDid you know that Breast Cancer affects Young Adult Women? 

Did you know that Breast Cancer in Young Adult Women tends to more aggressive that in any other age group?

Did you know that there are more Young Adult Women being diagnosed with Breast Cancer than at another time in our history?

If you find these issues appalling, please consider supporting an important Fundraiser Event.

BREAST CANCER VACCINE RESEARCH FUNDRAISER

SPONSORED BY THE

DAUGHTERS OF PENELOPE 

ARE

HOSTING A FASHION SHOW AND LUNCHEON*

ON

MARCH 28TH, 2014

NOON

TICKETS: $35 (half is tax deductible)

Fashions by CaBi Clothing

Jewelry by Sabika

Makeup by Fields and Rodan

For more information and to purchase your ticket place telephone:

440-835-1913

*Event will take place at the

St. Demetrios Cultural Center

22909 Center Ridge Road

Rocky River, Ohio 44116

(please do not delay in making your reservation as seating is limited)

Attached please find the flyer:

flyer march 28

Cleveland: what a great place!

Hi folks,

As I sit here watching Neptune dump another 6 inches of snow, I remember a time when Steve was in the hospital during a mega February snow storm. Harry was supposed to stay the night and I was going home…however, the weather was so incredibly awful, I just decided to remain safe in Steve’s hospital room.  Harry and I shared a single bed next to Steven… It was a good decision as the weather was wicked!

Safety in the hospital…staying over night in the hospital…common phrases we hear everyday when we are impacted by a serious illness or a planned or unplanned surgery.

We are fortunate to have that “safe place” here in Cleveland.  We our blessed to have University Hospitals and the Cleveland Clinic.  It’s nice to be able to choose based on one’s needs.

Interestingly folks outside of Cleveland, particularly our friends on the East and West Coasts…aren’t aware of the medical facilities available to us Clevelanders’. I recall attending a conference where out of towners’ were AMAZED at the medical facilities and AYA CANCER SERVICES  …here in Cleveland…Wow!

So this is my plug for my hometown.

And also to say…thanks.

Last but not least…we continue to deliver BE CALM STAY STRONG PACKAGES for YA Cancer Patients. Feel free to email me at angie@fightconquercure.com to learn how you can support this important service.

Below you will see a photo of Erin Gibson, Pediatric Oncology Social Worker at the Cleveland Clinic’s Children’s Hospital, and me…with ten BE CALM STAY STRONG PACKAGES  for Ya Cancer patients and two bags of apples and two bags of oranges for their Ronald MacDonald Family Room. Anyone who has had an extended stay in a children’s hospital has likely visited the Ronald MacDonald Family Room….a great refuge.

 

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More Thank You’s needed here and MORE!

Be Calm Stay Strong Package for YA Cancer Patients in NE Ohio.

We have raised $2105 for the BE CALM STAY STRONG PACKAGES. SO MANY PEOPLE TO THANK.

HERE ARE THE NAMES OF THE PEOPLE WHO HAVE CONTRIBUTED TO THE CONTENTS:

Judi Kackloudis

Becky Prince

John & Christine Steigerwald

Lisa Lee

George & Jan Giallourakis

Deborah Barkouskas

Elizabeth Pastis

Bill & Connie Pastis

Jim & Connie Giallourakis

Betty & John Poulos

Darrin & Tricia Rudatz

Nancy & Rick Cusick

Andy & Jennifer Ilcin

Tom & Leslie Basista

Kelly Orozco

Tim Green

Tim O’Shaugnessy

David Hillie

Ken Yackle

Mike Kraft

Manuel & Linda Glynias

Donna Vassos

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TAKE A BITE OUT OF AYA CANCER – WE DID IT!!

Hello Friends,

I wish to report that last week’s fundraiser was a HUGH success. We raised over $27,000!!!

The evening was filled with warm wishes, fun, great food and music. We had an excellent presentation by our Key Note Speaker Robert Pugert (AYA Cancer Warrior and future Pediatric Oncologist). Robert touched our hearts with words of wisdom on the love and support of family,  the value of solid cancer research and hope for a future where cancer is but a thing of the past!!! Imagine..a world without cancer! 

