I was reading some important FAQ'S from the CureSearch site regarding teens and cancer. Did you know that teens with cancer have a better chance of survival if they are treated by a pediatric oncologist? Even though teens like to be treated as adults, this is ONE VERY IMPORTANT TIME when they should be treated as children. Their SURVIVAL may depend on it!
For more information visit: www.curesearch.org
On June 4th, 2011 over $50,000 was raised for Pediatric (and AYA) Cancer Research. Families, Oncology Professionals, Advocates, and Community Leaders all joined together to show their support for CureSearch, the fundraising arm of the COG (Children's Oncology Group)
During the entire event emotions were high as we honored the memory of our children that have passed on, and to our children who are survivors of cancer.
It is very important that we support each other and the pedicatric oncology research community to find better ways to treat and cure cancer!
Our team: Fight Conquer Cure! raised over $2000! Thanks to everyone for their support!!!
There is a shortage of a key leukemia and lymphoma chemotherapy drugs. This is a crisis! Please contact the FDA and let them know they need to address this matter! Contact your Senator regarding S.296, The Preserving Acess to Life-Saving Medications Act. This is legislation that would provide the FDA (Food and Drug Administration) with the tools to help address and prevent future mediation shortages!
Request a hearing from you congressman!
Just a quick note to say our Take a BITE out of Cancer Fundraiser was a complete success! Over 450 people attended…and we raised $15,000!!! Thanks to everyone who supported us this year!
Our Fundraiser is this Saturday. The evening should be fun! Many cool auction and raffle items! We have vacation getaways, art work, sports memorabilia, sports tickets, a wide variety of gift baskets: all donated out of love and kindness.
So many people are impacted by cancer and so many people want to find a way to better treat this horrible disease. Remember our motto: we won’t give up until there is a cure! See you Saturday!
We met with a host of experts today. From Pain Management, Dentistry, Neurology and more. But for me, the most outstanding piece of information is that an individual can have GVHD and not know it! This is significant because without detection the GVhD can worsen and could become live threatening!
Our visit at the NIH leaves us little time for R&R. This is important business! Not only does Steven have an opportunity to learn about his own health condition, but he is participating in a Natural History Study about GVHD. It has only been about 10 years that Chronic GVHD has come to the attention of researchers.
There is so much to learn about this rare condition.
For those of you suffering from GVHD: There may be an opportunity for you to participate in a study as well. Visit www.cc.nih.gov. Or contact me for more information.
Steven will be traveling to the National Cancer Institute (of the NIH) in Maryland next week because his severe muscle spasms and pains have been challenging to cure. Muscle and joint pain is not uncommon for cancer survivors who have undergone chemotherapy. The question that needs to be addressed in Steven’s case is: Is it post-chemotherapy related or cGVHD (chronic graft versus host disease)? Time will tell.