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YOU DID IT!!!

thanku low res

 

Dear Friends,

Thank you for your generous support. Our event: TAKE A BITE OUT OF AYA CANCER was a HIT!!! We raised over $33,000!!! OUR GREATEST AMOUNT EVER!!

-SPECIAL THANKS TO-

OUR SPONSORS

Michael Catanzarite – Manual & Heidi Glynias – David & Dena Grubb – George Giallourakis – Lou & Ann Frangos – Dr. & Mrs Antonios Paras – Philoptochos Society of St. Demetrios Greek Orthodox Church – Bryan & Deborah Rogan – Bellwether Enterprise – James Doyle – John & Judith Kackloudis – George & Laura Kappos – William Weir

-OUR DONORS-

Michaeline & David Hillie – George & Laura Kappos – Paul Porisch –Anonymous – Scott & Kimberly Williams – James Doyle – Heidi Glynias – Dr Mark Cain & Dr. Catherine Shaw – Leslie Orendorf – Evanthia Pallam – Bob & Kathy Steadley – Maribeth Famiano – Alex & Ricka Jelepis – Irene Pontikos – Moira Osborne – Allen & Agnes Arabian – Deborah Webster – Tony & Sue George – Marti & Susan Clancy – Ray Fogg Jr. – Linda & Manuel Glynias – Joseph Grace – Richard & Anna Warren – Karen & John Kackloudis – Thomas & Leslie Basista – Dr. Jeffery Auletta –  Michael Kriston -Don & Cindy Sears – Jock Callander – Lynne Varney – Gayle Knapp – Shannon Viets – Elyce Wozniak – William Weir – Jeremy Dancy – Diane Mares – Jim Voiklis – Lou Frangos – Shannon Fitzgerald – Peter Restifo – John & Betty Poulos – Elaine & Claude Campbell – Toula Pyros – Sue Giallourakis – Mary Diamond – Michelles – Linda Damiani – Jean & Nick Hillman – Costa & Maria Mougianis – Anthony Santarelli – Gerald Largent – Kriaris Family – Cleveland Public Theater – Hot Diggity Dog – Jan Spooner – Helene & Eleni Santarelli – Megan Diamond – Stephanie Zavatchen – Dan Giallourakis – Tim & Barb Hughes – Khaled Fawzy – Cheryl & Angelo Mango – 

-CORPORATE SPONSORS-

CR Construction Company – Hemingway Development – Kretz Family Foundation – Bellwether Enterprise – Darice Inc. – St. Demetrios Philoptochos – Genjed Inc. – Jennings Freeway Industrial Park – Charles Scott Salons, Inc – Red Tail Golf Club – #1 Express Care Wash -Porter Wright Law Firm – Official FitnessPro

Lake Erie Monsters – Rob & Trish Risman – Cleveland MetroParks – Charles Scott Salon & Spas – L’Oreal – Lolly the Trolly – Cleveland Orchestra – Red Tail Golf Club – Wine Styles – Fusions Salon – Dick’s Sporting Goods – Walmart – Giant Eagle – Mitchell’s Ice Cream – Oliver & Henry’s Pets – Inner Bliss Yoga Studio – Spevock Nautical Lanes – Fra Angelica – Walmart – White Oaks – Kathy’s Kolacke’s – Hospitality Management – Mediterranean Imported Foods – St. Panteleimon Ministry – Cleveland Clinic Aesthetics – Cleveland Browns – Cleveland Cavs – Fairview Lanes

-WELLNESS PACKAGE CONTRIBUTORS-

James & Connie Giallourakis – Dave Box & Sarah Cachat – Tony & Jean Chiviles and Family – Mike Cachat & Melanie Menendez

-OUR PHOTOGRAPHER-

Z PHOTOGRAPHY STUDIOS

KARA ZOLLOS

-OUR CATERER-

COYNE CATERING

TRISH & JIM COYNE

-OUR DJ-

GEORGE GOUNTIS

-OUR SPEAKER-

AMELIA BAFFA, RN, MSN

-OUR ENERGIZED COMMITTEE-

Tina Poulos, Chair

Nick Giallourakis, MC

Jean & Nick Hillman – Elaine & Claude Campbell – Mary & Jim Diamond – Toula & Nick Pyros –  Jan Spooner –  Elpida & Peter Kosmidis – Betty & John Poulos – Becky Giallourakis – Anthony & Helene Santarelli – Lee Santarelli – Fr. James & Presbytera Goldie Doukas – Donna Vassos – Dan Dean – Acia Shaheen

