Author Archive

Take a BITE out of Cancer Fundraiser

Our Fundraiser is this Saturday. The evening should be fun! Many cool auction and raffle items! We have vacation getaways, art work, sports memorabilia, sports tickets, a wide variety of gift baskets: all donated out of love and kindness.
So many people are impacted by cancer and so many people want to find a way to better treat this horrible disease. Remember our motto: we won’t give up until there is a cure! See you Saturday!
Angie

Interest info on GVHD

We met with a host of experts today. From Pain Management, Dentistry, Neurology and more. But for me, the most outstanding piece of information is that an individual can have GVHD and not know it! This is significant because without detection the GVhD can worsen and could become live threatening!

Visit to the NIH and GVHD

Our visit at the NIH leaves us little time for R&R. This is important business! Not only does Steven have an opportunity to learn about his own health condition, but he is participating in a Natural History Study about GVHD. It has only been about 10 years that Chronic GVHD has come to the attention of researchers.
There is so much to learn about this rare condition.
For those of you suffering from GVHD: There may be an opportunity for you to participate in a study as well. Visit www.cc.nih.gov. Or contact me for more information.

Chemo or cGVHD?

Steven will be traveling to the National Cancer Institute (of the NIH) in Maryland next week because his severe muscle spasms and pains have been challenging to cure. Muscle and joint pain is not uncommon for cancer survivors who have undergone chemotherapy. The question that needs to be addressed in Steven’s case is: Is it post-chemotherapy related or cGVHD (chronic graft versus host disease)? Time will tell.
Angie