Special thanks to Committee Chair Tina Poulos, Jean Hillman, Elaine Campbell, Mary and Jim Diamond, Toula Pyros, Fr. F Jim and Presbytera Goldie Doukas, Acia Shaheen, Betty and John Poulos, Becky Giallourakis, Elpida Kosmides, Jan Spooner, Nick Giallourakis, Stephanie Zavatchen, Polly Furey, CJ Mosure, Lee Santorelli, Helene & Anthony Santorelli, Gabby Kariotakis, Nick and Diane Kariotakis, Maria and Steve Alex, Matina Manos, Bryan Boss, Irene Steffas, Maggie Steffas, Steve Steffas, Claude Campbell, Mary Levendusky, Myrta Holden, Edna Oroczo,  Phil and Alysse Giallourakis, Barb Michael, Tracy Michael, Ellie Chrisman, Tammy Asimakis, Alexis Steffas, Sophia Asmis, Maria Steffas and Linda Glynias.

I really hope I didn’t leave anyone out of my list…if so, I will add them next week.

Also, special thanks to our new friends from Korea (Jin Chou, Yegi and Ashley) who are producing a Documentary on Cancer in the USA. Soon you will receive a link to this new documentary where the SGAYA Cancer Research Foundation and Friends will be highlighted.

AND Special Thanks to our Sponsors and Donors —

YOUR CONTINUOUS SUPPORT HUMBLES US!

George Giallourakis, Mike Catanzarite, Lou and Ann Frangos, Jim Doyle, Gary L. Gross, Rob Risman, David and Dena Grubb, The Paras Family, Paul  & Christine Venizelos, Thrivent Gift Multiplier Program, Paul Porch, David P Richards, Scott & Kimberly Williams, Steven Zalany, Cindy & Don Sears, Renee Seybert, Sue Giallourakis, Estelle Callas, Amanda Dempsey, Sandy Tata, Janette O’Brian, Mary Kelly Baddour, Linda Damiani, Philoptochos Society of St. Demetrios Greek Orthodox Church, Eileen Tassie, Bobby Catanza, Elaine Campbell, Toula Pyros, Linda Lens Photography, Jeremy Dancy, Debbie Webster, Jim & Joel Spevock, Jimmy Lee, Mr & Mrs. Richard R. McClain, Anna & David Goldense, David Wozniak, Becky Prince, Acia Shaheen, Jim Voiklis, Lee & Anglikie Zapis, Tom Abersold, Charles Scott Salon…

AND ABOUT THE BE CALM STAY STRONG YA Cancer Packages—

Description of the YA Cancer Patient Packages: 

The treatment itches, it burns, it makes you exhausted and sick, and because it’s so expensive, many young patients can’t afford the simple things that make it bearable. When you support the BE CALM STAY STRONG program, by sponsoring a cancer care basket for a young cancer patient in need, you are making an immediate impact in the life of a cancer patient. When you sponsor a BE CALM STAY STRONG basket, we work with hospitals and social workers that support cancer patients to ensure that it gets to someone who needs it, right when they need it the most. A personal note is included in the basket. All proceeds from your sponsorship are used to support the BE CALM STAY STRONG program – it’s a purchase with a purpose. FOR MORE INFORMATION CONTACT INFO@FIGHTCONQUERCURE.COM.

SPECIAL THANKS TO THE FOLLOWING INDIVIDUALS WHO HAVE ENABLED US TO PROVIDE BE CALM STAY STRONG PACKAGES TO PATIENTS. YOUR NAMES WILL BE INCLUDED IN A PATIENT PACKAGE.

 Andrew & Jenny Illcin, Tom Basista, Kelly Orozco, Tim Greene, Tim O’Shaugnessy, David Hillie, Ken Yackle, Mike Kraft, Manual & Linda M. Glynias, Donna Vassos, Betty & John Poulos, Brendan & Anne Fitzgerald, Darrin & Tricia Rodatz, Nancy & Rick Cusic, Jim & Connie Giallourakis, Bill & Connie Pastis, Scott & Lisa Lee, Rick & Ilona Bartch, Jerry & Diane Babinyecz, Jack & Rita Sabolid, Lou & Baiba Celesky, Deborah Barkauskas, George & Jan Giallourakis, Ted & Angela Giallourakis, Bill  & Shannon Giallourakis, and  (will your name be next??)…

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