CJ Mosure – WebMaster

-OUR  WONDERFUL VOLUNTEERS-

   Camilla Giallourakis, Catherine Giallourakis, Dan Dean, Shannon FitzGerald,  Irene Steffas, Helene Santarelli, Melanie Baur, Sophia Asmis, Mary Diamond, Jean Hillman, Steve Alex, Maria Alex, Phil & Alysse Giallourakis, Myrta Holden, Edna Oroczo, Nick Kariotakis, Becky Giallourakis, Elpida Kosmidis, Gerald Largent, Jan Spooner, Betty & John Poulos and Luke Morrison

SGAYA BOARD MEMBERS

Mary & Jim Diamond

Shannon FitzGerald

Dan Dean

Harry Giallourakis

Angie Giallourakis

Becky Giallourakis

Phil Giallourakis

Jean Hillman – Fundraising

Alysse Shaheen Giallourakis – Legal Advisor

Dr. Jeffery Auletta – Medical Advisor

Steven Giallourakis – The reason we are here

FIGHT! CONQUER! CURE!!!

THANK YOU!!!

Harry & Angie Giallourakis

 

ARE YOU COMING? WE NEED YOUR SUPPORT!

Hello Friends,

It is not in my nature to be bossy (ha) or demanding (double ha) but we are getting down to the wire. Our annual fundraiser TAKE A BITE OUT OF CANCER – will take place in  TWO WEEKS!!!

Uncle_Sam_(pointing_finger)

Please remember that your donations go directly to support local PAYA (pediatric, adolescent and young adult) cancer research at Case Medical School’s Huang PAYA Cancer Research Lab (www.huanglab.com),  and adolescent and young adult cancer patients and families right here is NE Ohio!!!

This year we distributed over 40 Wellness bags (which cost approximately $150 each) to YA Cancer Patients while in Treatment

We supplied fresh fruit and yogurt for Smoothie Day (bi-weekly) for young cancer patients while in treatment.

We supplied products for “BEAUTY DAY” which uplifted the morale of moms and patients by providing make-up and beauty hints, hand massages and manicures (I never thought massaging another’s hands could be so gratifying.)

We sent four young adult patients  from NE Ohio to CANCER CON 2015  in Colorado.

Also, just last week we sent a $250 check to support a dad and young son with cancer to the Annie Appleseed Project Conference. Annie Appleseed focuses on wellness through Integrative Oncology methods. You can visit their website at www.annieappleseedproject.org.

PLEASE HELP US WITH OUR MISSION

WE WILL NOT REST UNTIL THERE IS A CURE!!!

FIGHT! CONQUER! CURE!!!

take a BITE OUT OF CANCER!!

Saturday, January 23rd, 2016

event-logo (1)7 – 11 pm

23023 Center Ridge Road

Rocky River, Ohio 44116

Cost: $40

Can’t attend?

Well, feel free to make a cash donation or donate an auction item. Email me at info@fightconquercure.com for more info:)

Wishing you a Joyous Holiday With Family and Friends

Dear Family and Friends

YOU ARE VERY IMPORTANT!!! WITHOUT YOU WE WOULDN’T EXIST!!!

Through your support the Steven G AYA Cancer Research Fund has reached out and served the pediatric, adolescent and young adult (PAYA) cancer community. We have funded clinicians and researchers in medicine and the social sciences to find better ways to treat and serve PAYA Cancer Patients and Survivors. 

Your financial support sent YA cancer patients to the uplifting and empowering annual Stupid Cancer Conference where young adults interact and learn what it means to be a cancer survivor between the ages of 21-39 years.

Our Wellness Packages have been a hit at Rainbow Babies and Children Hospital, Seidman Cancer Hospital and the Cleveland Clinic. Each newly diagnosed AYA Cancer Patient receives a large canvas bag of materials that encourage and support positive mental and physical health behaviors. Let’s face it these young people need as much support and encouragement as possible!

Our foundation is small but mighty!

THANKS TO YOU!!

We wish you and your families a Merry Christmas, Happy Hanukkah, Joyous Kwanzaa, and a Blessed New Year.Christmas-Candle-and-Rose

Looking forward to seeing you on January 23rd, 2016.

God Bless.

Angie and Harry

Critical Mass Research Poster Awardees

Each year Critical Mass:YA Cancer Alliance, holds an important conference bringing together stakeholders in the field of YA Cancer. Researchers, doctors, nurses, non-profit administrators, survivors and caregivers come together to learn from each other. This year the conference was held in Chicago.

As a Critical Mass partner, and strong advocate for YA Cancer Research, our foundation annually awards researchers in two categories: Innovative Research and Clinical Trials and Innovative Programs and Services. The top three research posters are selected within each category and given a cash award.

We strongly believe that good research is an important step towards finding the best way to cure and treat cancer. FIGHT CONQUER CURE!!

Below are the names of the individuals awarded at the Critical Mass Conference 2015.

Innovative Research                                    Innovative Programs

First Place $500        DEBORAH MOROSINI,MD                       MEGAN BIANCHETTI, MSW

Second Place $300    THERESA KEEGAN, PH.D                         KATHLEEN VILLA, PH.D

Third Place $150        JEANNE ERICKSON, PH.D                       MARIA CABLE, RN

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MARIA CABLE RN Title: “Just In Case”: the Fertility information needs of teenagers and young adults with cancer.

 

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MEGAN BIANCHETTI, MSW Title: Distress in AYAs with Cancer: Components and Covariates

 

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THERESA KEEGAN, PH.D Title: Sociodemographic disparities in survival for adolescents and young adults with cancer differ by health insurance status: a population based-study in California, 2001-2011

 

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JAMES L. BAKER PHARM.D (for Kathleen Villa) Title: A Modeling Analysis of the Risks and Benefits of a Pediatric-Inspired Protocol Compared with a Hyper-CVAD Protocol in the Treatment of Adolescents and Young Adults with Philadelphia-Negative Acute Lymphoblastic Leukemia

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Jeanne Erickson, Ph.D. Title: The Pain Experience of Hospitalized Young Adults with Cancer

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MARK BAILEY PH.D. AND VINCENT MILLER MD (for Deborah Morosini) Title: Comprehensive genomic profiling of sarcomas from 203 adolescents and young adults reveals a distinct spectrum of targetable genomic alterations.

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PAT TAYLOR: Advocate, Parent, and Friend Organization: 3 LITTLE BIRDS 4 LIFE

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CHRISTABEL CHEUNG, MSW: Researcher and Survivor and new friend:) AND HER THERAPY DOG CALVIN.

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HERNAN BARANGAN: Movie Producer, Artist and Survivor (Check out his work on YouTube) Organization: TEEN CANCER AMERICA

EVIDENCED BASED CARE FOR AYA’S – AMELIA BAFFA

CONGRATULATIONS TO AMELIA BAFFA, CLINICAL ONCOLOGY NURSE, AYA PATIENT NAVIGATOR AT RAINBOW, BABIES & CHIMG_5577ILDRENS’ HOSPITAL AND SEIDMAN CANCER CENTER FOR HER CONTINUED EFFORTS TO IMPROVE CARE TO ADOLESCENTS AND YOUNG ADULT CANCER PATIENTS,

AMELIA RESEARCH POSTER WAS PRESENTED AT THE ACADEMY OF ONCOLOGY NURSE
NAVIGATOR CONFERENCE IN ATLANTA, GEORGIA LAST WEEK.

OVER 700 ONCOLOGY NURSES ATTENDED THE CONFERENCE, AND MOST OF THEM WERE WORKING VERY HARD TO RAISE AWARENESS OF THE NEEDS OF AYA CANCER PATIENTS DURING AND AFTER TREATMENTS.

THANK YOU AMELIA FOR YOUR DEDICATED WORK!!!

FIGHT! CONQUER! CURE!!!

do you know my rights

Navigating and Advocating for Yourself at School, College, and the Workplace: A Three Part Series

This three part series for Teens, Young Adults and their Caregivers.

SESSION ONE is on RIGHTS AND RESPONSIBILITIES (learn about legal rights and accommodations) and will take place on October 6th, 2015.

SESSION TWO is on THE ART OF ADVOCACY: identifying strategies for building positive relationships with teachers and employers. Session two will take place on October 20th, 2015.

SESSION THREE is on GETTING IT TOGETHER: creating a management system to manage your time and organize your documents. Session Three will take place on November 3rd, 2015.

WHERE:

Rainbow, Babies & Children’s Hospital: Pediatric Amphitheatre (RBC 1231)

11100 Euclid Ave, Cleveland, OHio 44016

TIME:

6 PM – 7:30 PM

SPEAKER:

Katie Wetherbee MA.Ed.

Katie is an experienced educational consultant who specializes in teens and young adults with cancer and other chronic medical issues.

REGISTRATION REQUIRED

PLEASE CONTACT AMELIA BAFFA @ 216-844-1969
THIS EVENT IS FREE OF CHARGE

THE EVENT WAS MADE POSSIBLE BY THE STEVEN G. AYA CANCER RESEARCH FUND

Please click on the link below for the Program Flyer

 

Navigating and ADV_Oct2015 AYA

ADA accessibility

GO FOR THE GOLD – CHILDHOOD CANCER AWARENESS MONTH

FRIENDS

PLEASE REMEMBER THAT SEPTEMBER IS CHILDHOOD CANCER AWARENESS MONTH. 

PLEASE REMEMBER THAT CHILDHOOD CANCER SURVIVORS BECOME ADOLESCENTS AND YOUNG ADULTS WITH SECONDARY ILLNESSES 

PLEASE REMEMBER THAT EACH DAY PARENTS ARE MOURNING THE LOSS OF THEIR CHILD AS A RESULT OF CANCER.

PLEASE REMEMBER THAT PEDIATRIC CANCER IS THE #1 DISEASE RELATED KILLER OF KIDS IN THE UNITED STATES.

KNOW THAT THE NIH (NATIONAL INSTITUTE OF HEALTH – WHERE YOUR TAX DOLLARS GO) GETS $30 BILLION FOR RESEARCH ANNUALLY, YET CHILDHOOD CANCER RESEARCH GETS LESS THAN $200 MILLION. THE DEADLIEST CHILDHOOD CANCERS GET LITTLE OR NO FUNDING.

IT’S NOT A MATTER OF MORE MONEY, IT’S A MATTER OF PRIORITIES.ribbon

 

 

 

 

WE MUST MAKE CHILDHOOD CANCER RESEARCH A NATIONAL PRIORITY AND GIVE KIDS PEDIATRIC CURES, TREATMENTS, PROTOCOLS AND HOPE!!!

fight! conquer! CURE!!!

EMILY’S RAINBOW RUN and Family Walk – April 19th

YOU ARE INVITED

TO

EMILY’S RAINBOW RUN and Family Walk

In honor of the Memory of our friend Emily Lewis 

The event will take place

Sunday, April 19th, 2015

Westlake High School

Westlake, Ohio 44145

4 MILE TIME RACE starts at 8 am

2 MILE RUN/WALK starts at 8:05 am

Kids Run starts approximately at 9:15 am

To register and for more information visit:

www.emilysrainbowfund.org

or

info@emilysrainbowfund.org

or download this flyer and registration form 2015_ERR_Registration

EmilyPhoto Emily8

New Cancer Publication Supported by SGAYA Cancer Fund

WE ARE PLEASED TO ANNOUNCE THAT RESEARCHERS IN HUANG LAB AT THE CASE MEDICAL SCHOOL HAVE PUBLISHED AN ARTICLE

TITLED

“FOCAL TRANSIENT CNS VESSEL LEAK PROVIDES A TISSUE NICHE FOR SEQUENTIAL IMMUNE CELL ACCUMULATION DURING THE ASYMPTOMATIC PHASE OF EAE INDUCTION.”

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Robert Purgert

Dr. Askew

Dr. David Askew

Two of our Scholarship recipients, Dr. David Askew and Robert Purgert, assisted in the research study and article development.

According to Dr. Alex Huang results of the study help researchers better understand…

1) how immune cells cross the blood-brain barrier during the development of autoimmune diseases such as multiple sclerosis can be a knowledge base for improving anti-tumor immune cells to cross the same blood brain barrier when used to fight cancers in the brain.
And,
2) how immune cells (lymphocytes such as T cells and B cells) cross the blood brain barrier will also help us understand and prevent leukemia cells crossing the blood brain barrier from the blood to CNS metastasis.
And, of course, there is always the curiosity of how things actually work in this wonderful body that God gives to each of us!

Below please find the Bibliography details and the link ( Barkauskas Exp Neurol 2015 ) to the article.

Article title: Focal transient CNS vessel leak provides a tissue niche for sequential immune cell accumulation during the asymptomatic phase of EAE induction
Reference: YEXNR11938
Journal title: Experimental Neurology
Corresponding author: Dr. Alex Yee-Chen Huang
First author: Dr. Deborah S. Barkauskas
Final version published online: 28-FEB-2015
Full bibliographic details: Experimental Neurology  (2015), pp. 74-85
DOI information: 10.1016/j.expneurol.2015.02.018

 

fight conquer cure

Breast Cancer Research Fundraiser

breast cancerDid you know that Breast Cancer affects Young Adult Women? 

Did you know that Breast Cancer in Young Adult Women tends to more aggressive that in any other age group?

Did you know that there are more Young Adult Women being diagnosed with Breast Cancer than at another time in our history?

If you find these issues appalling, please consider supporting an important Fundraiser Event.

BREAST CANCER VACCINE RESEARCH FUNDRAISER

SPONSORED BY THE

DAUGHTERS OF PENELOPE 

ARE

HOSTING A FASHION SHOW AND LUNCHEON*

ON

MARCH 28TH, 2014

NOON

TICKETS: $35 (half is tax deductible)

Fashions by CaBi Clothing

Jewelry by Sabika

Makeup by Fields and Rodan

For more information and to purchase your ticket place telephone:

440-835-1913

*Event will take place at the

St. Demetrios Cultural Center

22909 Center Ridge Road

Rocky River, Ohio 44116

(please do not delay in making your reservation as seating is limited)

Attached please find the flyer:

flyer march 28